Arimidex

I get the shoulder pain too on Aromasin. On Arimidex I also got pain in a lot of other areas. There are blogs stating pain in the feet when waking or sitting for too long on Arimidex and I got this too. Feeling a bit crazy is normal when everyone else has it, not so crazy maybe!

I was really interested to hear of your hand, fingers shaking. Mine do that too and I wondered why that started but I realise now that it started after I went onto Arimidex. I suffered too much pain and have changed to Aromasin. I have pretty bad pain in my neck and both shoulders, on the outside of one in particular. I wish I was brave enough to stay off them, I really don't feel happy on these drugs. You don't like to complain when there are others a lot worse off but the pain does make you miserable.

hi Kathleen and Nola, and all you other ladies of course, Thanks for your comments, i will check with my local rural chemist next time i get it, as my husband collected it for me, and they still charge the same price???

I hope that the fish oil is helping with the pain.  I am limited to Panadol so I think the fish oil does help.  Although last week I had a urine infection (which I often get) and with the pain in my arm I didn't get much sleep.  I was in agony.  Now I have a viral infection.  I guess it's from our weakened immune system.  Regards, Ruth

Kathy,

I know where you are coming from.  I get terrible pains in my hands, arms and shoulders and it is worse at night.  Last week I couldn't move the arm I had the surgery on and as I was out of Town, I saw another Doctor who tried to prescribe me brufen which I cannot take because I am asthmatic and allergic to aspirin.  He insisted I take it and the Chemist was horrified.  I am limited to Panadol which doesn't do much.  Talking with other Women taking Arimidex, it seems ro be a common problem  Regards, Ruth.

Hi ladies, just interested to know if anyone has been given Arianna anastrozole Tablets by their chemist to replace arimidex, my husband picked up my last script from our rural chemist and he was given this it has a sticker on it saying this medicine replaces arimidex???

Hi Nola

As I read your entry I thought to myself: "oh yes.....always helpful!!!" meaning the professor who "hadn't heard of" Arimidex or Tamoxifen.  What a load of....whatsits! Dontcha just love 'em! Not!  I can relate to your frustration.  It's not good when such supposedly high up medical professionals don't know.

I'm hoping my hand problem isn't carpal tunnel - I plan to have "the test" in the near future - going to a neurologist for a vertigo problem. My hand pain occurs at night, after I've been asleep for a while. The trigger fingers and, curiously, the little finger are just agony. Plus I lose feeling in them, whether I have been lying on them or not. Also at night, leading up to bedtime and through the night, I get pain at the top of my arms, on the outside, leading to the shoulder, to the point where, if I've been lying on my back, it is very difficult to lift my arms off the mattress.  Also pain in the arches of each foot.

The hot flushes have calmed down a lot, though perhaps I shouldn't speak too soon, as I don't like the hot weather at all, & that was well before I contracted breast cancer.

Through all of this, I would rather have the side effects than have the metatastes in the bones of my back grow or spread. I tried another - I think it was Femera - and that was even worse - after just 2 tablets I had excruciating cramps in my legs. I am trying to keep my weight down, but it is a struggle. Just would like my energy levels to return, so that I actually feel like exercising!

I would love to hear from anyone who is experiencing the same side effects. They are odd, and I have to say I also don't get a lot of acknowledgement, much less strategies to help. It's not good to be on heavy painkillers, and I'm about to go back to fish oil/krill oil to see if that helps.

Take care Nola! x

Hi Linda, By atrophy, I mean vaginal dryness and shrinking of the vagina.  I know that Replens is an oestrogen-free treatment and I get relief  and that I have to go the Chemist and get some more.  Side affects from Arimidex can be hot flushes and vaginal dryness, joint pain and stiffness, upset stomach, lack of energy difficulty in getting to sleep, thinning of hair and headaches. They can also give you mood changes, decline in libido and forgetfullness  There is the Jean Hailes Foundation www.jeanhailes.org.au phone 1800 151 441 to find more information on menoplausal symptoms.  I don't know if you have enrolled in Verve, the Arimidex patient support programme or not.  If not, the details are in your Arimidex medication box.  It is a free support line where you can talk to trained Nurses in confidence  and they send you out free newsletters.  I have found it quite helpful and they send you out a book "Learning more about breast cancer @ Arimidex.  I hope this helps you and know that you are not alone.:)