Forum Discussion
New diagnosis metastatic breast cancer
Hi, I'm all very new to this being diagnosed only 7 wks ago with stage 4 metastatic breast cancer (triple positive) which has spread to my bones. I am 51 with 2 children. I had only had my first ma...
So sorry to see you joining our select little group, mel51 xx That initial diagnosis shock really mucks with your brain - and to be diagnosed with Mets straight up, is a double whammy xx As Cath62 has said - there are so many more treatment options available now with the newer ones like Immunotherapy changing lives ..... it is almost being treated as a 'chronic' illness now. I was chatting with a good buddy last week, diagnosed with mets 6 years ago - and she said that her Onc had told her that, further down the track, she will most likely die 'with it' - but not 'FROM IT'! We have members here who are 10+ years into a Mets diagnosis & living full lives.
Definitely join the private Mets Group where you can chat about other people's treatments & diagnoses ... in total privacy.
I hope your kids are going OK and that you have lots of support around you too xx. You might like to listen to Charlotte Tottman's podcasts on her own Breast Cancer story ... she is a specialist BC Counsellor and her podcasts are very easy to listen to and full of good tips on coping and moving ahead xx
http://www.drcharlottetottman.com.au/my-podcast.html
Feel free to jump onto this thread that will fill you in on a lot of info on the forum - and show some other areas that you might also like to check out xx
A big welcome to all New Online Network Members ..... | Online Network
Take care & wishing you all the best
Hello! I am also newly diagnosed and in the.. special sub club. I’ve not told my family or friends. How can I join the private group please? I’m really pretty overwhelmed…
Hi SoloDogMum
I am so sorry to hear that you are going through this alone - having decided not to tell friends/ family. As this post is now 2 months old its possible that this has changed and you have let a select few know? When I told my 4 sons I told them I was not sure when to tell them. One of the boys, the youngest said " straight away" and the boys have been there for me and their partners ever since! Just to let you know that it might be helpful to let loved ones know what is happening.
Hi. No change. I've still not told anyone. I am not coping well now at all and do not want to see anyone or speak to anyone. I've been waiting for the psych for ages and it's too long now. I gained a huge amount of weight in chemo and my hair is gone. I do not feel ok at alll and don't even know what to do at this stage. I can't find the private group or how to get. Access either. My brain is so slow now from chemo.
Call the helpline tomorrow ( it is not manned on the weekend) and they can help you join.
Take care.
Hi arpie,
Thanks for your reply. Yes, my breast care nurse actually said the same thing to me that they look at it like a chronic health condition now, so that's reassuring. And hearing about members that are 10+ yrs down the track is also very reassuring.
I feel very lucky that I have heaps of support from family & friends, but as previously said, as supportive as they are, they can never understand what you are going through. Thanks for the podcast advice, I have been listening & find it really helpful xx
