Forum Discussion
DCIS and surgery
I'm hoping someone here can help me!
I'm seeing a breast surgeon on the Gold Coast who suspects I have DCIS as I have a painful bleeding duct. I am having an MRI on Thursday as nothing showed in the mammogram (tissue too dense) or ultrasound.
The pain I am experiencing is on the outer lateral side of my breast, almost as deep down as my chest wall.
My breast surgeon wants to excise the duct regardless of the MRI findings, but only 4cm of duct from the nipple. I am worried that if it is DCIS that the surgery may do two things I am extremely concerned about.
1. It may not remove enough of the duct especially as my pain is so lateral (much further than 4cm from my nipple)! This may result in a negative biopsy of the tissue.
2. She may disturb any cancer that's there and introduce the cells into the healthy tissue of my breast.
I asked her if she can please remove the duct in its entirety but she said 4cm is usually enough.
What should I do?
I'm freaking out enough as it is without having to worry about a bungled surgery and diagnosis.
16 Replies
You are getting good pre-treatment, I requested an MRI and was made to feel like a hypocondriac, if you read Kerrianne Kennely's story you will see that her surgeon on the way to Theatre decided to do an MRI at the last minute and picked up another tumor that was not detected by mammogram or ultrasound.
All the best
Viv
- I am starting to feel better about all this. Thanks everyone.
- I am starting to feel better about all this. Thanks everyone.
- I am starting to feel better about all this. Thanks everyone.
- It's great that you seem to be getting things sorted well and clearly having your MRI on day 12 will give them a good chance to work out what is going on. I have been on chemo for 16 weeks and have 9 rounds to go then surgery and radiotherapy. My cancer is Invasive ductal carcinoma but the MRI was able to pick up some small DCIS which was not seen on any other imaging. The reason that I have had to undergo chemo is because my tumour was large and had already spread but yours may not be like this so hang in there and be guided by the medical team looking after you. I hope your results are encouraging and you only need minimal intervention. I know that it is the waiting that is often the hardest part but just try to stay busy and get on here for support if you need. Good luck. Pollyrose
- Hi Scorpiowoman Like you I had several different types of imaging including mammogram, tammography, ultrasound and now have MRI every 6 weeks as I'm having neoadjuvant chemo at the moment. My doctors have found that the MRI definitely is giving them the best information and infact has picked up some small DCIS that other imaging did not find ( I have IDC). If you are premenopausal I have been told that the MRI is most accurate during days 7 to 10 of your cycle as that is when the tissue is less dense and they can see things easier. Good luck with your tests. I hope you get happy results. Take care Pollyrose
- Hi Scorpiowoman Like you I had several different types of imaging including mammogram, tammography, ultrasound and now have MRI every 6 weeks as I'm having neoadjuvant chemo at the moment. My doctors have found that the MRI definitely is giving them the best information and infact has picked up some small DCIS that other imaging did not find ( I have IDC). If you are premenopausal I have been told that the MRI is most accurate during days 7 to 10 of your cycle as that is when the tissue is less dense and they can see things easier. Good luck with your tests. I hope you get happy results. Take care Pollyrose
- Looks like it's only slightly higher than a mammogram when used diagnostically, and slightly less in screening. Will look in to it, thanks.
- Looks like it's only slightly higher than a mammogram when used diagnostically, and slightly less in screening. Will look in to it, thanks.
