The information available on the Breast Cancer Network Australia website is not medical advice and is provided for information purposes only. It should not be viewed as a replacement for a consultation with a qualified medical professional. Our website is designed to offer information and support to the general public. Be aware that we do not provide any medical advice, and for medical advice we recommend you speak to a qualified medical professional or doctor. 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I ‘only’ have...","body@stringLength":"995","rawBody":"Hello beautiful women,
i had had a fun appointment with the oncologists yesterday and they reckon my T scores are crappy enough to suggest needing intervention with osteoporosis meds. I ‘only’ have osteopenia at present...but they are keen for me to get treatment NOW and avoid progressing to Porosis Land (hopefully).
Onco told me she wants to use zoledronic acid, which is given IV at the cancer centre I believe twice a year(?). Oh yay can’t wait for the chemo PTSD when I get that first cannula again!
Has anyone gone through this? Be honest, how bad are the side effects? I’ve been told: like a mild flu, might want to take a couple days off work. (Not a problem since my work just ended my employment and I’ll go back on sickness allowance to keep a roof over head until I can find another part time gig).
So im scared! I don’t wanna! But it sounds like I have to do this new drug if I want to keep my bones in one piece. ","kudosSumWeight":0,"postTime":"2019-03-22T03:23:51.000-07:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[{"__typename":"TagEdge","cursor":"MjUuM3wyLjF8b3wxMHxfTlZffDE","node":{"__typename":"Tag","id":"tag:bone-density","text":"bone-density","time":"2025-03-25T05:02:44.497-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}}]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:128502_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":305},"visibilityScope":"PUBLIC","canonicalUrl":null,"seoTitle":null,"seoDescription":null,"isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"archivalData":null,"customFields":[],"body":"Hello beautiful women,
i had had a fun appointment with the oncologists yesterday and they reckon my T scores are crappy enough to suggest needing intervention with osteoporosis meds. I ‘only’ have osteopenia at present...but they are keen for me to get treatment NOW and avoid progressing to Porosis Land (hopefully).
Onco told me she wants to use zoledronic acid, which is given IV at the cancer centre I believe twice a year(?). Oh yay can’t wait for the chemo PTSD when I get that first cannula again!
Has anyone gone through this? Be honest, how bad are the side effects? I’ve been told: like a mild flu, might want to take a couple days off work. (Not a problem since my work just ended my employment and I’ll go back on sickness allowance to keep a roof over head until I can find another part time gig).
So im scared! I don’t wanna! But it sounds like I have to do this new drug if I want to keep my bones in one piece. "},"Conversation:conversation:128502":{"__typename":"Conversation","id":"conversation:128502","solved":false,"topic":{"__ref":"ForumTopicMessage:message:128502"},"lastPostingActivityTime":"2023-11-18T13:54:59.000-08:00","lastPostTime":"2023-11-18T13:54:59.000-08:00","unreadReplyCount":20,"isSubscribed":false},"ModerationData:moderation_data:128502":{"__typename":"ModerationData","id":"moderation_data:128502","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:128502_1":{"__typename":"Revision","id":"revision:128502_1","lastEditTime":"2019-03-22T03:23:51.000-07:00"},"ForumReplyMessage:message:128512":{"__typename":"ForumReplyMessage","id":"message:128512","conversation":{"__ref":"Conversation:conversation:128502"},"author":{"__ref":"User:user:17526"},"revisionNum":1,"uid":128512,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:side-effects"},"subject":"Re: My bones, osteopenia, and zoledronic acid.","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:128512"},"parent":{"__ref":"ForumTopicMessage:message:128502"},"body":"@SummerPrevails I’m so sorry you are struggling with this. I’ll answer each question in order..because it was now 9 months ago I can’t quite remember the time but no longer than 30 mins, I went out for lunch with my daughter afterwards. Didn’t feel any effects that day. I had mine done by a nurse who used rooms at a local dorevitch for convenience. Definitely only once a year I’m due again in June and I was told most patients usually only need it a maximum of 5 years but often less. ,we will see! Last year I paid approximately $275. But don’t quote me on that. I’m at work again in the morning so I’ll check it out. It’s dispenced as ‘Aclasta’. My gp wrote the script I had to get it and take it to the appointment. I haven’t had Neulasta so cant compare. It was really rotten for just one day and then achy uncomfortable tired for about 3/4 more. But maybe if I had rested and not worked through it would have been better. The nurse said it’s always worse the first year. Absolutely no side effects since. Yes I was worried about my teeth , I’ve spent a lot of money on them and would be devistated if something happened. But the important thing is to have a good check up and any work done prior to the infusion. The dentist told me he would be worried if I needed an extraction and had just had an infusion. I hadn’t been for 5 years! Lol lucky for me I was fine but important to go each year prior to infusion. As for your broken wrist.. hopefully. My gp just said.. please tell me you have had broken bone.. no🙄 so do chase that one up. I know it’s so exhausting all of these rotten unexpected side effects but try and deal with one at a time. I found my decision to have the infusion was easy for me. I was more scared of the osteoporosis getting worse and me having a fall and breaking my hip or back so Im of the yes please let’s do and take everything we can variety. I will look into it tomorrow price wise for you and let you know but I do hope you qualify for subsidy due to the wrist. Anyhow I’d better try and get some sleep and hope you can too. I promise the infusion didn’t hurt xo JanineG ","body@stringLength":"2136","rawBody":"@SummerPrevails I’m so sorry you are struggling with this. I’ll answer each question in order..because it was now 9 months ago I can’t quite remember the time but no longer than 30 mins, I went out for lunch with my daughter afterwards. Didn’t feel any effects that day. I had mine done by a nurse who used rooms at a local dorevitch for convenience. Definitely only once a year I’m due again in June and I was told most patients usually only need it a maximum of 5 years but often less. ,we will see! Last year I paid approximately $275. But don’t quote me on that. I’m at work again in the morning so I’ll check it out. It’s dispenced as ‘Aclasta’. My gp wrote the script I had to get it and take it to the appointment. I haven’t had Neulasta so cant compare. It was really rotten for just one day and then achy uncomfortable tired for about 3/4 more. But maybe if I had rested and not worked through it would have been better. The nurse said it’s always worse the first year. Absolutely no side effects since. Yes I was worried about my teeth , I’ve spent a lot of money on them and would be devistated if something happened. But the important thing is to have a good check up and any work done prior to the infusion. The dentist told me he would be worried if I needed an extraction and had just had an infusion. I hadn’t been for 5 years! Lol lucky for me I was fine but important to go each year prior to infusion. As for your broken wrist.. hopefully. My gp just said.. please tell me you have had broken bone.. no🙄 so do chase that one up. I know it’s so exhausting all of these rotten unexpected side effects but try and deal with one at a time. I found my decision to have the infusion was easy for me. I was more scared of the osteoporosis getting worse and me having a fall and breaking my hip or back so Im of the yes please let’s do and take everything we can variety. I will look into it tomorrow price wise for you and let you know but I do hope you qualify for subsidy due to the wrist. Anyhow I’d better try and get some sleep and hope you can too. I promise the infusion didn’t hurt xo JanineG 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