Forum Discussion
MarC
8 years agoMember
Hi Cynthia, I'm afraid you're wrong about hair loss from chemo not being permanent in some cases. I don't want to scare anyone but it needs to be known that unfortunately, as I've discovered in some cases it can be permanent (depending on the chemo used). I finished chemo roughly 18 months ago and my hair hasn't grown back. I have been trying and trying to find information and answers ever since I noticed it wasn't growing back. No one really knows or talks about "Chemo induced Alopecia", they (the medical specialists) all say "it will grow back" or "everyone is different and it takes time". I've tried scouring the internet to find the answers that no one seems to want to provide to me. What I've found is that they say that around 6% of cases, hair doesn't grow back after the drug Docetaxel is used. The figures could be higher (I believe) as I don't believe anyone is recording the stats here in Australia. I have seen that there is a support group and also a class action in America for this very issue but there is no information here in Australia so people like me are just left to deal with this totally alone. This is such an emotionally devastating long term side effect which has totally affected my quality of life and my whole demeanour. People often say "at least you can just wear a wig or scarf", not realising that wigs are hot, uncomfortable, expensive as well as other problems such as wind and rain. Also as you don't wear them all the time, each time you look in the mirror you have a constant reminder of what you have been through and the disfigurement you now have. I'm writing this with the hope that this gets the attention it deserves, and hopefully if other women who are experiencing this horrible outcome will also add their stories about how we weren't warned, or informed of the statistics, or given an alternative chemo to ensure this wouldn't happen.