Forum Discussion
Hi Beppie. Your story is not an unusual one for any woman who has gone through breast cancer chemo and other therapies. Firstly, congratulations for sticking to Tamoxifen and Femara. Studies, including a brand new one out from the States, indicate completing drug treatment raises long term survival by at around 30%. I have included a link from BreastCancer.Org (American site) which you may find interesting to read. Actually this site is amazing - anything you want to know is all there.
http://www.breastcancer.org/research-news/not-taking-hormonal-tx-leads-to-more-recurrence
If you read through all the blogs here you we find we all have different and varying experiences in regard to our sex lives One thing that seems to stand out is the medical profession has not found any answers therefore not interested in talking about it. The only advice I can give you is keep talking to your Gyno and your medical team about this issue and research as much as you can for yourself and if you find anything new don't forget to share with the group.
There is one great hope on the horizone for those of us who can't use estrogen pessaries. It is called DHEA-S vaginal Gel developed and available in Americal and FDA approved deemed safe for women with Breast Cancer for use vaginally. It gives the same results as estrogen pessaries but the difference, apparently with DHEA-S Vaginal Gel, is it does not convert into estrogen into the blood stream therefore completely safe. It is available on prescription in America. I found it on several sites in America however, would not ship to Australia as it has not gone through our TGA approval process. I can't see that happening anytime soon as the medical profession here either do not know enough about it or do not think it important enough to research or fast track for us. Talk to your Gyno about it - make sure you let them know it is DHEA-S - print out the study and results and ask their opinion. You will see where I have blogged about it previously and it gives links.
Apart from that and the Mona Lisa Touch (which I have had) there is not anything you can do to ensure you are at least capable of having sex using lubricants. As far as Libido is concerned I don't know if there is any magical formular for that. Most of us in this group have lost our libido again no-one has answers.
The main issue with this group is having the ability to have sex using lubricants. Most of us suffer from vaginal atrophy which means sex is too painful with or without lubricants.
I wish I had better news for you. The medical profession should take better notice of this issue as it impacts our femininity, our sexual relationships and our ability to concentrate 100% on beating breast cancer, getting on with our long and happy lives. Good luck Beppi. Suexx