Forum Discussion
New diagnosis metastatic breast cancer
Hi, I'm all very new to this being diagnosed only 7 wks ago with stage 4 metastatic breast cancer (triple positive) which has spread to my bones. I am 51 with 2 children. I had only had my first ma...
So sorry to see you joining our select little group, mel51 xx That initial diagnosis shock really mucks with your brain - and to be diagnosed with Mets straight up, is a double whammy xx As Cath62 has said - there are so many more treatment options available now with the newer ones like Immunotherapy changing lives ..... it is almost being treated as a 'chronic' illness now. I was chatting with a good buddy last week, diagnosed with mets 6 years ago - and she said that her Onc had told her that, further down the track, she will most likely die 'with it' - but not 'FROM IT'! We have members here who are 10+ years into a Mets diagnosis & living full lives.
Definitely join the private Mets Group where you can chat about other people's treatments & diagnoses ... in total privacy.
I hope your kids are going OK and that you have lots of support around you too xx. You might like to listen to Charlotte Tottman's podcasts on her own Breast Cancer story ... she is a specialist BC Counsellor and her podcasts are very easy to listen to and full of good tips on coping and moving ahead xx
http://www.drcharlottetottman.com.au/my-podcast.html
Feel free to jump onto this thread that will fill you in on a lot of info on the forum - and show some other areas that you might also like to check out xx
A big welcome to all New Online Network Members ..... | Online Network
Take care & wishing you all the best
Hello! I am also newly diagnosed and in the.. special sub club. I’ve not told my family or friends. How can I join the private group please? I’m really pretty overwhelmed…
Hi SoloDogMum
I am so sorry to hear that you are going through this alone - having decided not to tell friends/ family. As this post is now 2 months old its possible that this has changed and you have let a select few know? When I told my 4 sons I told them I was not sure when to tell them. One of the boys, the youngest said " straight away" and the boys have been there for me and their partners ever since! Just to let you know that it might be helpful to let loved ones know what is happening.
Hi. No change. I've still not told anyone. I am not coping well now at all and do not want to see anyone or speak to anyone. I've been waiting for the psych for ages and it's too long now. I gained a huge amount of weight in chemo and my hair is gone. I do not feel ok at alll and don't even know what to do at this stage. I can't find the private group or how to get. Access either. My brain is so slow now from chemo.
Hi SoloDogMum
You poor girl. I'm here. Keep posting and I will reply. I did something through the cancer council which might help in the interim. A lovely lady who is a cancer coach. YOu are given 3 free sessions with her. She is just an ear to hear what you are experiencing and its peer support - she has had breast cancer herself- so gets it. here are her details: [email protected]
Did you know that the cancer council also offers free counselling which might also work? Ive had a weight gain too and have no hair!! Did you know that the service ENABLEnsw.gov offers a service for a free wig? You must get a quote first and fill in the online forms etc and the service Milk & Honey wigs can give you a quote for a wig: So this could help? here is the email for ENABLE: [email protected] and here is Milk & Honey's email: [email protected]
Chemo is no fun at all. But some of these services could help while waiting for psych services to kick in
thinking of you
Sue
Call the helpline tomorrow ( it is not manned on the weekend) and they can help you join.
Take care.
