Hi Jeni,
I started writing about my experience with this whole bc journey, but realised that my anger was just rambling on. Four pages, all with FAIL, FAIL, FAIL. Starting with missed mammogram and ultrasound, found out later that previous Radiographer stated that assessment is limited by dense breast tissue (something that has also been addressed in the USA), failed biopsy results, Breast Surgeon doing what he felt best, failure of McGrath nurse to contact me even though my name kept on"poping up" all over the place and give me all information I needed so that I could make an informed choice, Failure to all my medical team to inform me that my reconstruction options would be limited after I have paid thousands of dollars to have radiation. Failed ultrasound of uterus, thank my GP for suggesting I have hysterectomy with ooperectomy, as uterus was not happy, full of adhesions and the size of a six month pregnancy.
I have had what they call a lumpectomy, but really should call partial mastectomy because of what is left. Will have remaining breast reduced, but even that (getting information) was not straight forward.
Thanks for this post, but for people who fall through the big cracks it may be too late. I have met another lady who was diagnosed at the same time as me, she has had a mastectomy, when I asked her about reconstruction, she said she had no idea, no one had said anything to her.
Viv, I live in Regional Victoria
