You are not welded to your current specialist. If you have lost any degree of confidence in them, see someone else. At least take some time to ask more questions. I can absolutely understand the desire to get whatever it is out of your tit but a week or so will not, realistically, make much difference if they are ambivalent about your diagnosis.
What ever this is, or isn't, you are likely to be in the system for a while, either in active treatment or under observation. Pick your team carefully--and yes, you can do that to a degree in the public system. Mxx","board":{"__ref":"Forum:board:surgery"},"conversation":{"__ref":"Conversation:conversation:137381"},"author":{"__typename":"User","login":"Zoffiel"},"postTime":"2019-06-19T01:47:26.000-07:00","kudosSumWeight":6}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXwy","node":{"__typename":"ForumReplyMessage","uid":137387,"body":"Thank you all for your great comments, has helped. I have been lucky to have my wonderful husband drive me so I don't have to focus on driving (don't need an accident on top of it), some of our appointments are an hour and half away at the sunshine coast. He has been wonderfully supportive and so have my two children (even though one is in Perth), I also am part of a couple of groups of ladies who have also been wonderfully supportive and offered meals, driving and anything else I need or want or I need to do is call them. Some have also been down the breast cancer road but most of them are over 10 years so some of the information is a little dated but their support has been amazing. Unfortunately my breast care nurse is away but I got hold of another one yesterday from the sunshine coast hospital and she was wonderful. I have giving a lot of thought to the information given as once you have a mastectomy you can't go back where as if you have a lumpectomy you can progress to a mastectomy if things don't go well. I am off to the MRI guided biopsy tomorrow so hopefully get some more definitive information. They are bringing in the big guns to do the biopsy tomorrow since the mishap with the operation, they have doubled their efforts to ensure I am looked after, so that has been great. Thanks again to everyone I feel so much better about this.","board":{"__ref":"Forum:board:surgery"},"conversation":{"__ref":"Conversation:conversation:137381"},"author":{"__typename":"User","login":"ChrisF"},"postTime":"2019-06-19T19:09:18.000-07:00","kudosSumWeight":5}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXwz","node":{"__typename":"ForumReplyMessage","uid":137391,"body":"Thank you all for your support, the MRI guided biopsy was not as bad as I went for having sedation which kept me calm and lessened the stress and pain of the procedure, still a daunting test but went well, he took 6 specimens so they have plenty of material to look at so just waiting to hear the results. Had a wonderful weekend, went to the local race meeting for a couple of drinks and social outing with some friends, just for an hour or so, Beefies pie for lunch by the river with my husband, lovely to listen to the river while eating some junk food under some trees. Restful day on Sunday, did some baking. Today, had an early coffee/hot choc with a friend who works away and has been very worried as this is the first time she has seen me since before the first operation. So I feel emotionally uplifted and ready to face this week whatever it holds and have so much amazing support which is the key to all of this journey for all of us. Together we can face anything life throws at us.","board":{"__ref":"Forum:board:surgery"},"conversation":{"__ref":"Conversation:conversation:137381"},"author":{"__typename":"User","login":"ChrisF"},"postTime":"2019-06-23T18:07:43.000-07:00","kudosSumWeight":5}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXw0","node":{"__typename":"ForumReplyMessage","uid":137383,"body":"Hi @ChrisF,
Welcome to the forum lovely. So sorry they have messed you around so much. This thing is hard enough to get through without plans being changed and lack of communication.
Unfortunately no body can make this decision for you. I expect it's just dependent on how you feel about the mastecomy VS lumpectomy. If your gut is swaying you one way even just a little more then that is probably best for you. Trusting your instincts through this is no mean feat either. Everything is just so confusing and you will second guess yourself all the time.
I found the original lump in my lymph nodes. No mammogram or u/sound could ever detect the primary breast lump, nor could you feel it. The MRI was the only thing to pick it up. In saying that though, MRI's are notorious for picking things up that may or may not be anything drastic. My decision was easy. I wanted the lumpectomy unless there was absolutely no other choice. I had no reservations at the time and have not regretted the decision at all. I had two surgeries (one for clearer margins), chemo and rads.
