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Of late I have found myself in a tangle with users of the forum that have an angry ant attitude. I get it totally that the diagnosis that is given is totally unexpected and hard to ta...","body@stringLength":"1120","rawBody":"Hi to all!
Of late I have found myself in a tangle with users of the forum that have an angry ant attitude. I get it totally that the diagnosis that is given is totally unexpected and hard to take and need to hit out but there's a right and wrong way to go about it.
It is totally unfair and I have become a little tired and jaded by it all and feel I need to bow out for awhile.
Thank you to all that have supported me and I know I have tried to impart knowledge and sensibility to others in return.
On a positive note I have just been through my review with the Breast Surgeon and gone back onto annual reviews after my recent hiccup so I am over the moon about that. I just need the Oncology part of it all to settle, both medical and gynaecology and I will be more than pleased.
Take care and please support where you can and if you're unhappy with something said then think about it before responding as we are all vulnerable at varying times and support BCNA with advocacy where you can
bye ","kudosSumWeight":5,"postTime":"2018-07-07T20:55:10.000-07:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDE","node":{"__typename":"Tag","id":"tag:coping","text":"coping","time":"2025-03-25T05:01:39.590-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDI","node":{"__typename":"Tag","id":"tag:Fatigue","text":"Fatigue","time":"2024-10-28T21:25:23.645-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}}]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:212926_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":362},"visibilityScope":"PUBLIC","canonicalUrl":null,"seoTitle":null,"seoDescription":null,"isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"archivalData":null,"body":"Hi to all!
Of late I have found myself in a tangle with users of the forum that have an angry ant attitude. I get it totally that the diagnosis that is given is totally unexpected and hard to take and need to hit out but there's a right and wrong way to go about it.
It is totally unfair and I have become a little tired and jaded by it all and feel I need to bow out for awhile.
Thank you to all that have supported me and I know I have tried to impart knowledge and sensibility to others in return.
On a positive note I have just been through my review with the Breast Surgeon and gone back onto annual reviews after my recent hiccup so I am over the moon about that. I just need the Oncology part of it all to settle, both medical and gynaecology and I will be more than pleased.
Take care and please support where you can and if you're unhappy with something said then think about it before responding as we are all vulnerable at varying times and support BCNA with advocacy where you can
bye ","customFields":[]},"Conversation:conversation:212926":{"__typename":"Conversation","id":"conversation:212926","solved":false,"topic":{"__ref":"ForumTopicMessage:message:212926"},"lastPostingActivityTime":"2018-07-09T12:34:40.000-07:00","lastPostTime":"2018-07-09T12:34:40.000-07:00","unreadReplyCount":17,"isSubscribed":false},"ModerationData:moderation_data:212926":{"__typename":"ModerationData","id":"moderation_data:212926","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:212926_1":{"__typename":"Revision","id":"revision:212926_1","lastEditTime":"2018-07-07T20:55:10.000-07:00"},"ForumReplyMessage:message:212935":{"__typename":"ForumReplyMessage","id":"message:212935","conversation":{"__ref":"Conversation:conversation:212926"},"author":{"__ref":"User:user:20178"},"revisionNum":1,"uid":212935,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:side-effects"},"subject":"Re: Thank you","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:212935"},"parent":{"__ref":"ForumTopicMessage:message:212926"},"body":"Hi @iserbrown I found your posts and coments helpful and informative congratulations on your good news Take care, and all the best for the future Regards Stork","body@stringLength":"175","rawBody":"Hi @iserbrown I found your posts and coments helpful and informative congratulations on your good news Take care, and all the best for the future Regards 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Definitely see your GP for a care plan for Physiotherapy. Perhaps a specialist one that does Laser. I was very lucky, like Afraser.In 2020, I had Right Mastectomy with axillary clearance, 25 Lymph nodes removed, with 3 cancerous. Movement was not limited. I did do all the recommended exercises. I had a little cording. I chose to see a specialist Physio that does laser and monitors for Lymphodema. I have none of that yet, but I am careful. I wear the pressure sleeve, when flying longer distances. I'm sure that you will see improvement with exercise. Work on this as much as you can. It will be important, especially if you are to have Radiotherapy. I had to have my arms positioned above my head while that happened. I think that is the same for most of us, that have R/T.
