Jenny

Hi Shirl

Thank you for your reply. I have dealt with this pain since June 2012 basically in silence and I am finally so happy to be able to correspond with people who are in the same boat as me and understand. Everyone sees you from the outside and don't think there is anything wrong and after 2 years they also think you should move as everything should be fine by now but they really have no idea!

All your comments are so relevant and true but somehow we have to go on although there are days when you ask all those questions you have said. I do accept what has happened but would just like to be pain free so I can get on with things better like looking after my grandchildren and exercising more etc. I also have a 4 year old grandson who was 21 months old when he was diagnosed with a 9 cm ependymoma brain tumour 4 months before my diagnosis so compared to him I am lucky. He will always come first - cancer shouldn't happen in children - so unfair. We still have him although he is still tube fed and doesn't speak and has now been diagnosed with autism but he is most amazing gorgeous little boy ever as are his parents and he can work an ipad!! They ahve set up the "Ethan Davies Scholarship for Research into Brain Cancer " - look it up and you can read all about him. He gives me strength.

After seeing my surgeon yesterday I feel much better about things and it will be another 4 months on the waiting list before I can get in anyway so more time to heal and my Dad has just been diagnosed with Melanoma cancer so I will be doing more running around with him and I need the extra time to do that.

Kind Regards

Jenny