Some people feel more comfortable with the mx to save worry at a later date. Statistics say that the lumpectomy with radiation are as good as the mx these days.
It is a difficult choice and I know none of that is particularly helpful in making your decision but rest assured we all understand the fear and confusion along the way.
Best of luck with your decision. I am sure there will be others along soon with their stories. xoxoxoxox","board":{"__ref":"Forum:board:surgery"},"conversation":{"__ref":"Conversation:conversation:137381"},"author":{"__typename":"User","login":"kezmusc"},"postTime":"2019-06-18T21:20:04.000-07:00","kudosSumWeight":4}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXw1","node":{"__typename":"ForumReplyMessage","uid":137384,"body":"I am so sorry you've been given the runaround - having your surgery cancelled like that would have done my head in too - and been very angry & upset at the same time.
Do you have someone else to attend your appointments with you? A 2nd set of ears can be vital in them picking up info that you may miss, in the heat of the moment. My sister in law has attended most of my appointments & has been a Godsend! She also asks intelligent questions, that I hadn't thought of!
All the best with your decision making and take care xxx","board":{"__ref":"Forum:board:surgery"},"conversation":{"__ref":"Conversation:conversation:137381"},"author":{"__typename":"User","login":"arpie"},"postTime":"2019-06-18T23:12:17.000-07:00","kudosSumWeight":4}}]},"cachedAsset({\"assetId\":\"Common\",\"assetType\":\"quiltWrapper\",\"lastModified\":\"1743643322303\",\"locale\":null,\"node\":null})":{"__ref":"CachedAsset:quiltWrapper:breastcanceraus.prod:Common:1743643322303"},"cachedText({\"lastModified\":\"1742938040000\",\"locale\":\"en-US\",\"namespaces\":[\"components/common/ActionFeedback\"]})":[{"__ref":"CachedAsset:text:en_US-components/common/ActionFeedback-1742938040000"}],"cachedAsset({\"assetId\":\"custom.widget.Custom_Footer-en-US\",\"assetType\":\"component\",\"lastModified\":\"1743643405483\",\"locale\":null,\"node\":null})":{"__ref":"CachedAsset:component:custom.widget.Custom_Footer-en-1743643405483"},"cachedText({\"lastModified\":\"1742938040000\",\"locale\":\"en-US\",\"namespaces\":[\"components/community/Breadcrumb\"]})":[{"__ref":"CachedAsset:text:en_US-components/community/Breadcrumb-1742938040000"}],"cachedText({\"lastModified\":\"1742938040000\",\"locale\":\"en-US\",\"namespaces\":[\"components/messages/MessageBanner\"]})":[{"__ref":"CachedAsset:text:en_US-components/messages/MessageBanner-1742938040000"}],"cachedText({\"lastModified\":\"1742938040000\",\"locale\":\"en-US\",\"namespaces\":[\"components/messages/RelatedContentWidget\"]})":[{"__ref":"CachedAsset:text:en_US-components/messages/RelatedContentWidget-1742938040000"}],"cachedText({\"lastModified\":\"1742938040000\",\"locale\":\"en-US\",\"namespaces\":[\"components/messages/MessageListForNodeByRecentActivityWidget\"]})":[{"__ref":"CachedAsset:text:en_US-components/messages/MessageListForNodeByRecentActivityWidget-1742938040000"}],"coreNodes({\"constraints\":{\"id\":{\"in\":[\"community:nkyiu94732\",\"category:newly-diagnosed\",\"category:treatment-and-surgery\",\"board:living-with-and-beyond-breast-cancer\",\"category:lifestyle-and-wellbeing\",\"board:living-with-metastatic-breast-cancer\",\"board:clinical-trials-and-research\",\"category:carers\",\"category:social-zone\",\"board:general-discussion\",\"category:groups\",\"grouphub:autismspectrumdisorderandbreastcancer\",\"grouphub:bcna-mod-squad\",\"grouphub:breast-cancer-childlessness-and-us\",\"grouphub:carers-corner\",\"grouphub:christians-diagnosed-with-breast-cancer\",\"grouphub:choosing-breast-reconstruction\",\"grouphub:first-peoples\",\"grouphub:flat-chat-no-breast-reconstruction\",\"grouphub:hereditarygeneticmutationandbreastcancer\",\"grouphub:invasive-lobular-cancer\",\"grouphub:lets-talk-about-vaginas\",\"grouphub:lgbtiq-breast-cancer-network\",\"grouphub:livinginregionalruralandremoteareas\",\"grouphub:living-with-metastatic-cancer\",\"grouphub:men-living-with-breast-cancer\",\"grouphub:triple-negative-breast-cancer\",\"grouphub:triplepositivebreastcancer\",\"grouphub:young-women\",\"grouphub:work-and-breast-cancer\",\"board:news-and-events\"]}},\"first\":31})":{