","body@stringLength":"886","rawBody":"Dear janeo70, Some good advice above. Definitely see your GP for a care plan for Physiotherapy. Perhaps a specialist one that does Laser. I was very lucky, like Afraser.In 2020, I had Right Mastectomy with axillary clearance, 25 Lymph nodes removed, with 3 cancerous. Movement was not limited. I did do all the recommended exercises. I had a little cording. I chose to see a specialist Physio that does laser and monitors for Lymphodema. I have none of that yet, but I am careful. I wear the pressure sleeve, when flying longer distances. I'm sure that you will see improvement with exercise. Work on this as much as you can. It will be important, especially if you are to have Radiotherapy. I had to have my arms positioned above my head while that happened. I think that is the same for most of us, that have R/T.
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Nerves are damaged and interfered with during the surgery. My arm still feels weird, but better than before. I had a good range of motion very early on. But persevere with the exercises. Range of motion is important, particularly if having Radiotherapy. I have attended a Lymphodema Physio and Laser therapy centre. They have monitored my arm for Lymphodema, which I don't have as yet. I had some Laser treatment, to aid healing, and to treat some cording I had. All the best for the future.","body@stringLength":"583","rawBody":"The arm sounds similar to mine, back in 2020. Nerves are damaged and interfered with during the surgery. My arm still feels weird, but better than before. I had a good range of motion very early on. But persevere with the exercises. Range of motion is important, particularly if having Radiotherapy. I have attended a Lymphodema Physio and Laser therapy centre. They have monitored my arm for Lymphodema, which I don't have as yet. I had some Laser treatment, to aid healing, and to treat some cording I had. All the best for the future.","kudosSumWeight":1,"repliesCount":0,"postTime":"2022-06-09T06:57:11.000-07:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:206671_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"parent":{"__ref":"ForumTopicMessage:message:206664"},"replies":{"__typename":"MessageConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"customFields":[]},"User:user:23504":{"__typename":"User","id":"user:23504","deleted":false,"uid":23504,"login":"ilovewhenitrain","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2021-11-07T00:25:06.000-07:00"}},"QueryVariables:ReplyList:message:212935:1":{"__typename":"QueryVariables","id":"ReplyList:message:212935:1","value":{"id":"message:212935","first":10,"sorts":{"postTime":{"direction":"DESC"}},"repliesFirst":3,"repliesFirstDepthThree":1,"repliesSorts":{"postTime":{"direction":"DESC"}},"useAvatar":true,"useAuthorLogin":true,"useAuthorRank":true,"useBody":true,"useKudosCount":true,"useTimeToRead":false,"useMedia":false,"useReadOnlyIcon":false,"useRepliesCount":true,"useSearchSnippet":false,"useAcceptedSolutionButton":true,"useSolvedBadge":false,"useAttachments":false,"attachmentsFirst":5,"useTags":false,"useNodeAncestors":false,"useUserHoverCard":false,"useNodeHoverCard":false,"useModerationStatus":true,"usePreviewSubjectModal":false,"useMessageStatus":true}},"CachedAsset:text:en_US-components/tags/TagView/TagViewChip-1742938040000":{"__typename":"CachedAsset","id":"text:en_US-components/tags/TagView/TagViewChip-1742938040000","value":{"tagLabelName":"Tag name {tagName}"},"localOverride":false},"QueryVariables:ReplyList:message:124756:1":{"__typename":"QueryVariables","id":"ReplyList:message:124756:1","value":{"id":"message:124756","first":10,"sorts":{"postTime":{"direction":"DESC"}},"repliesFirst":3,"repliesFirstDepthThree":1,"repliesSorts":{"postTime":{"direction":"DESC"}},"useAvatar":true,"useAuthorLogin":true,"useAuthorRank":true,"useBody":true,"useKudosCount":true,"useTimeToRead":false,"useMedia":false,"useReadOnlyIcon":false,"useRepliesCount":true,"useSearchSnippet":false,"useAcceptedSolutionButton":true,"useSolvedBadge":false,"useAttachments":false,"attachmentsFirst":5,"useTags":false,"useNodeAncestors":false,"useUserHoverCard":false,"useNodeHoverCard":false,"useModerationStatus":true,"usePreviewSubjectModal":false,"useMessageStatus":true}},"ForumReplyMessage:message:124756":{"__typename":"ForumReplyMessage","id":"message:124756","customFields":[],"revisionNum":1,"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"author":{"__ref":"User:user:2209"},"uid":124756,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-treatment-and-surgery"},"conversation":{"__ref":"Conversation:conversation:124754"},"subject":"Re: Cording/Lymphodema","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:124756"},"body":":) The beady thingy I bought for myself...I was given a soft type one and it's a great look the big pit craters you get....always nice to get them out and massage them out !!
","body@stringLength":"186","rawBody":":) The beady thingy I bought for myself...I was given a soft type one and it's a great look the big pit craters you get....always nice to get them out and massage them out !!