Forum Discussion
arpie
2 years agoMember
Sorry to see you join our select little group, @odette. That is really bad luck, having the recurrence from 10 years ago :( xx
All the best with your treatment plans odette ..... we have members who are 10+ years into their Stage 4/Mets journey ..... A girlfriend in Qld had her Mets located in her hip - she had the hip replacement surgery & is pretty well back doing whatever she likes now - traveling the countryside in her caravan, making & selling her handmade Sterling Silver jewellery ..... She had radiation but not the chemo - and from memory is on Letrozole. She makes all sorts of art & craft stuff and loves going hunting for opal (anywhere) or gems up in Northern Qld.
I wonder if any of the newer Immunotherapy drugs may be thrown in the ring for your treatment? Some with Stage 4 have even been trialled on Keytruda (immunotherapy usually used for Long Cancer & Melanoma - but having a good effect on some forms of BC as well!). It could be worth mentioning to your Onc.
Try & keep as busy as you are able whilst you are waiting for your treatment/surgery ..... maybe cook up & freeze some meals in readiness, so you have stuff when you get home xx.
You may like to join the Young Women's group - with your kids ..... various organisations (like Canteen and Red Kite and Camp Quality) where they give kids a chance to be kids & have fun with other kids who's parent may have cancer. Your hospital Social Worker should be able to point you to local organisations who may be able to help too.
take care, take one day at a time ... try not to get too far ahead of yourself re the treatment & side effects - all going well, you won't have any xx
All the best with your treatment plans odette ..... we have members who are 10+ years into their Stage 4/Mets journey ..... A girlfriend in Qld had her Mets located in her hip - she had the hip replacement surgery & is pretty well back doing whatever she likes now - traveling the countryside in her caravan, making & selling her handmade Sterling Silver jewellery ..... She had radiation but not the chemo - and from memory is on Letrozole. She makes all sorts of art & craft stuff and loves going hunting for opal (anywhere) or gems up in Northern Qld.
I wonder if any of the newer Immunotherapy drugs may be thrown in the ring for your treatment? Some with Stage 4 have even been trialled on Keytruda (immunotherapy usually used for Long Cancer & Melanoma - but having a good effect on some forms of BC as well!). It could be worth mentioning to your Onc.
Try & keep as busy as you are able whilst you are waiting for your treatment/surgery ..... maybe cook up & freeze some meals in readiness, so you have stuff when you get home xx.
You may like to join the Young Women's group - with your kids ..... various organisations (like Canteen and Red Kite and Camp Quality) where they give kids a chance to be kids & have fun with other kids who's parent may have cancer. Your hospital Social Worker should be able to point you to local organisations who may be able to help too.
take care, take one day at a time ... try not to get too far ahead of yourself re the treatment & side effects - all going well, you won't have any xx