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PatsyN's avatar
PatsyN
Member
8 years ago

Histopathology Report

After my mastectomy just before xmas, I found out at the post op visit that I'd have to have more surgery.
So on Jan 31 I went back into hospital for an axillary node dissection.
After the mastectomy I had 2 drains and a pump and didn't really lose that much fluid. The drains came out in less than a week.
So going home with only the one drain and no pump after the node operation seemed easy.
But the bag was filling up every day. I didn't know where all that stuff was coming from.
By day 7 it's leaking at the point of entry as well as thru the tube into the bag.
I had no more bags and it's the weekend. I wasn't game to leave the house for a second.
The community nurse arrived in the nick of time on the Monday, thank God.
I used face washers taped to my side. I went thru about 5 every day on top of what was going into the bag.
My clothes line looked like the old days when women washed their menstrual pads, lol.
I lost litres of fluids and only yesterday, after 13 days, did I lose that horrible leaking drain.

Today I saw my breast surgeon for the post op visit.
What could she possibly have to say this time round?
I've had the 5 months of chemo, 2 operations, I've always known I'd be hit with the heaviest dose of radiation (6 weeks) and will see the radiologist this Friday.
Everyone seemed cheery. Her assistant was there (nurse), my assistant was there (sister) and she said her job was over.
I should see her again in 6 months.
I was given an appointment to see the radiologist in 2 days (Friday). I know I have 6 weeks of radiology ahead of me.
Just as we were about to leave I asked for a copy of my report.
She said I'm printing it out as we speak.
It's a good thing she didn't print it out before we spoke otherwise I might have kept her there somewhat longer.
When I get home I remember I should look at the report but the dog was begging for a walk.
I'd been feeling pretty good knowing that I was moving into Stage III of my treatment with the chemo and operations behind me.
I ran for the first time since last June today, with the dog pulling me along (huge staffie) but I was running, probably just jogging, for a few metres.
We go home, I feed him and then calmly sit down to read a Histopathology Report - mine.
I've never read one before but I can clearly see that Levels I thru to III are Metastatic Carcinoma.
The numbers look even worse. 11 of 13 nodes in Level I and II, 3 of 3 nodes in Level III.
Even my scar tissue from the mastectomy has invasive carcinoma.
I will go to my GP tomorrow morning to find out what it all means.
Que sera sera...

20 Replies

  • Oh @PatsyN, far out you must have been so distraught. So glad your GP could clarify this for you and put your mind at ease a bit. 
    Hope the fluid will just dissipate itself. I had mastectomies in November and one had a build up of fluid that sloshed around. Still a bit there but slowly going. Hopefully your body will sort it itself for you. Biggest hugs - hope you have a restful night. Xx
  • Good discussion with your doctor! Re fluid, I would tend to agree if it's golf ball size, maybe wait to see if it dissipates by itself, which is a good outcome. I got the impression you think that's quite large but in the fluid build up stakes, it's very manageable!! You can always look at other options if it persists. 
  • What a wonderful GP you have. I'm so glad you are feeling more confident and hope that  fluid lump resolves soon. X
  • @primek 
    Thanks for those links. I've been reading and reading for hours.
    My beautiful GP and his wife have come to my house on their way home just now.
    He has explained clearly to me, like you say, it's a terminology thing.
    To a pathologist a lymph node it not part of the breast so any cancer found in them is metastatic according to the meaning of the word. He said that my pet scan before all the chemo was clear and that radiation will take the rest away. (and hormone therapy for 10 years...)
    Tomorrow morning I meet with the radiologist for the first time.
    My head is in a better place but during the course of the day I've developed a lump in my armpit about the size of a golfball.
    My doctor said it was a build up of fluid.
    So uncomfortable.
    Is it better to gently try to massage it away or do as my GP suggested which is to try not to do anything at all!

    @Zoffiel
    It wasn't much of a run btw. Maybe 10 steps, but it was a start and put a big smile on my face. 
    I'm about to walk him again but I'm not feeling like I could run this evening. It's been a scorcher of a day @Zoffiel
    As for the horse, forget about it...  
     
    Thank you everyone for soothing my nerves. You can be sure I'll keep you posted on what happens next. 
  • Patsy that sounds all screwed up. If you have a good relationship with your oncologist hot foot it back to them clutching that report and get them to translate it. It really is a job for a specialist even if your GP is switched on.

    I've had a locally advanced recurrence and I certainly didn't get patted on the head and sent home. Surgeons can be egotistical arseholes, as I've found out to my detriment, and can say the most outlandish things about subjects outside their field. Go to the source and get your onc to decode that report. Marg

    PS,  I envy you being able to run again. The best I can manage now is an agonised trot, regardless of what is pulling me. Xxx
  • Hi Patsy.
    Yes I bet it's a shock just being handed that. I recall  my horror when someone asked my ki67 rate. I thought...no idea...then read my report ...my rate was 69. High is considered above 20. My friend was freaking out hers was 10.

    So yes it's not great. And yes the word metastases is scary. However breast surgeons and oncologist still refer to it as locally advanced and preserve that word of metasteses for stage 1V.

    What knowing level 1 to 3 means for you is where radiotherapy will be. It will be targeting these areas...and they will get those little sneaky out micro invasions too. Most likely they will be doing a boost along the mastectomy scar. You can discuss this with the radiologist.

    I know this all is sounding terrifying. But I kept looking at my niece in times of my fear. She was 32. 10 nodes positive out of 20. Her2 positive. She us now 14 years cancer free. It is possible. But ask all you need of your surgeon. 

    Let us know how it goes. 

    Take care. Kath x

    Also this is a good pathology link

    https://www.cancer.org/treatment/understanding-your-diagnosis/tests/understanding-your-pathology-report/breast-pathology/breast-cancer-pathology.html

    And this pdf if it works. 


  • Hey Patsy I am just trying to get the link for you..... Bit rude of your surgeon not to bloody discuss it with you ?