Cath62
1 year agoMember
Mets now in my brain
Hi Everyone my latest scan has been a shock and made me sad. I was on enhurtu and hoping for big success. However after 4 round 2 of my liver mets increased and now i have mets in the right side of ...
So I have a brain mri this Friday and see the radium oncologist Tuesday for results and next steps. I think that based on my regular oncologist discussion I am having 1 more chemo of enhurtu on 9th September and then a scan to see if i stay on that or more to another chemo drugs. The radium will need mapping etc before I get zapped and I am not sure if chemo will stop while that do this. I think my oncologist runs both treatments parallel.
Unfortunately the cancer in me is Luminal B which faster growing and a very poor prognosis.
Breast cancer of course has all the different subtypes of her2 status hormone positive or negative etc but people need to be aware of the Luminal status which the ki-67 factor is part of.
My early bc had a very high ki-67 factor and hence needing chemo when my early bc was diagnosed. I hadn't realised at the time that it is also important to understand ones ki-67 factor and their Luminal type. Luminal A is very slow growing and treatment is more effective for that but Luminal B is the most aggressive and has a poor prognosis.
I don't want others to be frightened by this but again information about our disease is important to help us manage it and ourselves and balancing our expectations of treatment.
My goal is quality of life and extending my time while now making sure I am prepared for next steps.
Cath62 thank you for sharing this information about your Luminal B status. I first heard about my “ ki-67” number when additional chemo was recommended after my lumpectomy, based on my result status after my lumpectomy ( the pathology in the latent cancer cells had a low ki-67). It’s very generous of you to raise awareness about it, when you must have so much going on. I don’t think the Luminal type was mentioned but I will ask my oncologist next month at my check up. Thank you for your support to all of us and raising awareness, sending you lots of positive thoughts and hugs.