Mets now in my brain
Hi Everyone my latest scan has been a shock and made me sad. I was on enhurtu and hoping for big success. However after 4 round 2 of my liver mets increased and now i have mets in the right side of ...
Forum Discussion
So 10 days after my oncologist phoned me to tell my husband and I that I had brain mets, today she phoned me to say after my brain MRI that I don't have brain mets. What- joy but why did she tell me i did. Well the person who reported my ct said I did. My oncologist wrote to my gp, dermatologist and radium oncologist to advise brain mets. Don't get me wrong but they put me and my family and close friends through hell for 10 days. She has even advised me to keep my appointment with the radium oncologist for extra assurance. Thay appointment is tomorrow morning and I will see the scans myself and be asking many questions about all this. I have cried, screamed, felt depressed and so have my family. I am happy but confused so I will talk more to my drs. Sorry you all had to read my post too. I guess they get things wrong sometimes and this was a good story in the end.
HiCath62
I am so happy to hear your brain MRI came back clear - relief and joy after a traumatic time. A big virtual hug and a salute to your resilience.
I hope your oncologist is able to confirm that these sorts of test results can be validated first in future - it erodes confidence.
But nonetheless I am really happy for you and your family :-DOh Cath
Thank goodness it was an error! Your Oncologist needs to know how you feel, relieved, angry....such diagnosis should, in my view, been double checked! Yes, unintentional mistakes happen....thank goodness its in your favour! Hope the comfort of the forum ladies did and will continue to help you through this damned roller-coaster
Take care
Sending a virtual 🫂
OMG - that is fantastic news, Cath62 xxxx. I am so happy for you xx (tho so upset you've been put thru this hell, unnecessarily!)
I know you'll be doing your HAPPY DANCE for a VERY LONG TIME (after screaming & shouting at the CT 'reporter' ...... surely these sort of 'life changing' findings should be double checked by a senior 'reporter' before turning a person's life upside down with a phone call!!)As you say, the ripples extended to your family, your friends, your buddies/friends here ..... I bet your Onc will double check any reports from that particular CT reader from now on - and NOT take them as being verbatim xxx
I hope you can celebrate with a small wine tonight (even if watered down 50%, it will still taste GOOD - and DO you good too! xxxx)My love to you and hubby & BIG hugs xx
