Forum Discussion
TabooGal
8 years agoMember
Here Goes
Hello. My name is Jenny and I live on the NSW/Vic Border. I have gone to post in here a couple of times but backed out. Denial maybe?
On Wednesday I was officially given the diagnosis of BC. I have had a large lump for around a year but I have 26JJ sized breasts and the lump is down along where the bra wire sits. I put it down to thickening because of the bra wire. I recently started Lite N Easy and after loosing around 10kg I noticed that the lump was much larger than I thought. It has its own postcode ;p Its 5cm x 3cm x 2cm.
So I did the mammo and ultrasound and knew when I called for results, that the urgency by my GP to get me in to see her, that something was very wrong. That day I had bloods, CT scan and was booked in for biopsy. All along I was doing as much research as possible. Armed with knowledge I have always found it easier to deal with things. Must be part of the anxiety I have day in and out.
I met my surgeon on Wednesday who gave me the diagnosis. I was alone at the appointment and was in shock, none the less. I guess I was hoping it was just a mass that they just wanted to remove for safety sake. I do remember asking him what type of Cancer and I vaguely remember him saying Metastatic and that its very common. I am booked in for a lumpectomy and node removal on the 22nd. (Tuesday Week). I am then too do 5 weeks radiation.
I've got all of that in my head and ready to deal with. But now I am reading all of the paraphernalia and Metastatic means I have it in other places in my body? Do they know where? Does this mean I will probably have to do chemo after radiation?
I know I am overthinking all of this and should take it one day at a time. I work 3 days a week and also on partial DSP. Being at work keeps my mind off things. I am planning on taking vacation leave for the rest of the week after my lumpectomy. I am so grateful that my oldest of 2 (daughter) is able to travel up from Melbourne to bring me home from the surgery and stay with me for a couple of days.
Another questions. I had been using implannon rod to control my periods, over the years. The last one was put in around 2011 and is still in my arm somewhere. As I have very thick arms I cant feel it and haven't bothered about it. I believe that it has run out of the hormones anyway after all of this time. Is this something I should tell my surgeon about?
I have so many questions. When will I start radiation? Will someone contact me or do I contact them?
I met my Breast Care Nurse but she was heading on vacation to France the next day. I have the number of another one and I will phone her and make contact with her this week.
It's like my whole life is about the Cancer now. I am being strong in front of everyone else but these times at home alone I am terrified.
Sorry if this is all over the shop but that is how my head works. I have been treated and continue to be treated for Depression an Anxiety for close to 20 years and have only recently found a good balance. The Lite N Easy journey was me actually caring about myself. Some days I shake so much it looks like I am having a min seizure.
Usually I am upbeat and cheeky and able to find the lighter sign of things. But tonight I am low.
Any insights would be wonderful.
365 Replies
- TabooGalMember
@zoffiel Just got back from initial appointment at Radiology. Craig someone. (chemo brain).
He calmed me about the blood clot thankfully and I should see some change in the next 24-36 hours.
30 rounds of Rads plus boosts. starting end of Sept.
I'm already having carpark anxiety. Craig mentioned that they will be extended service to 7pm so I might get on the late appointments with a better chance of getting a carpark.
- SisterMemberGood point @zoffiel - never forget that you can ask for copies of your results to get sent to whoever you want them to be. My GP asked me to include him as GPs are generally left off the list but he's the one who is likely to see me as a first port of call given the distance we are from a real Emergency Room.
- ZoffielMemberEddie is a star ( I assume that is who you are seeing) @TabooGal tell him everything --write down all the details so you don't forget. Do you know how to get emergency departments etc to send through any results to your medical team? If you have scans or tests tell them to cc your oncs, surgeon and GP. I just write the names on the referral myself. Some door bitches can get sniffy about it, but insist. None of this ''' will be on your health record' nonsense, sent directly, thanks.
- TabooGalMember@Giovanna_BCNA. Thanks. Almost took myself back to ED tonight. I really don't think I should be walking around with a blood clot in my neck and feels like it's getting bigger. I have a 9am app to meet Rad Onc tomoz. Might get some action from him.
- Giovanna_BCNAMemberHello @TabooGal sorry to hear of your recent experience, how scary for you! Look after yourself and keep your doctors posted if you have any concerns.
- TabooGalMember@Sister my Onc spoke of removing the port soon. I am guessing after last chemo when my immune system is back on track.
- AllyJayMemberHi there @arpie , yes I have. One of my autoimmune diseases is called antiphospholipid antigen syndrome which causes me to form clots. Have had four DVTs and also one massive pulmonary embolism in the past. Came off of the warfarin for the duration of chemo then for the surgery and for almost a year thereafter. During that time I was on the clexane, but now back on the warfarin, which I will be on for life.
- arpieMemberOMG! @TabooGal - you've been thru the mill, that is for sure. Glad that Dr just finishing his shift stayed on to check you over & give strict instructions to the followup Dr!!
@AllyJay - OMG .... poor you!! How come you have to be on it for that long? Did you have a history of blood clots before this?
All the best ladies xxxx - SisterMemberBugger! @taboogal It doesn't leave you feeling very positive, does it? @zoffiel is right - you have to be your own advocate but it's bloody hard to do. I've been lucky to have my husband by my side at most things, watching everything ever since my port played up at the first try. If they can't use the port, when is it coming out?
- AllyJayMember@TabooGal , Bruising...18 months of clexane twice a day makes 1080 jabs in the tummy. One bruise on top of the other despite alternating sides as best I could. I had a frozen right shoulder at the time, and couldn't reach the other side, so did some left handed which gave me the heebie jeebies. Off the clexane noe, and back on the warfarin which I've been on for over twenty years.