whoops, wrong spot.
My bad. Nothing to see here.
Forum Discussion
Oh my gosh @Kahm, I am so sorry you are going thru such a hard time right now - you're really doing it tough. xx. As @iserbrown says - this is the place to rant & rave, cos we've all been there and we understand. We've got your back.
That is terrific that you have a breast care nurse & you'll be seeing a psych tomorrow - who should be able to talk you thru your emotions & give you strategies to help lessen the stress that you are going thru. When you see the psych, ask to be referred to the Hospital Social Worker, too - I had a real meltdown when I was going thru Rads as I'd just received a $500 bill for my pathology - I thought WTF? Surely this should all be covered by Medicare or my private health fund - but no. I had to pay it - so the Social Worker arranged for a philanthropic fundraising group who support cancer patients, to take care of that bill for me. It was just wonderful to have 'that' problem taken care of, in the middle of my rads. Just this year, our local hospital social worker has helped us with a couple of bills (with a different philanthropic group) who took care of our Rates Bill as my husband is Stage 4 .... it all helps! Try not to be afraid to put your hand up, to say that you need help xx
If you aren't happy with how your Onc is explaining things to you (or not!) - feel free to ask to see another Onc. I did. Quite a few of us have. My first Onc was just not interested in me & my treatment .... as if I wasn't 'sick enough' ... and you don't have to put up with that sort of behaviour xx. My current Onc is wonderful - and she also treats my husband too. Some have even swapped surgeons, too ....
Even those of us who have a relatively 'easy time of it' will drop the bundle now & then, sometimes for no 'real' reason, other than that we are just totally overwhelmed with being on that treadmill of diagnosis, tests & scans, surgery & treatment - specially in the early months .... and it just becomes overwhelming & unsustainable. xx
Be kind to yourself, take lots of deep breaths - you've been thru the mill & will need some time to recover from this, as well as your surgery & Onc disappointments xx
Do you have close family or friends who you can get together with, for outings (covid willing ...) and company? Can you get back to your hobbies, as you are able, after your surgery?
What area/town do you live in? We may have members there who you can connect with online (or even meet up with for a coffee, covid willing) ... They may also be able to advise you of what services may be available to you - often at no cost.
take care, you are not alone facing this .... lean on us xx.
That is terrific that you have a breast care nurse & you'll be seeing a psych tomorrow - who should be able to talk you thru your emotions & give you strategies to help lessen the stress that you are going thru. When you see the psych, ask to be referred to the Hospital Social Worker, too - I had a real meltdown when I was going thru Rads as I'd just received a $500 bill for my pathology - I thought WTF? Surely this should all be covered by Medicare or my private health fund - but no. I had to pay it - so the Social Worker arranged for a philanthropic fundraising group who support cancer patients, to take care of that bill for me. It was just wonderful to have 'that' problem taken care of, in the middle of my rads. Just this year, our local hospital social worker has helped us with a couple of bills (with a different philanthropic group) who took care of our Rates Bill as my husband is Stage 4 .... it all helps! Try not to be afraid to put your hand up, to say that you need help xx
If you aren't happy with how your Onc is explaining things to you (or not!) - feel free to ask to see another Onc. I did. Quite a few of us have. My first Onc was just not interested in me & my treatment .... as if I wasn't 'sick enough' ... and you don't have to put up with that sort of behaviour xx. My current Onc is wonderful - and she also treats my husband too. Some have even swapped surgeons, too ....
Even those of us who have a relatively 'easy time of it' will drop the bundle now & then, sometimes for no 'real' reason, other than that we are just totally overwhelmed with being on that treadmill of diagnosis, tests & scans, surgery & treatment - specially in the early months .... and it just becomes overwhelming & unsustainable. xx
Be kind to yourself, take lots of deep breaths - you've been thru the mill & will need some time to recover from this, as well as your surgery & Onc disappointments xx
Do you have close family or friends who you can get together with, for outings (covid willing ...) and company? Can you get back to your hobbies, as you are able, after your surgery?
What area/town do you live in? We may have members there who you can connect with online (or even meet up with for a coffee, covid willing) ... They may also be able to advise you of what services may be available to you - often at no cost.
take care, you are not alone facing this .... lean on us xx.