Starting chemo this week: Doxorubicin, Cyclophosphamide and Pegfilgrastim then Paclitaxel

Hi @scram, I finished my chemo and radiation treatment last July. I found it manageable, I didn't get the worst side effects, but did have really bad fatigue with the AC treatment. I just kept telling myself this was 6 months of my life, to hopefully come out the other side and lead a relatively normal life again. 

I had my last round of paclitaxel over 5 months ago, and I'm feeling pretty normal now. 

If you read through the post 'struggling through chemo' you will get an idea of some of the side effects we experienced, they vary from person to person. 

I tried to keep up some exercise, mainly walking and stretching, some days I didn't feel like it, and that's fine. The AC fatigue was bad on some days and I barely left the couch. The second week after treatment I felt ok.

I had caps, scarfs and hats from various places, the caps and pre-tied scarfs from Jaz hats (I think that's what they are called) on the internet. I also bought some hats from Target which I'm still using as sun hats. 

Best wishes for next week, you will get through it and out the other side. 

Hi Katie46, I am starting exact same treatment this week.  I just wondered how you are doing assuming you have now started. Do you have any advice for me ? Have you bought any caps or scarves, if yes where from?  Generally, how are you feeling ?  

A reminder to all that COVID is still lurking about!
Hope it's a light dose
Take care 

Oh that's a real bugger @sunrise_sunset ... cos you DO have to 'build yourself up' to the first treatment - after that, it usually isn't as spooky  :( 

I hope you only get a small covid dose - I had a shocker in Jan (my first & only time.)  I hope you are on the anti virals straight away xx

Oh that’s so frustrating for you! Hoping you recover quickly so you can get the first treatment out of the way. The waiting/anticipation is hard. 

Thank you @Katie46 @arpie and @joannag for your responses, sharing and tips. I will take a closer look again as unfortunately I am screaming into the void at the moment. Long story short, I got Covid and so my chemo is being delayed, hopefully by only a week or so. I've been so careful too so I am really annoyed.

Hi @sunrise_sunset, I have just started the exact same regime here in Sydney. I decided not to do cold cap but I hope you get some good results!

 I stated on Thursday and have felt ok - just like a foggy hangover. The steroids gave me a fluttery heart feeling but doing their job I think. I’m kind of relieved to be started, the anticipation was hard. My oncologist has suggested 10,000 steps a day if I can, and it definitely feels better after I have been for a walk. Let me know how you go! 

Wishing you all the best @sunrise_sunset xx. 

If at any time you feel crook (even during chemo) make sure you let the nurses know.  Maybe keep a 'diary' of side effects that you can show them/Onc ... 

take care

Hii @sunrise_sunset, all the best with your treatment. It is all a bit scary, the first day of each new treatment was the scariest for me as you don't know how you will react until you start.

I had the same chemo plan. The AC 4 rounds were probably the hardest for me (and I think most people). I didn't get any nausea, the medication for treating it is much better these days. I never completely lost my taste either, my appetite was ok as well, and didn't get the metalic taste with water either. 

The first few days after treatment were ok, the steroids doing their job, but from day 4-8 I got pretty severe fatigue, so lots of naps and resting. For me the fatigue with AC was the worst side effect. There were days when having a shower was hard work and I'd have to lay down and rest after.

The steroids can give you insomnia, but as I suffer from that anyway it didn't really bother me more than it does normally. 

I tried to do as much exercise as I  could, mainly walking and stretching. As it was wet season in Darwin and pretty hot I bought myself a walking pad/treadmill and would do 15 minutes walking blocks watching the TV, I tried to do this even on the days when I was really fatigued. 

Week 2 after treatment was my 'good' week and I felt ok.

I didn't work during AC but went back 2 days a week through the paclitaxel treatment. I felt generally better on paclitaxel, no severe fatigue. 

My treatment centre didn't offer cold cap, I'm not sure how effective it will be with AC but no harm in giving it a go. I'd definitely try the gloves for paclitaxel, I ended up with some peripheral neuropathy in my fingertips, although mild, and my nails on my hands suffered. 

The chat 'struggling though chemo' will give you an idea of the side effects you might get. Most of my side effects were fairly minor, although I got terrible mouth ulcers around session 7 of paclitaxel.

Overall I found the treatment manageable. 

I had great support from my husband, friends and work. Don't be afraid to accept help when you need it, take it easy and listen to your body. I tried to get out and catch up with friends when I felt ok, mainly in outdoors setting as I felt this reduced any infection risk.

I'm over 5 months post chemo, and feeling ok, almost normal. I was actually quite surprised at how quickly my body recovered from the chemo. The peripheral neuropathy is getting better all the time, and is only faintly in my fingertips now.