@Afraser thank you it’s good to hear that your experience is improvement however glacial!
@Barks34 I’m sorry to hear of your level of pain. It’s a real bummer.
I was very wary of PN, and so did cold therapy throughout paclitaxel. I got through 12 doses Ok but had 2 small reductions on 11 and 12. This was due to mild to moderate PN at the time - from dose 10.
I reckon the cold therapy was what got me through 12 doses. But there’s no telling really because I did it every single time!
Since finishing RT it is just as bad, really I think some days it’s worse. Tingling and numbness affect my hands and feet. If it’s bad I can’t feel properly to type or chop vegetables etc.
My feet can feel like I’m walking on pebbles in my shoes- it’s the only way to describe it! Especially gets like that if I’m more active and on hard surfaces.
I now find that I can pretty much guarantee it will come on with being cold, so socks in bed and keep warm in day and gloves as required. Never walk on hard floors without Ugg boots or joggers.
I’m doing stretching exercises, walk when I can, take anti inflammatory meds and fish oil caps for the AI and going on a cancer wellness/recovery program that includes physio, exercise, meditation and 20 classes for flexibility balance and weights etc.
...i will be asking the physio about what else can I do myself for the PN? Haven’t tried acupuncture or reflexology yet. Anyone had good results with those? Or anything else?
Watch out y’all I will be back online with any suggestions that I might get from the recovery team and if anything helps!!
love Tinks xx
