The information available on the Breast Cancer Network Australia website is not medical advice and is provided for information purposes only. It should not be viewed as a replacement for a consultation with a qualified medical professional. Our website is designed to offer information and support to the general public. Be aware that we do not provide any medical advice, and for medical advice we recommend you speak to a qualified medical professional or doctor. 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i had had a fun appointment with the oncologists yesterday and they reckon my T scores are crappy enough to suggest needing intervention with osteoporosis meds. I ‘only’ have osteopenia at present...but they are keen for me to get treatment NOW and avoid progressing to Porosis Land (hopefully).
Onco told me she wants to use zoledronic acid, which is given IV at the cancer centre I believe twice a year(?). Oh yay can’t wait for the chemo PTSD when I get that first cannula again!
Has anyone gone through this? Be honest, how bad are the side effects? I’ve been told: like a mild flu, might want to take a couple days off work. (Not a problem since my work just ended my employment and I’ll go back on sickness allowance to keep a roof over head until I can find another part time gig).
So im scared! I don’t wanna! But it sounds like I have to do this new drug if I want to keep my bones in one piece. ","kudosSumWeight":0,"postTime":"2019-03-22T03:23:51.000-07:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDE","node":{"__typename":"Tag","id":"tag:bone-density","text":"bone-density","time":"2025-03-25T05:02:44.497-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}}]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:128502_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":303},"visibilityScope":"PUBLIC","canonicalUrl":null,"seoTitle":null,"seoDescription":null,"isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"archivalData":null,"customFields":[],"body":"Hello beautiful women,
i had had a fun appointment with the oncologists yesterday and they reckon my T scores are crappy enough to suggest needing intervention with osteoporosis meds. I ‘only’ have osteopenia at present...but they are keen for me to get treatment NOW and avoid progressing to Porosis Land (hopefully).
Onco told me she wants to use zoledronic acid, which is given IV at the cancer centre I believe twice a year(?). Oh yay can’t wait for the chemo PTSD when I get that first cannula again!
Has anyone gone through this? Be honest, how bad are the side effects? I’ve been told: like a mild flu, might want to take a couple days off work. (Not a problem since my work just ended my employment and I’ll go back on sickness allowance to keep a roof over head until I can find another part time gig).
So im scared! I don’t wanna! But it sounds like I have to do this new drug if I want to keep my bones in one piece. "},"Conversation:conversation:128502":{"__typename":"Conversation","id":"conversation:128502","solved":false,"topic":{"__ref":"ForumTopicMessage:message:128502"},"lastPostingActivityTime":"2023-11-18T13:54:59.000-08:00","lastPostTime":"2023-11-18T13:54:59.000-08:00","unreadReplyCount":20,"isSubscribed":false},"ModerationData:moderation_data:128502":{"__typename":"ModerationData","id":"moderation_data:128502","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:128502_1":{"__typename":"Revision","id":"revision:128502_1","lastEditTime":"2019-03-22T03:23:51.000-07:00"},"ForumReplyMessage:message:128516":{"__typename":"ForumReplyMessage","id":"message:128516","conversation":{"__ref":"Conversation:conversation:128502"},"author":{"__ref":"User:user:20912"},"revisionNum":1,"uid":128516,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:side-effects"},"subject":"Re: My bones, osteopenia, and zoledronic acid.","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:128516"},"parent":{"__ref":"ForumTopicMessage:message:128502"},"body":"@JanineG Thanks for the pricing heads up. I wonder if I am going to qualify for any rebate or subsidy or anything, given I’m at osteopenia stage only. I think if worst comes to worst I’ll have to front up the $270 ish, and so be it. I mean I’ve had a fractured wrist, ribs, toes, elbow in my whole life. And it’s the friggin’ breast cancer treatment that’s put me in the position of needing osteo meds anyway! AND the onco knows I’m on a tiny income with no job. So if all those things don’t add up to qualify me for some kind of reduced cost...I guess it’s just tough eh.
I hope it’s even gonna be approved for me, dental permitting. I know I need a tooth pulled...been in denial and too busy and poor to deal with that for months. No avoiding it now though! Ugh. I’ll be terrified of jaw and tooth problems from the second I have the infusion. My brain is one that loves to torture me with What Ifs. I know it’s a rare s/e but still.
Neulasta was was like having millions of super small nails being hammered into your bones from within. And I had a strange fever and shivering and shaking that I couldn’t help. I went red and puffy in my face. I was also highly toxic from chemo when I had Neulasta though so it’s hard to say what was what. It was so awful that I made a blood oath to myself to never let a doctor give it to me again! Irrational I know. But I’d had enough pain.
Like you say, I’d take the drug that stops me from breaking a hip or vertebrae and puts me in hospital for weeks. There’s no question. Not at age 40. I mostly don’t want to fear breaking bones when walking dogs! I’d die if I couldn’t walk dogs. ","body@stringLength":"1694","rawBody":"@JanineG Thanks for the pricing heads up. I wonder if I am going to qualify for any rebate or subsidy or anything, given I’m at osteopenia stage only. I think if worst comes to worst I’ll have to front up the $270 ish, and so be it. I mean I’ve had a fractured wrist, ribs, toes, elbow in my whole life. And it’s the friggin’ breast cancer treatment that’s put me in the position of needing osteo meds anyway! AND the onco knows I’m on a tiny income with no job. So if all those things don’t add up to qualify me for some kind of reduced cost...I guess it’s just tough eh.
I hope it’s even gonna be approved for me, dental permitting. I know I need a tooth pulled...been in denial and too busy and poor to deal with that for months. No avoiding it now though! Ugh. I’ll be terrified of jaw and tooth problems from the second I have the infusion. My brain is one that loves to torture me with What Ifs. I know it’s a rare s/e but still.
Neulasta was was like having millions of super small nails being hammered into your bones from within. And I had a strange fever and shivering and shaking that I couldn’t help. I went red and puffy in my face. I was also highly toxic from chemo when I had Neulasta though so it’s hard to say what was what. It was so awful that I made a blood oath to myself to never let a doctor give it to me again! Irrational I know. But I’d had enough pain.
Like you say, I’d take the drug that stops me from breaking a hip or vertebrae and puts me in hospital for weeks. There’s no question. Not at age 40. I mostly don’t want to fear breaking bones when walking dogs! I’d die if I couldn’t walk dogs. 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