Forum Discussion
Milva
20 days agoMember
Mastectomy
Hi I was diagnosed with invasive TNBC in April 2026. I carry the BRAC2 gene. In May I had the lumpectomy removed and then I had 11 rounds of chemo. I am due to have a bilateral mastectomy th...
Sarah-2026
7 days agoMember
Hi Milva , I'm sorry that you have to go through this, it's such a hard road. I'm maybe a bit late to respond but I'm about 8 weeks out from my bilateral mastectomy and reconstruction and I feel like recovery has been better than I expected. It has still been really hard but manageable if that makes sense.
Pain- I didn't really have a lot of pain but I keep on top of pain medication and took Panadol etc for at least 3 weeks. My main discomfort was things feeling like they were pulling as I moved around- not pain just a weird sensation.
Drains- drains were really frustrating and i felt they really limited my movements til they all came out. I had 5 in total and I think the last one came out 12 days after surgery.
Tightness and heavy feeling chest- my reconstruction was DTI (direct to implant) and I think this freaked me out the most as they felt so foreign and heavy. I found it really scary having a shower and taking my bra off initially. I definatley wasn't prepared for how the implants would feel. 8 weeks on they still feel foreign but feeling more normal for me.
Showering and movement- I had waterproof dressings so could shower the day after my surgery. You might just need some hooks to hang up your drain bags in the shower to keep them out of the way. I saw the physio day after surgery and had a list of exercises to do pretty much straight away. They were terrifying initially but became easier as i did them more. I went a bit crazy with button up/zip tops but didn't really need them, i just wore comfy tops and got dressed really slowly.
Sleep- I used a long whole body size 'u' shaped pillow, it was nice having support on each side. I'm still using it now as its nice and cozy! I'm starting to test lying a bit on my sides but quite happy still sleeping on my back (despite being a side and tummy sleeper before). My body obviously knows it's not ready for tummy sleeping yet.
I hope your surgery goes well and best wishes for your recovery xxx
AimBar
7 days agoMember
Thank you for the Sarah-2026 for the guide above. I am going to be going through the same in a few weeks. Good tips. Will buy a U pillow.
Do you live with a partner? If you do, did they sleep in the same bed as you? My mother wants to visit from interstate to help with the kids but we only have one spare pull sofa bed.
Thanks again. Very helpful.
Best of luck Milva and Sarah-2026 for your recoveries and ongoing health.
- Sarah-20267 days agoMember
Yep AimBar , my husband slept on a mattress on floor in our 2nd living space for the first week or so especially while I had drains in. I still use the u shape pillow and he fits in our king size bed with me and my big pillow. Good luck.
- Milva6 days agoMember
Hi AimBar
Best of luck for your surgery.
Regards Milva