Forum Discussion
TabooGal
8 years agoMember
Here Goes
Hello. My name is Jenny and I live on the NSW/Vic Border. I have gone to post in here a couple of times but backed out. Denial maybe?
On Wednesday I was officially given the diagnosis of BC. I have had a large lump for around a year but I have 26JJ sized breasts and the lump is down along where the bra wire sits. I put it down to thickening because of the bra wire. I recently started Lite N Easy and after loosing around 10kg I noticed that the lump was much larger than I thought. It has its own postcode ;p Its 5cm x 3cm x 2cm.
So I did the mammo and ultrasound and knew when I called for results, that the urgency by my GP to get me in to see her, that something was very wrong. That day I had bloods, CT scan and was booked in for biopsy. All along I was doing as much research as possible. Armed with knowledge I have always found it easier to deal with things. Must be part of the anxiety I have day in and out.
I met my surgeon on Wednesday who gave me the diagnosis. I was alone at the appointment and was in shock, none the less. I guess I was hoping it was just a mass that they just wanted to remove for safety sake. I do remember asking him what type of Cancer and I vaguely remember him saying Metastatic and that its very common. I am booked in for a lumpectomy and node removal on the 22nd. (Tuesday Week). I am then too do 5 weeks radiation.
I've got all of that in my head and ready to deal with. But now I am reading all of the paraphernalia and Metastatic means I have it in other places in my body? Do they know where? Does this mean I will probably have to do chemo after radiation?
I know I am overthinking all of this and should take it one day at a time. I work 3 days a week and also on partial DSP. Being at work keeps my mind off things. I am planning on taking vacation leave for the rest of the week after my lumpectomy. I am so grateful that my oldest of 2 (daughter) is able to travel up from Melbourne to bring me home from the surgery and stay with me for a couple of days.
Another questions. I had been using implannon rod to control my periods, over the years. The last one was put in around 2011 and is still in my arm somewhere. As I have very thick arms I cant feel it and haven't bothered about it. I believe that it has run out of the hormones anyway after all of this time. Is this something I should tell my surgeon about?
I have so many questions. When will I start radiation? Will someone contact me or do I contact them?
I met my Breast Care Nurse but she was heading on vacation to France the next day. I have the number of another one and I will phone her and make contact with her this week.
It's like my whole life is about the Cancer now. I am being strong in front of everyone else but these times at home alone I am terrified.
Sorry if this is all over the shop but that is how my head works. I have been treated and continue to be treated for Depression an Anxiety for close to 20 years and have only recently found a good balance. The Lite N Easy journey was me actually caring about myself. Some days I shake so much it looks like I am having a min seizure.
Usually I am upbeat and cheeky and able to find the lighter sign of things. But tonight I am low.
Any insights would be wonderful.
365 Replies
- TabooGalMemberFinally went in at 7.30pm. 12 hours of waiting. Am now doing an overnight in a surgical ward because it was sooooo late. Did a blue wee *proud look* no food around. May start gnawing on my arm. My beautiful son Ryan appeared out of nowhere mid afternoon after driving over 4 hours from Melbs. Stayed a bit over an hour then headed back. My daughter Sammy has been amazing. I got me some special chillen.
- kmakmMemberOh good grief! You poor love <3 K xox
- iserbrownMemberOh,do they give you an idea of when? It will soon be here and over with
Take care - Kiwi_AngelMember@TabooGal. I have had 3 surgeries - the first wait was about 3 hours, second wait was 6 hours and 3rd wait was about 4 hours. So frustrating especially when u r dying of thirst.
- TabooGalMember8 hours and still waiting. ☹
- kmakmMemberAlmost there!
- Kiwi_AngelMember@TabooGal - good luck for today xoxoxo
- TabooGalMember
@eastmum @kmakm I managed to get to sleep finally with the help of a Valium from my daughter! Just want today over.
@arpie Thanks so much for all of that information. I have to be at the hospital at 7:30am for an appointment at imagining. Not 100% sure what they are doing there. Then I have to wait until the arvo for the op. Bag packed with book, power bank to keep phone charged, robe and slippers (may as well be comfortable). So glad my daughter is here. She has kept my mind busy. Will let you all know how I go!
- arpieMember
@TabooGal
I am SO sorry you’ve ‘joined the club’!! It really is a roller coaster ride, but with the hints & tips the girls have already given you …… it will make it that much easier - and having like minded people ‘watching your back’ - we are all here to help.
All the best for your surgery tomorrow & a good recovery afterwards. I’d suggest you get a small ‘1/4 or 1/2 pillow’ that you can tuck under your arm - to help support it ‘level’ when you sleep, as the angle of the dangle can sometimes cause some discomfort otherwise.
I think you will feel a certain amount of relief once the surgery is over - tho, I must admit that as I left my family in the ‘Waiting Room’ - I dissolved into tears as I was led to my ‘prep room’ prior to surgery. They gave me a whole BOX of tissues, which I thought was hilarious, not just a few!
I’ve actually got a BIG BOX to put ‘all my bits’ in - including X-rays, scans, receipts etc ….. one day, it will live under my bed. Right now - it is in the lounge & everything goes in it!
If you live 100k or more from the place of your treatment, specialist, etc - you should be able to get a portion of your travel & accommodation expenses reimbursed in Vic Gov - check here for info:
https://www2.health.vic.gov.au/hospitals-and-health-services/rural-health/vptas-how-to-apply
But you WILL NEED to get your surgeon/BC Nurse to fill them out for you - and keep track of each visit with dates etc - as they need to sign off on them. With a bit of luck, they will have copies available at their offices. I’ve just had $300 worth of fuel reimbursed for all my trips to Port Macquarie for 4 weeks of radiation. I was lucky & able to stay at very little cost at the Rotary Lodge there - and I have more forms to lodge re my actual initial surgeon appointments & surgery back in Jan! (Yeah, slack, eh!?)
Re finances - I was assisted by the Cancer Council with a one-off payment of one of my ‘house bills’ - council rates, power, water rates - if they fall due whilst you are having treatment, the CC may make a 1 off payment on your behalf of about $350 The Social Worker who will be checking up on you during treatment should be able to advise you on this.
Thinking of you for tomorrow’s op .... all the best. Make haste slowly afterwards xx- - kmakmMemberYeah, come hang out with the midnight crew! You'll find us on a thread called Who Else Can't Sleep :) K xox