Forum Discussion
TabooGal
8 years agoMember
Here Goes
Hello. My name is Jenny and I live on the NSW/Vic Border. I have gone to post in here a couple of times but backed out. Denial maybe?
On Wednesday I was officially given the diagnosis of BC. I have had a large lump for around a year but I have 26JJ sized breasts and the lump is down along where the bra wire sits. I put it down to thickening because of the bra wire. I recently started Lite N Easy and after loosing around 10kg I noticed that the lump was much larger than I thought. It has its own postcode ;p Its 5cm x 3cm x 2cm.
So I did the mammo and ultrasound and knew when I called for results, that the urgency by my GP to get me in to see her, that something was very wrong. That day I had bloods, CT scan and was booked in for biopsy. All along I was doing as much research as possible. Armed with knowledge I have always found it easier to deal with things. Must be part of the anxiety I have day in and out.
I met my surgeon on Wednesday who gave me the diagnosis. I was alone at the appointment and was in shock, none the less. I guess I was hoping it was just a mass that they just wanted to remove for safety sake. I do remember asking him what type of Cancer and I vaguely remember him saying Metastatic and that its very common. I am booked in for a lumpectomy and node removal on the 22nd. (Tuesday Week). I am then too do 5 weeks radiation.
I've got all of that in my head and ready to deal with. But now I am reading all of the paraphernalia and Metastatic means I have it in other places in my body? Do they know where? Does this mean I will probably have to do chemo after radiation?
I know I am overthinking all of this and should take it one day at a time. I work 3 days a week and also on partial DSP. Being at work keeps my mind off things. I am planning on taking vacation leave for the rest of the week after my lumpectomy. I am so grateful that my oldest of 2 (daughter) is able to travel up from Melbourne to bring me home from the surgery and stay with me for a couple of days.
Another questions. I had been using implannon rod to control my periods, over the years. The last one was put in around 2011 and is still in my arm somewhere. As I have very thick arms I cant feel it and haven't bothered about it. I believe that it has run out of the hormones anyway after all of this time. Is this something I should tell my surgeon about?
I have so many questions. When will I start radiation? Will someone contact me or do I contact them?
I met my Breast Care Nurse but she was heading on vacation to France the next day. I have the number of another one and I will phone her and make contact with her this week.
It's like my whole life is about the Cancer now. I am being strong in front of everyone else but these times at home alone I am terrified.
Sorry if this is all over the shop but that is how my head works. I have been treated and continue to be treated for Depression an Anxiety for close to 20 years and have only recently found a good balance. The Lite N Easy journey was me actually caring about myself. Some days I shake so much it looks like I am having a min seizure.
Usually I am upbeat and cheeky and able to find the lighter sign of things. But tonight I am low.
Any insights would be wonderful.
365 Replies
- SisterMemberWhat a bugger that the port didn't work. They're not comfortable but worth it if they're working. I can't wait to get mine removed but onc won't organise it until a couple of weeks after radiation just in case it's needed for anything.
3/4 is a fantastic feeling - knowing you only have one more to go and it's done! Look after yourself. - TabooGalMember@kmakm Eyebrows and lashes not affected so much so far. Yes. The sooner I get this port out the better. I am guessing it will happen when chemo is finished in case of infection.
- kmakmMemberHi Jen. Good to hear from you. Almost there thank goodness. How's the eyebrow & eyelash situation? Chemo's cumulative so just roll with the punches and sleep when you need to. All that poison is zipping around killing the nasties, doing its job. Sounds like a good decision re the port. What a relief. K xox
- TabooGalMemberHere I am! Thank you to the lovely ladies who have checked on me through private messaging.
Today was 3/4 of AC. This time it made me incredibly tired. Fell asleep within minutes of getting home. I usually spend the rest of the day drinking water and flushing everything out. Will be doing that tonight with the help of Netflix.
The port in my arm has been more drama than it's worth for me. Not only does it hurt when I bump it but the chemo girls cant draw any blood so wont risk it with the AC. There were plans which involved chemo room to have clip fitted then find my way across the other side of town for a "portagram" (prefer a stripagram), take printed proof back to chemo room where they will be more confident with doing chemo through port. I've been stewing on the process the past weeks and it wasnt doing my head good. Onc agreed with my idea, only 2 chemos left (including today) so let's just do intravenous. Confirmed no other chemo after that but time to have app with Rad Onc to be prepared when the time is ready.
I hope all of you wonderful ladies are in a good place. Jen xxx - FinchMemberIt will all fall out, all of it . Up until a week or so ago I had no hair whatsoever anywhere. I was as smooth as . Just getting a five o'clock shadow now. Quite excited.
- kmakmMemberYes. Maybe give those satin pillows a rest... you might slide off!
- SisterMemberHee hee! Don't worry - it'll all fall out eventually.
- TabooGalMember@kmakm Shower was lovely! At the moment I am at velcro phase. Have had to peel my hats off. Gonna be interesting with pillows when I eventually go to bed!
- kmakmMemberBald showers are a revelation! Enjoy...
My head was initially very flaky and itchy. I moisturised with Moo Goo which I liked a lot and found to be very effective. Avoid anything with fragrances, keep it as natural as possible and as @Zofgiel said, sun protection.
It's an experience, that's for sure. K xox - TabooGalMember@Zoffiel "running to the shower"!!!!!!!!