"__typename":"CoreNodeConnection","edges":[{"__typename":"CoreNodeEdge","node":{"__ref":"Community:community:nkyiu94732"}},{"__typename":"CoreNodeEdge","node":{"__ref":"Category:category:groups"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:autismspectrumdisorderandbreastcancer"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:bcna-mod-squad"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:breast-cancer-childlessness-and-us"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:carers-corner"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:christians-diagnosed-with-breast-cancer"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:choosing-breast-reconstruction"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:first-peoples"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:flat-chat-no-breast-reconstruction"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:hereditarygeneticmutationandbreastcancer"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:invasive-lobular-cancer"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:lets-talk-about-vaginas"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:lgbtiq-breast-cancer-network"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:livinginregionalruralandremoteareas"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:living-with-metastatic-cancer"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:men-living-with-breast-cancer"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:triple-negative-breast-cancer"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:triplepositivebreastcancer"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:young-women"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:work-and-breast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The information available on the Breast Cancer Network Australia website is not medical advice and is provided for information purposes only. It should not be viewed as a replacement for a consultation with a qualified medical professional. Our website is designed to offer information and support to the general public. Be aware that we do not provide any medical advice, and for medical advice we recommend you speak to a qualified medical professional or doctor.
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When I went back about 10 days later for the post-op they said they did not get it all as it was unable to be seen on mammogram or ultrasound and I needed to have an MRI and he wanted to check both to make sure there was nothing else lurking in there. I was booked for surgery on 13 June with the results to be looked at prior to that, if nothing then he would take out the bit missed plus a margin using the current scar. I heard nothing about the MRI and when i arrived for the surgery i was told that my file said that it was going to be what had been discussed, so I thought great and was relieved knowing that one more surgery plus the radiation and possible chemo and we are on the home stretch. They were running behind so i waited 2 1/2 hours when the surgeon came to me and described what we both had discussed and i commented that it was great the MRI had showed nothing else, he said he had not seen it but one of his junior doctors had so he went to have a look at it, he came back and said he was sorry but he would have to cancel the surgery as there was a line (mass) in my right breast and he would have to take my MRI pics to the panel the next day and see me on Monday to discuss their findings. I had been very positive up until then, I was angry and cried myself to sleep that night and the next day was inconsolable, until I decided to get off the couch and get on with my life and not let them beat me. I was not called with a time for Monday, so Monday morning rang up to check what time and told no appointment had been made and when I explained they made me first cab off the rank for the clinic. Surgeon showed me the mass which they say is DCIS, I have the option of just getting a mastectomy next Thursday or having an MRI guided biopsy on Friday to see if the mass is cancerous or not and then decide whether to go for surgery to take out the bit they were going to do with a bit more then chemo and radiation or straight to mastectomy and no chemo and radiation.
