My sympathies to all of you. I didn't have this nasty side effect but my partner, who had treatment for very early bowel cancer and chose to do 6 months of chemo (there are some things that families truly do NOT have to share!) was quite badly affected by fatigue, and is still having an occasional bad day over 12 months later. He didn't lose his hair, had a bit of neuropathy problems in his hands (very sensitive to cold) and feet, and no nausea. But he too had the sudden zonking out problem. He could sleep however but sometimes without warning (at his desk for example!). It has improved so we hope for better things, but like many of you it tends to make him feel older than he really wants to and is a bit depressing. He doesn't talk about it to his oncologist either. I agree his oncologist may not be able to help but I also agree that if you don't tell, no-one will ask (to reverse a saying!). I don't have a bad time with lymphoedema, but I talk about it whenever I get a chance as it too tends to be under considered, and it's lifelong. Yelling from the rooftops may be the only way to get better recognition that even when we are considered cancer free, and some of us are not, there are still long term issues and costs to be dealt as a result of cancer and treatment. Strength to you all.
