Forum Discussion
judys
7 years agoMember
Lymphoedema
Have had double mastectomy 6 days ago with lymph nodes removed. What horrors should Iook out for? Forewarned is forewarned.
Flaneuse
7 years agoMember
Thanks @kmakm . Salut, @judys . I'm a francophile. Have spent lots of time in France over 40 years. Used to live in Paris 4ème. I spent 4.5 months there again early last year. Was diagnosed 30 November 2017. Left mastectomy, 12 cm lobular tumour removed and three papillomas excised on right. I have a saline expander and shall have changeover surgery for implant in about April 2019. After surgery, had five months of chemo then 25 days of radiation. Now on Letrozole. I developed lymphoedema a couple of months ago, and have a temporary constriction tube sleeve; shall get my proper sleeve next week. I hope it fits ok. As @Afraser said, not everybody gets it and her advice about trying to ward it off is very sound of course.
My French obsession saved my sanity during chemo - watching BFM TV online (Affaire Benalla etc. !) - I forgot about cancer for hours on end. I had intended to go to France again in April-May this year, but of course cancer changed that. My French friends rallied with parcels of books, magazines etc. and constant loving emails.
I'm so glad you're on this forum; it will be a goldmine of information and support for you. I haven't heard about an online support network in France, though I assume one exists. What town/village are you in? Will you have to travel far for other treatments? I imagine you have a network of friends there; accept all the loving help they will offer.
You should be able to receive an electronic version of the "My Journey" kit from BCNA to download.
Bises,
Fran
My French obsession saved my sanity during chemo - watching BFM TV online (Affaire Benalla etc. !) - I forgot about cancer for hours on end. I had intended to go to France again in April-May this year, but of course cancer changed that. My French friends rallied with parcels of books, magazines etc. and constant loving emails.
I'm so glad you're on this forum; it will be a goldmine of information and support for you. I haven't heard about an online support network in France, though I assume one exists. What town/village are you in? Will you have to travel far for other treatments? I imagine you have a network of friends there; accept all the loving help they will offer.
You should be able to receive an electronic version of the "My Journey" kit from BCNA to download.
Bises,
Fran