Does anyone have any wisdom or insight into my situation to help me make this decision? I am so confused and upset by them upending my world.","body@stringLength":"2394","rawBody":"BreastScreen Qld used mammogram and ultrasound guided biopsies to diagnose a cancerous lump in my right breast close to the chest wall which was removed by surgery on 17 May 2019, all went well. When I went back about 10 days later for the post-op they said they did not get it all as it was unable to be seen on mammogram or ultrasound and I needed to have an MRI and he wanted to check both to make sure there was nothing else lurking in there. I was booked for surgery on 13 June with the results to be looked at prior to that, if nothing then he would take out the bit missed plus a margin using the current scar. I heard nothing about the MRI and when i arrived for the surgery i was told that my file said that it was going to be what had been discussed, so I thought great and was relieved knowing that one more surgery plus the radiation and possible chemo and we are on the home stretch. They were running behind so i waited 2 1/2 hours when the surgeon came to me and described what we both had discussed and i commented that it was great the MRI had showed nothing else, he said he had not seen it but one of his junior doctors had so he went to have a look at it, he came back and said he was sorry but he would have to cancel the surgery as there was a line (mass) in my right breast and he would have to take my MRI pics to the panel the next day and see me on Monday to discuss their findings. I had been very positive up until then, I was angry and cried myself to sleep that night and the next day was inconsolable, until I decided to get off the couch and get on with my life and not let them beat me. I was not called with a time for Monday, so Monday morning rang up to check what time and told no appointment had been made and when I explained they made me first cab off the rank for the clinic. Surgeon showed me the mass which they say is DCIS, I have the option of just getting a mastectomy next Thursday or having an MRI guided biopsy on Friday to see if the mass is cancerous or not and then decide whether to go for surgery to take out the bit they were going to do with a bit more then chemo and radiation or straight to mastectomy and no chemo and radiation.
Does anyone have any wisdom or insight into my situation to help me make this decision? I am so confused and upset by them upending my world.","kudosSumWeight":0,"postTime":"2019-06-18T21:00:00.000-07:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDE","node":{"__typename":"Tag","id":"tag:biopsy","text":"biopsy","time":"2025-03-25T05:01:42.848-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDI","node":{"__typename":"Tag","id":"tag:lumpectomy","text":"lumpectomy","time":"2025-02-12T19:23:18.414-08:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDM","node":{"__typename":"Tag","id":"tag:mastectomy","text":"mastectomy","time":"2025-03-25T05:01:41.271-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDQ","node":{"__typename":"Tag","id":"tag:surgery","text":"surgery","time":"2025-02-12T19:23:18.420-08:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}}]},"timeToRead":2,"currentRevision":{"__ref":"Revision:revision:137381_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":653},"visibilityScope":"PUBLIC","canonicalUrl":null,"seoTitle":null,"seoDescription":null,"isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"archivalData":null,"searchSnippet":"BreastScreen 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right breast doesn't feel the same anymore ... Is this the new norm post lumpectomy, chemo & rad?","conversation":{"__ref":"Conversation:conversation:222689"},"id":"message:222689","revisionNum":1,"uid":222689,"depth":0,"board":{"__ref":"Forum:board:surgery"},"author":{"__ref":"User:user:19982"},"metrics":{"__typename":"MessageMetrics","views":279},"postTime":"2018-08-20T08:25:51.000-07:00","lastPublishTime":"2018-08-20T08:25:51.000-07:00","body@stripHtml({\"removeProcessingText\":true,\"removeSpoilerMarkup\":true,\"removeTocMarkup\":true,\"truncateLength\":200})":"I had my lumpectomy in June 2017 and lymph nodes in right arm removed in July. Chemo stopped at Xmas and rad in March. Now I am just on Herceptin until Oct. 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Making The Hard Decisions","moderationData":{"__ref":"ModerationData:moderation_data:137401"},"body":"I hope all is going well for you. ","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"39","kudosSumWeight":0,"repliesCount":0,"postTime":"2019-07-09T04:22:37.000-07:00","lastPublishTime":"2019-07-09T04:22:37.