Hair Loss is not always temporary
I have been scouring the internet looking for suggestions or therapies to improve my sad head of hair. All the websites say the same thing as the BCNA fact sheet or similar, "Remember that hair los...
Forum Discussion
KatieT - I totally get how you feel, there are absolutely days where I have felt exactly as you. I agree with Afraser, your Oncologist isnt the best one to talk to about all these things. I remember having a major meltdown beginning of this year, my treatment was over, everyone expected me to be the old me!!! BS!!!! I look nothing like her and I do have my hair growing back, my entire physicality has changed and that has been a very hard thing to come to terms with. I look in the mirror and cry because I dont recognise who I am either...BUT one thing I have learnt 11 months on is, each day I find something I like about ME...lets face it, its not about anyone else...whether people accept you or like you. What matters is how YOU feel about yourself, and that is so super critical. Katie...for all the moments Ive cried and hated looking at myself, Ive started to look a little deeper and a little kinder at me, where I go...OMG look at what youve been through. I acknowledge every little thing about it, on every level and I think thats half the problem, so much stuff doesnt get spoken about.
My meltdown was on the phone to my breast care nurse who I never really spoke to...and it was over a rehab course I wanted to do but so much red tape, anyway my health fund wouldnt help and I lost it in a ball of tears on the phone...BECAUSE this was the one thing I felt could make a difference in me feeling better about me and to be denied that absolutely broke me!!! I recommend counseling I really do, I didnt do it this time but my first diagnosis 5yrs ago I did as at that time I lost my Mum suddenly then lost my marriage, had 2 children under 10 and then got Breast Cancer and honestly it helped more than I could say. Family and friends are well meaning and loving, but they don't get the depth of this journey or how impacting it is.
I also know in those depths and those moments when you are so low that you dont want any of it anymore, I always found through the tears that I actually learned to love myself that little bit more something I never really did. Doing the smallest thing for me that I feel nurtured not by anyone else but by me. Cup of tea in the sun, soft music, something that I feel peaceful, it can be anything. You are not alone in how you think, believe me. It is a long hard road..but please keep talking and sharing. Hugs Melinda xo
My meltdown was on the phone to my breast care nurse who I never really spoke to...and it was over a rehab course I wanted to do but so much red tape, anyway my health fund wouldnt help and I lost it in a ball of tears on the phone...BECAUSE this was the one thing I felt could make a difference in me feeling better about me and to be denied that absolutely broke me!!! I recommend counseling I really do, I didnt do it this time but my first diagnosis 5yrs ago I did as at that time I lost my Mum suddenly then lost my marriage, had 2 children under 10 and then got Breast Cancer and honestly it helped more than I could say. Family and friends are well meaning and loving, but they don't get the depth of this journey or how impacting it is.
I also know in those depths and those moments when you are so low that you dont want any of it anymore, I always found through the tears that I actually learned to love myself that little bit more something I never really did. Doing the smallest thing for me that I feel nurtured not by anyone else but by me. Cup of tea in the sun, soft music, something that I feel peaceful, it can be anything. You are not alone in how you think, believe me. It is a long hard road..but please keep talking and sharing. Hugs Melinda xo