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Breast lymphoedema
Hi
Following a lumpectomy and sentinel node removal I found cording in my breast. I now have persistent and painful lymphedema in the affected breast. There seems to be so much information on lymphoedema in the arm but not the breast. Are there any other ladies out there who are experiencing this problem?
I have had numerous sessions of lasertherapy with a lymphoedema physiotherapist and one unsuccessful attempt at compression bandaging my breast (ouch!!!).
I am told that a compression bolero is the next step - does anyone have any experience with these garments?
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15 Replies
Penguin Princess, I can suggest contacting Mandy Page re the free Encore program- it is wonderful. Have a look at the Tasmanian Breast Cancer Facebook page- I have posted info there. Take special care, Mandy
Thank you for sharing your story Ronnie. Your time-frame and treatment almost replicates myself except I am on Letrozol - hot flushes + joint pain & a few other nuisance issues but as you said the breast lymphoedema is more of a challenge. I have been doing quite a bit of physical exercise all along & have had to keep any eye on what is "too much". Good luck with the Encore program, I am sure it will be beneficial for you.
I am hosting a mini-field display this Sunday at a local market & maybe there will be "chat" with the viewers - perhaps breast lymphiedema is more common than I first thought.
Take care Zanette x
Many thanks dmed. What period of time did it take for your compression bra to make a difference? I hope to get some relief using my bolero. Regards Zanette
Thanks for sharing Fiona. It is good to hear from other ladies who have had the cording issues in thier breast. If the compression bolero is not working I will ask my physio re the kinesio tape. Take care Zanette
Me to, initially developed cording after surgery which settled with physio. Finished radiation a few weeks ago and the cording has returned along with edema of the breast. I'm seeing the physio who's massaging and kinesio taping my boob. Also doing the massage and exercise and hoping that it doesn't take to long to improve. All the best Fiona.
Me to, initially developed cording after surgery which settled with physio. Finished radiation a few weeks ago and the cording has returned along with edema of the breast. I'm seeing the physio who's massaging and kinesio taping my boob. Also doing the massage and exercise and hoping that it doesn't take to long to improve. All the best Fiona.
Hi Adean
Thanks for sharing. My lymphoedema also became worse after radiotherapy but I expected that would be the case. Flying seems to be an issue also and with some long flights coming up in a few weeks I hope to soon be on the improve. I asked my lymphoedema physio about massage under the shower & she said that the skin contact without water was better in order to increase the friction. Interesting how different things can work for different people.
Take care
- I to had lymphodeama in the breast it would blow up like a balloon by the end of the day. It became worse after radiotherapy. I was recommended massage by a professional , but massaging with sorbelene under the shower was the best relief. As well as a good Berlin bra. I had it for a long time and then it just went. Although if I use the whipper snipper it swells, or I fly it blows up. Good luck with it all. Adean
Thanks so much for the feedback. It is the first time I have ever written anything on a public place on the net. It is so comforting that we have a network here to help each other.
I had more lasertherapy & massage this morning & am feeling better that I did yesterday. I have a few skin breaks where I have friction rubs from the edges of the compression bandaging & I need to take care of them.
I will be fitted with a compresson bolero this Friday & fingers crossed it will help manage the problem.
When the sea water here (in Tassie) warms up a little I will try to include some water exercise in my programme. I work to keep in a healthy weight range but have been advised to back off on the rowing machine for the time being.
I will look up the links mentioned & again thanks for the information but equally thank you so much for the caring!
Thanks so much for the feedback. It is the first time I have ever written anything on a public place on the net. It is so comforting that we have a network here to help each other.
I had more lasertherapy & massage this morning & am feeling better that I did yesterday. I have a few skin breaks where I have friction rubs from the edges of the compression bandaging & I need to take care of them.
I will be fitted with a compresson bolero this Friday & fingers crossed it will help manage the problem.
When the sea water here (in Tassie) warms up a little I will try to include some water exercise in my programme. I work to keep in a healthy weight range but have been advised to back off on the rowing machine for the time being.
I will look up the links mentioned & again thanks for the information but equally thank you so much for the caring!
