Forum Discussion

ellen's avatar
ellen
Member
14 years ago

Arimidex

I have been reading through the blogs about Arimidex and found them very interesting. I have been on Arimidex for 6 months and up until 4 weeks ago, "side affects free" - until now that is.

I now have what appears to be the usual aches and pains in the legs and numbness in the hands, tiredness and headaches, so I guess I didn't escape at all I am just like all my other Arimidex sisters.

I will have to mention this to my oc next visit, but as so many others have said before at least I am here reading the experiences of others. It does help.

 

pain

244 Replies

Show More
  • Linda_7's avatar
    Linda_7
    Member
    14 years ago

    Hi girls, I too, want to discuss the arimidex issue. I have now been on it for 5 yrs, after diagnosis of invasive lobular carcinoma in 2005.  The concensus out there is to keep you on it for 5 yrs.

    Ok , side effects not too bad... but am tired of being overweight and moody at times.  Joints stiff at times. Had hot flashes and at times  fine trembling in my fingers.

    True, there are certainly loads of side effects... is it worth staying on??

     

  • Linda_7's avatar
    Linda_7
    Member
    14 years ago

    Hi girls, I too, want to discuss the arimidex issue. I have now been on it for 5 yrs, after diagnosis of invasive lobular carcinoma in 2005.  The concensus out there is to keep you on it for 5 yrs.

    Ok , side effects not too bad... but am tired of being overweight and moody at times.  Joints stiff at times. Had hot flashes and at times  fine trembling in my fingers.

    True, there are certainly loads of side effects... is it worth staying on??

     

  • Linda_7's avatar
    Linda_7
    Member
    14 years ago

    Hi girls, I too, want to discuss the arimidex issue. I have now been on it for 5 yrs, after diagnosis of invasive lobular carcinoma in 2005.  The concensus out there is to keep you on it for 5 yrs.

    Ok , side effects not too bad... but am tired of being overweight and moody at times.  Joints stiff at times. Had hot flashes and at times  fine trembling in my fingers.

    True, there are certainly loads of side effects... is it worth staying on??

     

  • shortlionruth's avatar
    shortlionruth
    Member
    14 years ago

    Hi!  I have been on Arimidex for 7 years.  The Oncologist said that as long as the side effects were not bothering me that I could continue taking it.  I have braca2 mutation and I feel safer to take this tablet.  I was on Tamoxifin for 3 years when the Oncologist suggested that I take Arimidex because it was found to be better for Families carrying the gene mutation.  I had stage 2 Breast Cancer 12 years ago.  I had a lumpectomy and a wide excision and lymph gland removal.  Three tumuors were found,  2 were ductual carcinoma in sutu while the other one was an invasive ductal carcinoma.  I also had 6 Months of Chemo and 6 weeks of radium.  I do get side effects from the Arimidex however I would rather take it and have a better chance of survival.

  • ellen's avatar
    ellen
    Member
    14 years ago

    Thanks for your reply Moira, (cute baby) I read through your previous blogs. As I am new to this blog business.  Did you have more side effects when you first started taking Arimidex? I am not looking forward to the first mamogram (squashing fresh scar tissue),  but I should just be happy to be having them. I will mention to doc about side effects and as you say they may reduce with time.  Its funny they come and go, one day I'm fine then the next not so fine. Guess that's part and parcel of it, one thing I realise, everyone is different and we all have different experiences with the side effects.