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:surgery/message:137381/message:137401","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"readOnly":false,"editFrozen":false,"body@stringLength":"39","rawBody":"I hope all is going well for you. 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I am so happy for you & to think you were well enough to go to your sons wedding tasting. That is sure reason enough to get yourself well! Stay positive as stress & cancer dont mix well. Onward & upward for you my dear. Take care. Love & Hugs xx","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"211","kudosSumWeight":2,"repliesCount":0,"postTime":"2019-06-29T17:17:49.000-07:00","lastPublishTime":"2019-06-29T17:17:49.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:surgery/message:137381/message:137400","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"290","rawBody":"@ChrisF What wonderful news! I am so happy for you & to think you were well enough to go to your sons wedding tasting. That is sure reason enough to get yourself well! Stay positive as stress & cancer dont mix well. Onward & upward for you my dear. Take care. Love & Hugs xx","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:137400_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"User:user:20543":{"__typename":"User","id":"user:20543","uid":20543,"login":"Flaneuse","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2017-12-13T01:15:39.000-08:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/legacyfs/online/userpics/640/pK3JKK2GTPMCA.jpg"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:20543"},"ModerationData:moderation_data:137399":{"__typename":"ModerationData","id":"moderation_data:137399","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:137399":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:20543"},"id":"message:137399","revisionNum":1,"uid":137399,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:surgery"},"parent":{"__ref":"ForumTopicMessage:message:137381"},"conversation":{"__ref":"Conversation:conversation:137381"},"subject":"Re: Making The Hard Decisions","moderationData":{"__ref":"ModerationData:moderation_data:137399"},"body":"@ChrisF I know how it feels to be mucked around and misled by health professionals. I'm glad you're now coming through this with less stress than you anticipated. All the best for your recovery. <3","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"206","kudosSumWeight":2,"repliesCount":0,"postTime":"2019-06-28T21:38:34.000-07:00","lastPublishTime":"2019-06-28T21:38:34.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:surgery/message:137381/message:137399","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"206","rawBody":"@ChrisF I know how it feels to be mucked around and misled by health professionals. I'm glad you're now coming through this with less stress than you anticipated. All the best for your recovery. <3","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:137399_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"ModerationData:moderation_data:137398":{"__typename":"ModerationData","id":"moderation_data:137398","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:137398":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22023"},"id":"message:137398","revisionNum":1,"uid":137398,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:surgery"},"parent":{"__ref":"ForumTopicMessage:message:137381"},"conversation":{"__ref":"Conversation:conversation:137381"},"subject":"Re: Making The Hard Decisions","moderationData":{"__ref":"ModerationData:moderation_data:137398"},"body":"Thank you @Anne65. It was great I was home for lunch and now it is Saturday and I feel great, only a little pain and discomfort easily managed and today I am off to the wedding tasting for my sons wedding which I thought I may not be able to attend. Thank you for your kind words, it has been amazing to receive so much support from strangers, it has made me work really hard to get this right and the surgeon was very happy with the outcome. Hugs in return xxx","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"208","kudosSumWeight":3,"repliesCount":0,"postTime":"2019-06-28T14:41:37.000-07:00","lastPublishTime":"2019-06-28T14:41:37.