Just wondering if anyone has had the horrible side effects of severe joint/bone pain from the waist down after their shot of the white blood cell booster Pegfilgrastim? My oncologist said it could be handled with panadol, well a trip to the ER because it was unbearable has left me having 5mg endone every four hours, but this ain’t working. I feel horrible already from the normal chemo side effects (TC, first dose) and to have this on top, plus adding more drugs to my body is starting to really stress me out. I cannot seem to find any info on Australian reputable sites about side effects and treatments of for the Pegfilgrastim. So I’m willing to hear any advise to get me through this crappy time !!

You need to start the Claratyne before you have the shot, it won't work afterwards once the pain sets in the damage is done. There is no reason not to try Restavit. If nothing else it will knock you out at night

I had TC but was not offered this drug as a matter of course. When I queried it with the oncologist she said they were monitoring my white blood cells and would give it to me if I needed it. I never did, and I did not get sick. Could you ask your oncologist if you could try your next round without it and see how you go?

Yes. Had awful reaction. Ended up in ed. The pelvic pain was beyond awful. I had a pv bleed with it too. Went to ed as it was so painful and terrifying. White cells were through the roof.i refused to have it ever again. I managed the remaining cycles carefully and without incident.

Yes it is common and I needed pain killers for a day or so after (mine was my neck and back) However Clarityne, an antihistamine has been reported on here as assisting with dramatically reducing that pain. I haven't tried it but a number of women have and state it really helped.Some chemo also causes pain. I was on taxol weekly and got terrible leg pains around day 3....I didn't have Pegfilgrastim during that part of chemo so I know it wasn't that causing it. I didn't have the pain initial round but it got worse each round.

I loathed that drug @Amazonian I've had chemo twice and found that Loratadine (Claratyne) made the world of difference. Ask your onc, but I have never heard of anyone being told they can't take it and it is standard practice in some places. Start the day before chemo and take one a day for 7 days. Some oncologists poo poo the idea, but there have been studies in the UK that suggest it is helpful. At $1 a day it's worth a go.The theory is that the antihistamine helps with the bone oedema caused by the Peg injection. Some people have a worse time with that than others and there is no way I could cope with just Panadol. Mxx

Horrid Bone and Joint Pain after Pegfilgrastim (Neulasta) injection????

Forum Discussion

Recent Discussions

About to commence Tamoxofen
11 hours ago
Jennifer1
Letrozole and high cholesterol
7 days ago
Katie46
Skin Reaction
8 days ago
Jodpri
Tamoxifen and Constipation IBS Pelvic floor issues
1 month ago
FifiVictoria
Ovestin Cream
1 month ago
Barbie54

Forum Discussion

About to commence Tamoxofen

Letrozole and high cholesterol

Skin Reaction

Tamoxifen and Constipation IBS Pelvic floor issues

Ovestin Cream