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Karenp23's avatar
Karenp23
Member
6 years ago

Neuropathy feet and fingers

As of tomorrow this will be my last dose of paclitaxel đź‘Źđź‘Ź although I have had neuropathy in my feet and fingers, has anyone experience swelling with theirs?  My fingers ankles and toes swell up usually by the end of the day you they are worse and one of my finger nails is really sore  I bump it and holy cow its like when you have squashed it in a door. 
  • I got really swollen feet after paclitaxel. I went up one and a half shoes sizes. It went away completely after about 18 months and never came back. I don’t think it is related to neuropathy. My neuropathy is worse now than back then but now I have no swelling at all. Probably that’s no help at all, but wishing you all the best.
  • Eight months after finishing Chemo (AC-T), five months out from finishing radiotherapy, I still have bad PN in my right foot. About a month ago my foot got really painful rather than the usual numbness and pins and needles and the foot, ankle and calf were swollen. GP sent me for an ultrasound as she was worried about a DVT but it was all clear, just put down to “one of those things” which is the most frustrating thing about post treatment side effects. My foot is really swollen again today. I have done some research and am going to ask my GP about Vit B12 shots and am considering acupuncture. Will come back and tell you if either work! 
  • Great work on the paclitaxel! I’m on it at present. I have had minor PN and no nail changes maybe helped by doing cold therapy to both feet and hands, but no sign of any swelling. I do know that nail effects are part of paclitaxel damage, these can include nail colour changes like nicotine staining or darker, nail tenderness, swelling under nail, breakage and splitting, and separating from the nail bed sometimes completely and therefore falling off. Usually all recovers and helps if keep nails short, avoid soaking hands eg wear gloves and if nail sore cover to protect from any knocks. Don’t wear tight or rubbing shoes. Perhaps it is worth mention the swelling to your Onco tomorrow? All the best for your ongoing treatment xx
  • Congratulations on getting through your Paclitaxel treatment :) well done.

    I completed my AC chemo but my Paclitaxel was stopped by the oncologist due to my PN for two weeks.  It came on very suddenly and got worse during the two weeks.  I could not walk, drive, pick up things and yes loads of pain even in the nails but no swelling. 
    After I had a couple of scans, they decided that the chemo I had already received had done the job, so they scheduled the surgery.
    My PN has almost disappeared in my hands.  My feet are gradually improving but at a slower rate.

    Like @Afraser, someone told me to take Vitamin B as it helps with blood and also nerve repair. 
    I take the Thompsons Ultra B12 brand, which is sub lingual and is absorbed quickly.  I noticed an improvement in my PN very soon after starting on them in September.  They are available at Chemist Warehouse about $19.00 for 100 tabs but are sometimes on special for about $12.

    good luck with the next part of your treatment.
  • I didn’t get swelling but my toes were very painful - to the point where I started worrying about being able to walk. I lived in terror of someone treading on my toes! But the pain abated - I started taking vitamin B on the advice of my oncologist’s nurse, and things improved. The improvement may have happened anyway, I can’t swear the vitamin B worked, but it may be worth trying. Best wishes.