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:surgery/message:137381/message:137398","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"readOnly":false,"editFrozen":false,"body@stringLength":"473","rawBody":"Thank you @Anne65. It was great I was home for lunch and now it is Saturday and I feel great, only a little pain and discomfort easily managed and today I am off to the wedding tasting for my sons wedding which I thought I may not be able to attend. Thank you for your kind words, it has been amazing to receive so much support from strangers, it has made me work really hard to get this right and the surgeon was very happy with the outcome. Hugs in return xxx","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:137398_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"ModerationData:moderation_data:137397":{"__typename":"ModerationData","id":"moderation_data:137397","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:137397":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:20627"},"id":"message:137397","revisionNum":1,"uid":137397,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:surgery"},"parent":{"__ref":"ForumTopicMessage:message:137381"},"conversation":{"__ref":"Conversation:conversation:137381"},"subject":"Re: Making The Hard Decisions","moderationData":{"__ref":"ModerationData:moderation_data:137397"},"body":"@ChrisF Good luck today & to think you will be home sleeping in your own bed tonight. I am so happy that the outcomes have been so great & you didnt end up having to have major surgery that you didnt need. Let us know how you got on. Sweet dreams tonight & i bet you will feel like a weight has been lifted! Hugs xx","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"211","kudosSumWeight":0,"repliesCount":0,"postTime":"2019-06-26T18:44:38.000-07:00","lastPublishTime":"2019-06-26T18:44:38.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:surgery/message:137381/message:137397","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"readOnly":false,"editFrozen":false,"body@stringLength":"333","rawBody":"@ChrisF Good luck today & to think you will be home sleeping in your own bed tonight. I am so happy that the outcomes have been so great & you didnt end up having to have major surgery that you didnt need. Let us know how you got on. Sweet dreams tonight & i bet you will feel like a weight has been lifted! Hugs xx","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:137397_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"ModerationData:moderation_data:137396":{"__typename":"ModerationData","id":"moderation_data:137396","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:137396":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22023"},"id":"message:137396","revisionNum":1,"uid":137396,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:surgery"},"parent":{"__ref":"ForumTopicMessage:message:137381"},"conversation":{"__ref":"Conversation:conversation:137381"},"subject":"Re: Making The Hard Decisions","moderationData":{"__ref":"ModerationData:moderation_data:137396"},"body":"Thank you, especially Anne65 your comments were right on. I have had the results back and the mass is benign and today I go in for a wide excision which is basically doing what they were going to do last time, take out the last of the cancer with a wider margin than they were originally, they say I can come home today which is awesome.I am so pleased that I had the test and that I didn't have to have a mastectomy when it was not completely necessary.
The support from this site has been amazing and I thank you all for your information on your personal stories it helps when it comes from real people not just medical professionals most of which have not gone through it. They mean well and have an expertise which is valuable but adding the personal information makes it a whole package which makes it easier to make the hard decisions needed to be made when facing any cancer and I feel that this type of site is so invaluable to cancer patients and family. Have a great day, I will be having a nice nap this morning and am looking forward to getting home this afternoon.","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"208","kudosSumWeight":0,"repliesCount":0,"postTime":"2019-06-26T12:46:35.000-07:00","lastPublishTime":"2019-06-26T12:46:35.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:surgery/message:137381/message:137396","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"readOnly":false,"editFrozen":false,"body@stringLength":"1106","rawBody":"Thank you, especially Anne65 your comments were right on. I have had the results back and the mass is benign and today I go in for a wide excision which is basically doing what they were going to do last time, take out the last of the cancer with a wider margin than they were originally, they say I can come home today which is awesome.I am so pleased that I had the test and that I didn't have to have a mastectomy when it was not completely necessary.
