Forum Discussion
TabooGal
8 years agoMember
Here Goes
Hello. My name is Jenny and I live on the NSW/Vic Border. I have gone to post in here a couple of times but backed out. Denial maybe?
On Wednesday I was officially given the diagnosis of BC. I have had a large lump for around a year but I have 26JJ sized breasts and the lump is down along where the bra wire sits. I put it down to thickening because of the bra wire. I recently started Lite N Easy and after loosing around 10kg I noticed that the lump was much larger than I thought. It has its own postcode ;p Its 5cm x 3cm x 2cm.
So I did the mammo and ultrasound and knew when I called for results, that the urgency by my GP to get me in to see her, that something was very wrong. That day I had bloods, CT scan and was booked in for biopsy. All along I was doing as much research as possible. Armed with knowledge I have always found it easier to deal with things. Must be part of the anxiety I have day in and out.
I met my surgeon on Wednesday who gave me the diagnosis. I was alone at the appointment and was in shock, none the less. I guess I was hoping it was just a mass that they just wanted to remove for safety sake. I do remember asking him what type of Cancer and I vaguely remember him saying Metastatic and that its very common. I am booked in for a lumpectomy and node removal on the 22nd. (Tuesday Week). I am then too do 5 weeks radiation.
I've got all of that in my head and ready to deal with. But now I am reading all of the paraphernalia and Metastatic means I have it in other places in my body? Do they know where? Does this mean I will probably have to do chemo after radiation?
I know I am overthinking all of this and should take it one day at a time. I work 3 days a week and also on partial DSP. Being at work keeps my mind off things. I am planning on taking vacation leave for the rest of the week after my lumpectomy. I am so grateful that my oldest of 2 (daughter) is able to travel up from Melbourne to bring me home from the surgery and stay with me for a couple of days.
Another questions. I had been using implannon rod to control my periods, over the years. The last one was put in around 2011 and is still in my arm somewhere. As I have very thick arms I cant feel it and haven't bothered about it. I believe that it has run out of the hormones anyway after all of this time. Is this something I should tell my surgeon about?
I have so many questions. When will I start radiation? Will someone contact me or do I contact them?
I met my Breast Care Nurse but she was heading on vacation to France the next day. I have the number of another one and I will phone her and make contact with her this week.
It's like my whole life is about the Cancer now. I am being strong in front of everyone else but these times at home alone I am terrified.
Sorry if this is all over the shop but that is how my head works. I have been treated and continue to be treated for Depression an Anxiety for close to 20 years and have only recently found a good balance. The Lite N Easy journey was me actually caring about myself. Some days I shake so much it looks like I am having a min seizure.
Usually I am upbeat and cheeky and able to find the lighter sign of things. But tonight I am low.
Any insights would be wonderful.
Sign in to react to this post
365 Replies
- kmakmMemberDriving tomorrow for the first time in over four weeks. My Zonta cushion (small floral pattern) will be with me. Probably over my abdomen.Sign in to react to this post
- Kiwi_AngelMemberMy breastcare nurse said to me u are ready to drive when u think I can handle it if u had to stop suddenly and the seatbelt dug into u @TabooGal.Sign in to react to this post
- TabooGalMember@"Kiwi Angel" I'll definately take it with me for the car. I haven't driven yet but with my daughter going home I will have to brave it. *big hugs*Sign in to react to this post
- Kiwi_AngelMember@TabooGal that’s the same as mine except mine was pink - it was a godsend for me too after surgery. Slept with it over my shoulder/under my armpit and when I started driving again wore it the same way but out it in between the seatbelt and my mastectomy area. The armpit pain is definately the worst. XoxoxSign in to react to this post
- TabooGalMember@arpie talking about the pillow, my Breast Care Nurse popped in whilst I was waiting for surgery on Tuesday with a goodies bag put together by local BC support group with funding from Rotary. Lo and behold this pillow was with it. It has been my saving grace when sleeping. I hook it over my shoulder so it moves with me ( which isn't much with the endone) its soft and satin and had to have been designed by a pink warrior as it's perfect. 3 days since surgery. Boob is black above dressing and wound under armpit hurts more than boob. Hope you are doing well. XxxSign in to react to this post
- Kiwi_AngelMember@TabooGal - definately get as much rest as you need too. I have learnt to listen to my body through all this and give it what it wants. xoxoSign in to react to this post
- arpieMember@TabooGal
So glad you are feeling a bit better now - tho that ache/pain under the arm can take a while to go away - and my underarm is still numb now, over 4 months later!
That is wonderful that your kids have been such a great support for you.
Keep the pain meds up for a couple more days at least, even more - take them religiously every 4-6hrs ..... don't wait to let the pain 'kick in' or it takes much longer to control again! It is better to keep the meds 'level' rather than having 'highs & lows'. Maybe take the endone just at night for a while - as it will give you a deeper pain control & also help you sleep. It shouldn't clog you up if just taking the one a day.
The anaesthetic will take a few days to get out of your system - so snooze as much as you want - it is good for you too.
I had the odd really sharp pain in behind my armpit - a real stabbing pain - short & sharp - which is also quite normal. It didn't happen often, but took my breath away when it happened!
Don't forget the small pillow to support your arm - particularly once you are able to sleep on your side again .... it keeps your arm level with your body - and is much more comfy & less painful.
All the best - thinking of you xxx
@annsan
WOW! I can see a lot of people contacting you now re beating the form filling system!! LOL I still haven't lodged my IPTASS forms from Jan-Few yet! I must do it soon!Sign in to react to this post - TabooGalMember@"Kiwi Angel" I'll give nurofen a go too. I never know when to use what. Might head out later and grab a couple of boxes. My daughter heads back to Melb today. But I have a work friend dropping in to visit this arvo. Might get her to grab a couple of boxes on the way over. Hope you have a good day. Going to take advantage of the dog next door not barking to get some more zzzz'sSign in to react to this post
- Kiwi_AngelMember@TabooGal you definately do not want Thelma and Louise bouncing around at all. Can u take nurofen. Just remember with the endone it can block u up abit but definitely don’t suffer if I don’t have to. Big hugs xoxoSign in to react to this post
- TabooGalMember@"Kiwi Angel" it does sound sore. I just took some panadol to take the edge off. Trying not to rely on endone too much. I don't know why. As my daughter keeps saying. "Mum, you don't have to be in pain". Having 26jj boobs I don't think I will be doing an Irish jig anytime soon but these new bras have Thelma and Louise snug as a bug.Sign in to react to this post