Forum Discussion
TabooGal
8 years agoMember
Here Goes
Hello. My name is Jenny and I live on the NSW/Vic Border. I have gone to post in here a couple of times but backed out. Denial maybe?
On Wednesday I was officially given the diagnosis of BC. I have had a large lump for around a year but I have 26JJ sized breasts and the lump is down along where the bra wire sits. I put it down to thickening because of the bra wire. I recently started Lite N Easy and after loosing around 10kg I noticed that the lump was much larger than I thought. It has its own postcode ;p Its 5cm x 3cm x 2cm.
So I did the mammo and ultrasound and knew when I called for results, that the urgency by my GP to get me in to see her, that something was very wrong. That day I had bloods, CT scan and was booked in for biopsy. All along I was doing as much research as possible. Armed with knowledge I have always found it easier to deal with things. Must be part of the anxiety I have day in and out.
I met my surgeon on Wednesday who gave me the diagnosis. I was alone at the appointment and was in shock, none the less. I guess I was hoping it was just a mass that they just wanted to remove for safety sake. I do remember asking him what type of Cancer and I vaguely remember him saying Metastatic and that its very common. I am booked in for a lumpectomy and node removal on the 22nd. (Tuesday Week). I am then too do 5 weeks radiation.
I've got all of that in my head and ready to deal with. But now I am reading all of the paraphernalia and Metastatic means I have it in other places in my body? Do they know where? Does this mean I will probably have to do chemo after radiation?
I know I am overthinking all of this and should take it one day at a time. I work 3 days a week and also on partial DSP. Being at work keeps my mind off things. I am planning on taking vacation leave for the rest of the week after my lumpectomy. I am so grateful that my oldest of 2 (daughter) is able to travel up from Melbourne to bring me home from the surgery and stay with me for a couple of days.
Another questions. I had been using implannon rod to control my periods, over the years. The last one was put in around 2011 and is still in my arm somewhere. As I have very thick arms I cant feel it and haven't bothered about it. I believe that it has run out of the hormones anyway after all of this time. Is this something I should tell my surgeon about?
I have so many questions. When will I start radiation? Will someone contact me or do I contact them?
I met my Breast Care Nurse but she was heading on vacation to France the next day. I have the number of another one and I will phone her and make contact with her this week.
It's like my whole life is about the Cancer now. I am being strong in front of everyone else but these times at home alone I am terrified.
Sorry if this is all over the shop but that is how my head works. I have been treated and continue to be treated for Depression an Anxiety for close to 20 years and have only recently found a good balance. The Lite N Easy journey was me actually caring about myself. Some days I shake so much it looks like I am having a min seizure.
Usually I am upbeat and cheeky and able to find the lighter sign of things. But tonight I am low.
Any insights would be wonderful.
365 Replies
- TabooGalMember@Sister sounds pretty good to me!
- kmakmMember@Sister That sounds about right to me. Stage 2 can include spread to lymph nodes, or the tumour being in the lymph nodes.
- ZoffielMemberI think a new pet might be just the ticket. It's likely you will be spending more time at home and they can be a great comfort. And a source of entertainment which, given the quality of day time TV is a blessing. You just need to be sensible, maybe think about adopting one that is already housetrained and not so likely to shit in your shoes :)
- Kiwi_AngelMember@TabooGal I have been very lucky at work and my colleagues have kept me away from any fractious animals and I have just dealt with the ones that don’t want to bite me (which is about 95% of them) and I have done a lot of paperwork. I have been round a few sick people too but have just tried to be as careful as I can. I find having s pet can be great for u emotionally when u are going through all this and my cat at home has been my fur nurse and has been glued to my side when I am off after chemo. She can give u a little nibble every now and then is she isn’t getting her way but doesn’t break the skin.
- SisterMemberGreat news!
If I've got this right, Grade 3 refers to how different the cells have become - 1 being fairly normal looking, 2 showing significant change and 3 looking completely different. The Ki count refers to the aggressiveness of the cancer cells - higher numbers are faster dividing. Stage refers to how far in the body it has spread (this is then dividing into a, b...) - 1 is very early and local, 2 is in the breast only, 3 has spread to nodes, 4 is in the rest of the body.
Anybody - if I've got this wrong please correct me! - TabooGalMember@tigerbeth I am so grateful for everyone here! Xxx
- tigerbethMember@TabooGal Yay for clear margins !!!
Sounds like you're getting a handle on this BC shit !!
the learning curve is steep & we all seem to master it pretty damm quick !
This forum is a wonderful place to learn & find comfort from those wth experience & wisdom .
Good luck , wishing you a smooth journey .
Dont push yourself & rest as much as you can ( that was an instruction from my breast care nurse )
Hugs xx - TabooGalMember@"Kiwi Angel" wow vet nursing would be amazing. How do you go with avoiding infections etc whilst on chemo? Why I ask is after keeping my cat Squishy alive for almost 2 years (diabetes, 2x daily injection and bgl testing). She was PTS June last year. I'm ready to get another but wondered if I should wait a bit longer until chemo finished for mine and moggys safety.
- Kiwi_AngelMember@TabooGal. I work as a vet nurse and see histopath results all the time and a lot of this was new to me so googled a lot of reputable Australian sites. I think my ki was 15% which put me in the grey area which is why I decided to go the chemo route. Knowledge is power ;)
- TabooGalMember@"Kiwi Angel" thank you for that reference. Looks like I am 2a also with the largest part being 41mm. And no for nodes. Who'd have thought we would become sorta experts about breast cancer!
@arpie I think the grade 3 has come from the ki 67 being at 30%. He did explain the sliding bar for grades and if I remember rightly Grade 3 started at 30%. Don't quote me on that though