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ellen
14 years agoMember
Arimidex
I have been reading through the blogs about Arimidex and found them very interesting. I have been on Arimidex for 6 months and up until 4 weeks ago, "side affects free" - until now that is.
I now have what appears to be the usual aches and pains in the legs and numbness in the hands, tiredness and headaches, so I guess I didn't escape at all I am just like all my other Arimidex sisters.
I will have to mention this to my oc next visit, but as so many others have said before at least I am here reading the experiences of others. It does help.
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244 Replies
Thanks Kathleen and Finita, I am feeling a lot better about it now. It was just so frustrating. One of my Neighbours made me a beautiful, Cancer Angel bear and another put mulch around my rose garden. I had another Friend take me to the markets so I am very fortunate to have Friends like that and my Friends on here who understand what I am going through and support me through it. I am taking it much easier and resting during the day which I realise is necessary for my recovery. There's always another day to catch up and my health is more important. I am now looking forward to my 60th. Birthday at the end of the Month and by then I should be on the mend. Love Ruth xxx
Sign in to react to this post- finitaMember
Darling Ruth, I am sorry about your setback and yes it would be very frustrating, and yes, you must learn to be patient as that is very important for you and your healing process. I am so happy that you are so lucky to have so many wonderful friends that are helping you . It is very good that you have learnt not to be so independant and accept all the help you can get, because it will be for you own benefit, and you deserve as much of TLC as you can get. Sadly when I was caring for my sister , the biggest problem was her not letting go of her independence and that made my time with her very hard and difficult , as I also had to look after my two nephews and her partner. Do continue to take good care and plenty of rest ...must look after No 1 that being you because you are precious and there is only one of you !!
Lots of hugs and love ,
finita xxxxxxxxxxxxxxx
Sign in to react to this post - KathleenTMemberDear Ruth That's awful! Sorry you're having that setback. These are the times one gets a bit "over it all", when just "another little thing" pops up to add to the story. You are showing amazing strength of character and humour through your posts-keep it up! Big hugs from me. Keep venting too. This is such a great forum for it! Love & hugs Kathleen xxxxxoooooSign in to react to this post
Thanks Bella. What you said is very true. We know whart we are fighting. I have had another setback with my op. The Doctor drained over 2ooml. out of my wound Today. It is feling a bit better but is filling up again. It is just so frustrating when I just want to get on with life . I am learning the word "patience" and having a rest every day. I am very lucky to have some really good Friends around me who are willing to help me to get out of the house and go shopping and to the Hospital. I have learnt not to be so independant and except their welcome help. This has been a real learning curve as I realise that I can't do everything myself and there are peole ou there who care and are willing to help.
Sign in to react to this post- Bella314Member
That's very true. Knowing is half the battle; I figure that we have the mutation anyway, so we're better off knowing about it than not; doctors will take notice of a "label" or a name of something; but tend to scoff if you go in there and just say "I'm convinced that ....". Glad to hear your daughter is feeling a bit better today; and don't go down the guilt path because you carried the gene; think about all the good genes you gave her as well! :) xxx
Sign in to react to this post Thanks Bella. My Daughter was feeling a lot better about it Today. It is a shock when you find out you have a 50/50 chance and hope that you don't have it. I felt bad because I carried it on to her but I wasn't to know at the time. Anyway, there is a lot more help nowadays and it helps to know so that you can do something about it. xxx
Sign in to react to this post- Bella314Member
Oh, your family is certainly going through a tough time. It will certainly take some time for your daughter (and you) to come to terms with her carrying the Lynch syndrome as well as BRCA2, I feel for you both. If it's of any help, I am sending positive thoughts and big hugs your way; I can't do much else I'm sorry. Bella xxx
Sign in to react to this post So glad that I could help, Bella. I saw the Breast Nure Yesterday and she asked me how I felt now that I'd had the masectomy and I told that I felt good about it because I knew the time was right. It is very important to be accepting. I just found out Today that my Daughter also carries the Lynch Syndrome and was very upset about it as she also carries the braca 2 gene. This is one time when I wish she carried her Father's genes. She now faces the decision of having a hyterectomy as both genes affect the reproductive system. Love, Ruth xxx
Sign in to react to this post- Bella314Member
Thank you Ruth, your comments have helped me a great deal, particularly about the time taken to make your decision. I have niggling doubts at present, so I guess that should tell me the time is not right. and thank you, yes, I had a lovely time in Sydney! Love, Bella x
Sign in to react to this post Hi Pollyanne, It was a big relief when I had the drains removed after two weeks. I have an infection at present but otherwise I am fine. I am going walking and just enjoying life. I feel the same as you. I am glad that I have survived and turning 60 next Month. The experience has taught me to appreciate what I have and to be greatful for every day. Love, Ruth xx
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