Forum Discussion
Hi Violet123 .... re the urgency - has your team given you a script for Gastrostop? You can get the peppermint chewable tabs (chew 2 after each event) that should help control it. My husband had the same as you with his chemo - swapping between constipation & the Trots. We ended up getting 'pull ups' for him to wear whilst on chemo, as added protection that reduced the 'urgency' - as I didn't want him to fall (whilst rushing to the loo!)
Yes, the further along with your chemo, it is fairly common to have worse side effects, as it is the accumulation of the chemo in your system that is making it worse xx 😪
If you are still feeling ill tomorrow - definitely contact your Onc (or the Onc Nurses) for advice - and if you get a temperature (above 37.5˚) go straight to Emergency.
Not everyone has bad side effects from the hormone blockers - so fingers & toes crossed that you are one of the lucky ones xx.
Many of us have noticed cognitive impairment (even without chemo) and even changes in eyesight.
Take care, be kind to yourself, and all the best - I hope you are feeling better soon xx
- Violet1231 month agoMember
Thank you so much for such a helpful reply. It had not occi=urred to me to get some pull ups but these would have been great and taken away some of the distress. I think that it is settling down a bit but but still, it is pretty awful.
I will call the oncology nurse practitioner tomorrow, and follow up. Thanks for your words that normalise the cognitive effects and issues with eyesight, it is all rather a lot. That said, I know that I am not as ill as some people have been.
It is reassuring to hear that the side effects from the hormone blockers are not always really bad. I may be lucky.
What a journey...thanks again for your kindness, encouragement and practical advice.
Kind Regards,
Anni