Hello @sandramj
Goodness, what a time you have had and are having.
Being in the private system should have made no difference whatsoever. I did see a breast care nurse once when in the private hospital having the mastectomy but she worked in the hospital only. I then saw a McGrath nurse as I self-referred.
My breast surgeon and oncologist shared the 3 monthly checkups at first and now I only see the surgeon and that will drop to annually.
I was net-surfing one day and found some information on cording so when it happened to me I knew to get straight onto it. Unfortunately I still get mild lymphoedema under the arm, around my back and into the chest area but I deal with that occasionally by visiting a remedial masseur who uses the Chinese cups to move the fluid which is stubborn.
I guess physios (like the one who ''cracked'' my cording) give us all the correct exercises but fail to say these are ongoing for life, nor do they warn us of possible issues which may arise.
Keep up the good work and thank you for your post which may alert newbies to possible complications.
