Forum Discussion
TabooGal
8 years agoMember
Here Goes
Hello. My name is Jenny and I live on the NSW/Vic Border. I have gone to post in here a couple of times but backed out. Denial maybe?
On Wednesday I was officially given the diagnosis of BC. I have had a large lump for around a year but I have 26JJ sized breasts and the lump is down along where the bra wire sits. I put it down to thickening because of the bra wire. I recently started Lite N Easy and after loosing around 10kg I noticed that the lump was much larger than I thought. It has its own postcode ;p Its 5cm x 3cm x 2cm.
So I did the mammo and ultrasound and knew when I called for results, that the urgency by my GP to get me in to see her, that something was very wrong. That day I had bloods, CT scan and was booked in for biopsy. All along I was doing as much research as possible. Armed with knowledge I have always found it easier to deal with things. Must be part of the anxiety I have day in and out.
I met my surgeon on Wednesday who gave me the diagnosis. I was alone at the appointment and was in shock, none the less. I guess I was hoping it was just a mass that they just wanted to remove for safety sake. I do remember asking him what type of Cancer and I vaguely remember him saying Metastatic and that its very common. I am booked in for a lumpectomy and node removal on the 22nd. (Tuesday Week). I am then too do 5 weeks radiation.
I've got all of that in my head and ready to deal with. But now I am reading all of the paraphernalia and Metastatic means I have it in other places in my body? Do they know where? Does this mean I will probably have to do chemo after radiation?
I know I am overthinking all of this and should take it one day at a time. I work 3 days a week and also on partial DSP. Being at work keeps my mind off things. I am planning on taking vacation leave for the rest of the week after my lumpectomy. I am so grateful that my oldest of 2 (daughter) is able to travel up from Melbourne to bring me home from the surgery and stay with me for a couple of days.
Another questions. I had been using implannon rod to control my periods, over the years. The last one was put in around 2011 and is still in my arm somewhere. As I have very thick arms I cant feel it and haven't bothered about it. I believe that it has run out of the hormones anyway after all of this time. Is this something I should tell my surgeon about?
I have so many questions. When will I start radiation? Will someone contact me or do I contact them?
I met my Breast Care Nurse but she was heading on vacation to France the next day. I have the number of another one and I will phone her and make contact with her this week.
It's like my whole life is about the Cancer now. I am being strong in front of everyone else but these times at home alone I am terrified.
Sorry if this is all over the shop but that is how my head works. I have been treated and continue to be treated for Depression an Anxiety for close to 20 years and have only recently found a good balance. The Lite N Easy journey was me actually caring about myself. Some days I shake so much it looks like I am having a min seizure.
Usually I am upbeat and cheeky and able to find the lighter sign of things. But tonight I am low.
Any insights would be wonderful.
365 Replies
- TabooGalMember@Joannie Thank you. Yes I am so glad he is finally at peace.
- AnonymousNot applicableThe user and all related content has been deleted.
- TabooGalMemberEvery day feels like Sunday now that I'm not going to work. Difficult day today. My Beautiful step father gained his wings today. It was an honour to be there with him when he passed over. Something so heartbreaking was also so beautiful. Stage 4 without really knowing the primary. Too late for treatment and having a dicky heart treatment would have killed him. My heart broke as my special needs brother just sobbed and sobbed. Al was his best friend. My brother lives in a low needs share house. He is here with me tonight. He needs to be with family.
And I am having the sensitive scalp feeling. The first tuft of hair and it's all coming off. So excited! NOT!
Hope you all had a better day. Feeling like I need some of those special cookies! - SisterMemberGlad you're looking after yourself. Good on your Super company too.
- arpieMemberGood on you, @TabooGal - one less thing to worry about for you whilst having your treatment.
Well done on getting onto your Super company! Great work!! That'll take care of the 'unpaid work period' too
All the best for your ongoing treatment xxx - ZoffielMemberBeing sensible can be a bit disappointing sometimes Jen, but it is the right thing to do. Well done for making an informed decision which will take some pressure off you. Mxx
- SoldierCrabMemberAh it's good to keep the chemo staff entertained.....
- Kiwi_AngelMember@TabooGal glad you are hanging in there and so glad you have a supportive work place and that you have been able to access some super. I was lucky that I had never really been sick prior to this so had about 3 months of sick leave saved up so was able to just work minimally and still get paid. Such a weight off you mind and you can just concentrate on yourself xoxox
- kmakmMemberSounds like a well thought out and sensible decision @TabooGal. So good that your super has been able to facilitate you being able to put yourself first.
Now here's a weird sentence to write: have fun at chemo! K xox - TabooGalMember
Hey all I am still here. Main side effect 13 days after 1st AC had been exhaustion. Mouth a little sore but sucking on zooper doopers in front of the heater is helping lots. I made a decision today to take extended unpaid leave and dropped into work to let them know. Was awesome to see everyone again. What was happening, I was preparing myself mentally the night before to go to work but wasn't able to get out of bed to go. The pressure I have been putting on myself was too much. This way I can focus totally on treatment and recovery with the knowledge my job is safe. I actually rang my super company again and I have been assessed as eligible to access a lump sum payment which takes a lot of stress off.
Next AC is next Tuesday. One of the girls from work is taking leave to sit with me. Lord help the Chemo room cos we were always getting into trouble together at work! Hope you are all doing well on this tumultuous journey.