Hi Prudencerose,
like all the other comments it is about taking control. It was better after I shaved the hair off, I could wear wigs and hats and I washed in sorbolene. My head was cold so I wore a bamboo fibre hat at night. It has grown back evenly. I had my first hair cut since September last week. I was beginning to look like a pompom, it is extremely curly and sticks straight up! So I am keeping the hat on until it gets a bit more length. I really do look a bit wild. Hair, you can not live happily with it or with out it!
Cheers
Kim