Forum Discussion
TabooGal
8 years agoMember
Here Goes
Hello. My name is Jenny and I live on the NSW/Vic Border. I have gone to post in here a couple of times but backed out. Denial maybe?
On Wednesday I was officially given the diagnosis of BC. I have had a large lump for around a year but I have 26JJ sized breasts and the lump is down along where the bra wire sits. I put it down to thickening because of the bra wire. I recently started Lite N Easy and after loosing around 10kg I noticed that the lump was much larger than I thought. It has its own postcode ;p Its 5cm x 3cm x 2cm.
So I did the mammo and ultrasound and knew when I called for results, that the urgency by my GP to get me in to see her, that something was very wrong. That day I had bloods, CT scan and was booked in for biopsy. All along I was doing as much research as possible. Armed with knowledge I have always found it easier to deal with things. Must be part of the anxiety I have day in and out.
I met my surgeon on Wednesday who gave me the diagnosis. I was alone at the appointment and was in shock, none the less. I guess I was hoping it was just a mass that they just wanted to remove for safety sake. I do remember asking him what type of Cancer and I vaguely remember him saying Metastatic and that its very common. I am booked in for a lumpectomy and node removal on the 22nd. (Tuesday Week). I am then too do 5 weeks radiation.
I've got all of that in my head and ready to deal with. But now I am reading all of the paraphernalia and Metastatic means I have it in other places in my body? Do they know where? Does this mean I will probably have to do chemo after radiation?
I know I am overthinking all of this and should take it one day at a time. I work 3 days a week and also on partial DSP. Being at work keeps my mind off things. I am planning on taking vacation leave for the rest of the week after my lumpectomy. I am so grateful that my oldest of 2 (daughter) is able to travel up from Melbourne to bring me home from the surgery and stay with me for a couple of days.
Another questions. I had been using implannon rod to control my periods, over the years. The last one was put in around 2011 and is still in my arm somewhere. As I have very thick arms I cant feel it and haven't bothered about it. I believe that it has run out of the hormones anyway after all of this time. Is this something I should tell my surgeon about?
I have so many questions. When will I start radiation? Will someone contact me or do I contact them?
I met my Breast Care Nurse but she was heading on vacation to France the next day. I have the number of another one and I will phone her and make contact with her this week.
It's like my whole life is about the Cancer now. I am being strong in front of everyone else but these times at home alone I am terrified.
Sorry if this is all over the shop but that is how my head works. I have been treated and continue to be treated for Depression an Anxiety for close to 20 years and have only recently found a good balance. The Lite N Easy journey was me actually caring about myself. Some days I shake so much it looks like I am having a min seizure.
Usually I am upbeat and cheeky and able to find the lighter sign of things. But tonight I am low.
Any insights would be wonderful.
365 Replies
- TabooGalMember@Eastmum crikey! The shit we are all going through. I keep scaring myself when I pass the mirror. Big bald head with puffy roid face, thin lashes, no nasal hair, and a golf ball bulge on my neck. Make a fortune scaring houses lol
- EastmumMemberHey @TabooGal just catching up with your scary experience!
Amazingly, the woman sitting next to me at chemo this arvo had exactly the same thing happen to her! She also had a DVT and has to give herself clexane injections and was showing us her bruising.
So glad to hear you went back to the hospital. If there's one thing that I've learnt from this BC experience is that you have to push to get listened to! So many of us have been diagnosed and have received the correct treatment by being insistent. We know our bodies better than anyone else, and have a sixth sense when something isn't right.
Hope it's all smooth sailing from here on. xxx - TabooGalMember@tigerbeth I want your carpark fairy. lol
- tigerbethMemberI too had car park anxiety !!! ok if you wanted to pay heaps !
So much so that most days my husband drove me and he did laps ! your in there for such a short time !
The days I did drive I found a park straight away & one particular day the carpark fairy came & even gave me a ticket with 2 hrs left on it ! go figure lol !! - SisterMemberI expected to have so much trouble parking at the RAH but it's been so easy. But then I sometimes have a giggle to myself when I watch people circling around to get a park by the lifts when there's heaps of parks further away.
- ZoffielMember
I never had an issue parking there, sometimes I was a bit further away, but it wasn't stressful. Mxx
- Harvey1903MemberI love the car park fairies. Nearly always works. You have to really believe. Lol :)
- kmakmMember@TabooGal It stresses me out absurdly! And it's almost always never a problem! Oi...
- TabooGalMember@kmakm I love it Yaboo! yep. I even get to appointments more than an hour early so I can get a carpark and time to recover from the anxiety of finding a carpark. My daughter tells me to talk to the Carpark fairies before I leave. It works sometimes and sometimes not. Go figure! lol
- kmakmMember@YabooGal I get car park anxiety too! I thought I was the only one...