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The chemo has left me with 3 quite numb toes and from the first round I have experienced tingling and pins and needles in my feet which has progressively got worse, I had really bad feet pain after round 3 and could not drive or walk properly for days. I am supposed to have one more round of chemo and am reluctant to do it, I have talked over with the onco who says they won't push me to have it as I was in a grey area for the chemo anyhow, with no lymph node involvement but LVI was present and statistically only a 1percent advantage in having it. I am leaning towards not having it as the thought of permanent nerve damage in my feet and hands terrifies me. I have could stats sitting between 87-90 percent that the cancer will not return after my radiation treatment and would just like other people's thoughts....Onco said that 3 treatments would not have been in vain if I don't have the last round, however the stats she has are for people that have completed 4, she also mentioned that it is likely the side effects will have a cumulative effect for round 4, any advice or similar stories would be welcomed my head keeps changing its mind..to do or not to do??","kudosSumWeight":0,"postTime":"2019-05-11T21:17:22.000-07:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDE","node":{"__typename":"Tag","id":"tag:chemotherapy-side-effects","text":"chemotherapy-side-effects","time":"2025-03-25T05:02:16.577-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDI","node":{"__typename":"Tag","id":"tag:peripheral-neuropathy","text":"peripheral-neuropathy","time":"2025-03-25T05:02:27.944-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDM","node":{"__typename":"Tag","id":"tag:treatment-decisions","text":"treatment-decisions","time":"2025-03-25T05:02:15.993-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}}]},"timeToRead":2,"currentRevision":{"__ref":"Revision:revision:134026_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":211},"visibilityScope":"PUBLIC","canonicalUrl":null,"seoTitle":null,"seoDescription":null,"isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"archivalData":null,"customFields":[],"body":"Hi just after some input, I have finished 3 rounds of TC chemo, had reactions to all three at time of infusion, although the third one was handled better with increased steroids and antihistamine and a dose reduction but the side effects for the increased steroids was terrible for a number of days. The chemo has left me with 3 quite numb toes and from the first round I have experienced tingling and pins and needles in my feet which has progressively got worse, I had really bad feet pain after round 3 and could not drive or walk properly for days. I am supposed to have one more round of chemo and am reluctant to do it, I have talked over with the onco who says they won't push me to have it as I was in a grey area for the chemo anyhow, with no lymph node involvement but LVI was present and statistically only a 1percent advantage in having it. I am leaning towards not having it as the thought of permanent nerve damage in my feet and hands terrifies me. I have could stats sitting between 87-90 percent that the cancer will not return after my radiation treatment and would just like other people's thoughts....Onco said that 3 treatments would not have been in vain if I don't have the last round, however the stats she has are for people that have completed 4, she also mentioned that it is likely the side effects will have a cumulative effect for round 4, any advice or similar stories would be welcomed my head keeps changing its mind..to do or not to do??"},"Conversation:conversation:134026":{"__typename":"Conversation","id":"conversation:134026","solved":false,"topic":{"__ref":"ForumTopicMessage:message:134026"},"lastPostingActivityTime":"2019-05-13T23:21:39.000-07:00","lastPostTime":"2019-05-13T23:21:39.000-07:00","unreadReplyCount":10,"isSubscribed":false},"ModerationData:moderation_data:134026":{"__typename":"ModerationData","id":"moderation_data:134026","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:134026_1":{"__typename":"Revision","id":"revision:134026_1","lastEditTime":"2019-05-11T21:17:22.000-07:00"},"ForumReplyMessage:message:134029":{"__typename":"ForumReplyMessage","id":"message:134029","conversation":{"__ref":"Conversation:conversation:134026"},"author":{"__ref":"User:user:21275"},"revisionNum":1,"uid":134029,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:side-effects"},"subject":"Re: Chemo dilemma","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:134029"},"parent":{"__ref":"ForumTopicMessage:message:134026"},"body":"Aww.. @Red1, so sorry you have this dilemma. You are the only one to live with your decision and whatever happens to your body. It’s a sucky choice to choose between treatment now and possible long term problems. I’ve typed up many replies.. but in short, if it was me, you’ve done a great job with the treatment you’ve had. I wouldn’t risk more problems with your walking, driving, etc unless the treatment team said the next round was absolutely essential. I would be thinking I need to drive, walk, etc to participate in, enjoy, and look after my family. I was 42 when diagnosed and tried to balance treatment and potential side effects with quality of life. I want to participate as much as possible in what time I have. I don’t know when my end date is, or if cancer is all gone, or will come back, plus tomorrow I’ll be doing risky behaviour like driving and crossing the road... Got to keep on living the best life I can. Best wishes for your decision 💕💕💕","body@stringLength":"965","rawBody":"Aww.. @Red1, so sorry you have this dilemma. You are the only one to live with your decision and whatever happens to your body. It’s a sucky choice to choose between treatment now and possible long term problems. I’ve typed up many replies.. but in short, if it was me, you’ve done a great job with the treatment you’ve had. I wouldn’t risk more problems with your walking, driving, etc unless the treatment team said the next round was absolutely essential. I would be thinking I need to drive, walk, etc to participate in, enjoy, and look after my family. I was 42 when diagnosed and tried to balance treatment and potential side effects with quality of life. I want to participate as much as possible in what time I have. I don’t know when my end date is, or if cancer is all gone, or will come back, plus tomorrow I’ll be doing risky behaviour like driving and crossing the road... Got to keep on living the best life I can. Best wishes for your decision 💕💕💕","kudosSumWeight":2,"repliesCount":0,"postTime":"2019-05-12T02:43:11.000-07:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:134029_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"replies":{"__typename":"MessageConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"customFields":[]},"CachedAsset:theme:customTheme1-1743643394041":{"__typename":"CachedAsset","id":"theme:customTheme1-1743643394041","value":{"id":"customTheme1","animation":{"fast":"150ms","normal":"250ms","slow":"500ms","slowest":"750ms","function":"cubic-bezier(0.07, 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