Forum Discussion

Sue_in_FNQ's avatar
11 years ago

Bilateral Mastectomy BOOKED !

I am soooo grateful and relieved ! .... grateful for our public health system and relieved that my request for a bilateral mastectomy was not challenged - it was granted. Surgery is booked for 30 July 2014.

HISTORY :- diagnosed with Invasive Lobular Carcinoma with focal areas of LCIS - in left breast. Tumour size = 40mm. I have dense breast tissue and have heavy busted since the age of 14.  There is NO familiy history .... there was NO lump .... there were NO tell-tale signs. The "second reader" of my routine two-yearly mammogram detected the abnormality on the films.

I am a very pragmatic thinker (particularly when it comes to health issues) and found a wealth of information and insight through this forum.  So, I've had plenty of time to digest the news and at this point in time, I have decided to go with no reconstruction - and will wear external prosthetics when going out etc.

I am surprised by how many girlfriends have questioned (with absolute shock) my choice to have the right breast removed also ... with the remainder of friends stating that this is what they would choose (if in my shoes) too.

The bottom line - it is a very personal choice, made after a number of heart to heart discussions with my uber-supportive husband. "It's such a big decision" my breast nurse reminded me ... indeed it is ... with impacts covering social, psychological, geographical distance, emotional, sexual, age-specific, our children's perspectives, family resilience and on and on. I live in rural far north Qld, with closest family living in SEQ. So, it was not a decision made lightly ... and yet, I am strongly confident it is exactly the right choice for us.

Thank you to those ladies and their stories for your guidance up to this point x

 

15 Replies

  • I just wanted to wish you all the best for your bilateral surgery on 30th July.  I also had bilateral mastectomy as a preventative measure 2 years ago, and also opted for no reconstruction immediately (and now feel quite comfortable without it.)  There was no pain after the surgery due to the wonderful meds for the first couple of days, and after that Panadol was quite enough. I spent 4 days in hospital (under suffrance as I wanted to go home earlier) and left with one drain still in for another 24 hours.  With your very busy lifestyle I thought this might be useful information!  My scar is a fine white line, and my wonderful husband is happy with whichever choice I want to make.  A plus is that exercise is so much easier without a large bust - and my 4 sons tell me that it looks very youthful (bless their hearts) - I have never regretted the decision and think I will stay de-constructed (sounds like a salad!).  It just happens to suit me personally.  Keep in touch.  Michelle xxx

  • Thanks very much Robyn.  Yes, "ready" is an enormous understatement lol.  I was told by a BC survivor friend, that a vast majority of this journey is waiting, waiting, waiting.  Never a truer word has been said.  At least now the surgery date is booked and I can work towards preparing the family and house for my down-time post-op ie. freeze some meals, chores around the house, tend to some farm animals etc ... this will make my recovery and more importantly, the permission I need to give myself to 'just take it easy', all the more smooth sailing.  

  • You sound truly ready for surgery. I had a single mastectomy but wish I had chosen to have both off.I assume that recovery from a bilateral is similar but more involved in some ways.Whatever instructions you are given , exercises etc, after surgery, just follow them to the letter. Please stay in touch and let us know how you are. xxx Robyn
  • Hi Candy and thank you for your kind words,

    The Doctor at Breast Screen Qld (in Cairns) where I have my mammograms, told me that all mammograms are reviewed / assessed ("read") by two specialists (yes, I assume they are Radiologists). 

    In my instance, the 1st reader (Radiologist) looked at my mammogram films and determined : "no abnormality detected", and they were then passed onto the next person to review.

    It was indeed this "2nd reader" who found the tumour on the films ... pullled up my mammogram from 2 years prior to make a comparison, realised the tumour was not evident back then, hence determined that the "high risk breast lesion" (as it is often referred to) required further investigation. 

    I received a phone call from the Brisbane office, offering me the next available appt in Cairns (which was the following week) ... at this next appt, I bounced back and forth between the mammogram and ultrasound technician.  You see, my tumour is so deep within the dense breast tissue (and I am big breasted) that the ultrasound was not able to visualise the lesion in its entirety ... yet the mammogram was able to identify it to the size of about a fifty cent piece. After 4 hours I was sent home (1.5 hours drive away) as the situation required further review by the Brisbane Radiologist ... then I was back to Cairns the following week for a Core Biopsy under Mammography (my left breast was squished in the mammogram machine for 20 minutes, while the biopsy was conducted). 

    I share this info with you without hint or intent of complaint .... again, I am so very grateful for the diligence and care demonstrated by the Breast Screen Qld team.  If it were not for their astute dedication, I would not have been diagnosed and about to receive treatment.

    I hoped I explained this clearly to you Candy ... I found it very interesting to learn about the "2 readers" policy.

  • Wishing you all the best with your op and treatment.  You sound like you are ready to hit this head on.  And yes, we do have a wonderful public health system. You sound like you have a supportive team looking after you, and a loving hubbie.

    I do have one question?  What do you mean by "second reader", 2nd radiologist to lookt at film??  

    Candy