Forum Discussion
TabooGal
8 years agoMember
Here Goes
Hello. My name is Jenny and I live on the NSW/Vic Border. I have gone to post in here a couple of times but backed out. Denial maybe?
On Wednesday I was officially given the diagnosis of BC. I have had a large lump for around a year but I have 26JJ sized breasts and the lump is down along where the bra wire sits. I put it down to thickening because of the bra wire. I recently started Lite N Easy and after loosing around 10kg I noticed that the lump was much larger than I thought. It has its own postcode ;p Its 5cm x 3cm x 2cm.
So I did the mammo and ultrasound and knew when I called for results, that the urgency by my GP to get me in to see her, that something was very wrong. That day I had bloods, CT scan and was booked in for biopsy. All along I was doing as much research as possible. Armed with knowledge I have always found it easier to deal with things. Must be part of the anxiety I have day in and out.
I met my surgeon on Wednesday who gave me the diagnosis. I was alone at the appointment and was in shock, none the less. I guess I was hoping it was just a mass that they just wanted to remove for safety sake. I do remember asking him what type of Cancer and I vaguely remember him saying Metastatic and that its very common. I am booked in for a lumpectomy and node removal on the 22nd. (Tuesday Week). I am then too do 5 weeks radiation.
I've got all of that in my head and ready to deal with. But now I am reading all of the paraphernalia and Metastatic means I have it in other places in my body? Do they know where? Does this mean I will probably have to do chemo after radiation?
I know I am overthinking all of this and should take it one day at a time. I work 3 days a week and also on partial DSP. Being at work keeps my mind off things. I am planning on taking vacation leave for the rest of the week after my lumpectomy. I am so grateful that my oldest of 2 (daughter) is able to travel up from Melbourne to bring me home from the surgery and stay with me for a couple of days.
Another questions. I had been using implannon rod to control my periods, over the years. The last one was put in around 2011 and is still in my arm somewhere. As I have very thick arms I cant feel it and haven't bothered about it. I believe that it has run out of the hormones anyway after all of this time. Is this something I should tell my surgeon about?
I have so many questions. When will I start radiation? Will someone contact me or do I contact them?
I met my Breast Care Nurse but she was heading on vacation to France the next day. I have the number of another one and I will phone her and make contact with her this week.
It's like my whole life is about the Cancer now. I am being strong in front of everyone else but these times at home alone I am terrified.
Sorry if this is all over the shop but that is how my head works. I have been treated and continue to be treated for Depression an Anxiety for close to 20 years and have only recently found a good balance. The Lite N Easy journey was me actually caring about myself. Some days I shake so much it looks like I am having a min seizure.
Usually I am upbeat and cheeky and able to find the lighter sign of things. But tonight I am low.
Any insights would be wonderful.
365 Replies
- ZoffielMember
Hey Jen. My port never worked when drawing bloods, but it worked for infusions==they just had to slow things down a bit or it would occlude.
The portogram isn't a big deal, they just take you in and shoot a contrast into it to see if it works. All a raving pain in the arse. Mxx
- TabooGalMemberJust saw this on an OS facey site.
- kmakmMemberOh it'll be a whole new world for you I reckon. Stats show they average longer time per patient! Let us know how you get on.
- TabooGalMember@kmakm that would be lovely
My regular GP is very unwell and won't be returning to work. I've had him for over 30 years. My initial appointment with this new one felt uncomfortable but since then she has jumped hoops to get tests done and finding me my surgeon. I've never had a female GP before. Go figure. - kmakmMemberMy lovely GP rings every now and then if I haven't been in for a while, just to check on how I'm going. During chemo I had a standing appointment at her suggestion. I saw her in the third week of every cycle. It made me feel very supported and also proved very useful. K xox
- TabooGalMember@kmakm. Will do. Interested in why she needs to see me. Social visit courtesy of Medicare? :p
- TabooGalMember@sister. It worked fine for first
chemo and midway blood test. Be interesting to see what the go is. - SisterMemberHave you used the port successfully? I had big problems the first time (x-ray showed everything okay) but the thing didn't work and the warning sign was no blood. Second time, all good. No-one really knows what happened but the belief is that it wasn't needled quite right. I haven't had another issue with it and I've gone through the rest of chemo.
- kmakmMemberWhat a lovely photo!
What a bugger you've had such an issue with the port. I hope they can get that sorted out for you quick smart.
My anxiety issues were diagnosed in the course of BC. They're.a shocker eh?
Light headedness can be a sign your blood pressure is low. Mine was low, and got lowere, all the way through chemo. I had several episodes where I almost passed out. Keep your fluids up and keep exercising gently to get that blood circulating. Elevate your feet! Get your GP to check it tomorrow. Big hug, Kate xox - TabooGalMember2nd chemo done and dusted. Unfortunately they were unable to draw blood from my port after almost 2 hours of trying. I told them I preferred to go intravenous rather than risk the chemo not going into a vein. Tonight will tell if meds they did put through port will actually work. Had a good friend drop me off and another sit with me through chemo. 4 hours went pretty fast. I have an appointment tomorrow morning with GP. She sent a message that she wanted to see me and added it's not urgent. She obviously picked up on my anxiety. Tomorrow arvo I have a portagram. Yep never heard of it either. Want to get this port sorted before next infusion. Did you all have light headedness straight after chemo? Both times I've had it. Hope all is good for you all. You have help make journey easier. Suffering from chronic anxiety, knowledge helps so much.
PS. Hair started coming out last night. Charging up the shears to take it all back. Once that gets patchy will shave.
PSS. Farewelled my step dad on Saturday. On the plus side I got time with my daughter & son and his wife and my grandson Oli.