The support from this site has been amazing and I thank you all for your information on your personal stories it helps when it comes from real people not just medical professionals most of which have not gone through it. They mean well and have an expertise which is valuable but adding the personal information makes it a whole package which makes it easier to make the hard decisions needed to be made when facing any cancer and I feel that this type of site is so invaluable to cancer patients and family. Have a great day, I will be having a nice nap this morning and am looking forward to getting home this afternoon.","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:137396_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"ModerationData:moderation_data:137395":{"__typename":"ModerationData","id":"moderation_data:137395","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:137395":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:20627"},"id":"message:137395","revisionNum":1,"uid":137395,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:surgery"},"parent":{"__ref":"ForumTopicMessage:message:137381"},"conversation":{"__ref":"Conversation:conversation:137381"},"subject":"Re: Making The Hard Decisions","moderationData":{"__ref":"ModerationData:moderation_data:137395"},"body":"@ChrisF Glad to hear you have made your decision & are happy with getting that boxed ticked. It's so hard but we can only deal with what info is in front of us & I, like you, decided with a lumpectomy over mastectomy as did my surgeon. My medical team figured a mastectomy was overkill in my situation & I was happy with that too. I also had a family history so was gene tested but this came back negative. One thing I didnt realise early on, is if you have a lumpectomy followed by rad treatment, it is very hard to have a reconstruction following a mastectomy, if the cancer was to reappear at a later date. Apparently the effects on the underlying tissue following rad treatment makes the reconstruction more difficult.This is why my rad onc wanted my gene test results before he went ahead. I am still very happy with my decision, DCIS surgery, ovary/tube removal & rad treatment & I has passed my first yr anniversary mammo. Good luck with future treatment & try to relax & not plan or worry about what may happen in the future as things can change all the time. Be happy with your decision & move on to the next phase. I would have done the same thing as you. Take plenty of \"me\" time & take comfort from your family & friends support. Love & hugs xx","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"211","kudosSumWeight":3,"repliesCount":0,"postTime":"2019-06-25T18:55:11.000-07:00","lastPublishTime":"2019-06-25T18:55:11.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:surgery/message:137381/message:137395","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"readOnly":false,"editFrozen":false,"body@stringLength":"1306","rawBody":"@ChrisF Glad to hear you have made your decision & are happy with getting that boxed ticked. It's so hard but we can only deal with what info is in front of us & I, like you, decided with a lumpectomy over mastectomy as did my surgeon. My medical team figured a mastectomy was overkill in my situation & I was happy with that too. I also had a family history so was gene tested but this came back negative. One thing I didnt realise early on, is if you have a lumpectomy followed by rad treatment, it is very hard to have a reconstruction following a mastectomy, if the cancer was to reappear at a later date. Apparently the effects on the underlying tissue following rad treatment makes the reconstruction more difficult.This is why my rad onc wanted my gene test results before he went ahead. I am still very happy with my decision, DCIS surgery, ovary/tube removal & rad treatment & I has passed my first yr anniversary mammo. Good luck with future treatment & try to relax & not plan or worry about what may happen in the future as things can change all the time. Be happy with your decision & move on to the next phase. I would have done the same thing as you. Take plenty of \"me\" time & take comfort from your family & friends support. Love & hugs xx","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:137395_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"User:user:17102":{"__typename":"User","id":"user:17102","uid":17102,"login":"lrb_03","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2015-06-07T02:38:08.000-07:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/legacyfs/online/userpics/129/pH5S7OK0RCFC1.jpg"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:17102"},"ModerationData:moderation_data:137394":{"__typename":"ModerationData","id":"moderation_data:137394","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:137394":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:17102"},"id":"message:137394","revisionNum":1,"uid":137394,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:surgery"},"parent":{"__ref":"ForumTopicMessage:message:137381"},"conversation":{"__ref":"Conversation:conversation:137381"},"subject":"Re: Making The Hard Decisions","moderationData":{"__ref":"ModerationData:moderation_data:137394"},"body":"Good to hear all that. Hope the wait for results won't be too long","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"67","kudosSumWeight":1,"repliesCount":0,"postTime":"2019-06-25T06:20:54.000-07:00","lastPublishTime":"2019-06-25T06:20:54.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:treatment-and-surgery/community:nkyiu94732board:surgery/message:137381/message:137394","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"readOnly":false,"editFrozen":false,"body@stringLength":"71","rawBody":"Good to hear all that. Hope the wait for results won't be too long","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:137394_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"User:user:20569":{"__typename":"User","id":"user:20569","uid":20569,"login":"Sister","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2017-12-06T13:01:28.000-08:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/legacyfs/online/userpics/240/pC7X05PF585T0.jpg"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:20569"},"ModerationData:moderation_data:137393":{"__typename":"ModerationData","id":"moderation_data:137393","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:137393":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:20569"},"id":"message:137393","revisionNum":1,"uid":137393,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:surgery"},"parent":{"__ref":"ForumTopicMessage:message:137381"},"conversation":{"__ref":"Conversation:conversation:137381"},"subject":"Re: 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