Forum Discussion
TabooGal
8 years agoMember
Here Goes
Hello. My name is Jenny and I live on the NSW/Vic Border. I have gone to post in here a couple of times but backed out. Denial maybe?
On Wednesday I was officially given the diagnosis of BC. I have had a large lump for around a year but I have 26JJ sized breasts and the lump is down along where the bra wire sits. I put it down to thickening because of the bra wire. I recently started Lite N Easy and after loosing around 10kg I noticed that the lump was much larger than I thought. It has its own postcode ;p Its 5cm x 3cm x 2cm.
So I did the mammo and ultrasound and knew when I called for results, that the urgency by my GP to get me in to see her, that something was very wrong. That day I had bloods, CT scan and was booked in for biopsy. All along I was doing as much research as possible. Armed with knowledge I have always found it easier to deal with things. Must be part of the anxiety I have day in and out.
I met my surgeon on Wednesday who gave me the diagnosis. I was alone at the appointment and was in shock, none the less. I guess I was hoping it was just a mass that they just wanted to remove for safety sake. I do remember asking him what type of Cancer and I vaguely remember him saying Metastatic and that its very common. I am booked in for a lumpectomy and node removal on the 22nd. (Tuesday Week). I am then too do 5 weeks radiation.
I've got all of that in my head and ready to deal with. But now I am reading all of the paraphernalia and Metastatic means I have it in other places in my body? Do they know where? Does this mean I will probably have to do chemo after radiation?
I know I am overthinking all of this and should take it one day at a time. I work 3 days a week and also on partial DSP. Being at work keeps my mind off things. I am planning on taking vacation leave for the rest of the week after my lumpectomy. I am so grateful that my oldest of 2 (daughter) is able to travel up from Melbourne to bring me home from the surgery and stay with me for a couple of days.
Another questions. I had been using implannon rod to control my periods, over the years. The last one was put in around 2011 and is still in my arm somewhere. As I have very thick arms I cant feel it and haven't bothered about it. I believe that it has run out of the hormones anyway after all of this time. Is this something I should tell my surgeon about?
I have so many questions. When will I start radiation? Will someone contact me or do I contact them?
I met my Breast Care Nurse but she was heading on vacation to France the next day. I have the number of another one and I will phone her and make contact with her this week.
It's like my whole life is about the Cancer now. I am being strong in front of everyone else but these times at home alone I am terrified.
Sorry if this is all over the shop but that is how my head works. I have been treated and continue to be treated for Depression an Anxiety for close to 20 years and have only recently found a good balance. The Lite N Easy journey was me actually caring about myself. Some days I shake so much it looks like I am having a min seizure.
Usually I am upbeat and cheeky and able to find the lighter sign of things. But tonight I am low.
Any insights would be wonderful.
365 Replies
- Kiwi_AngelMember@TabooGal. I have tried to work as much as I can through this whole journey with surgery and chemo and like u, I have a very supportive work place. It’s the best feeling to have some sense of normality and it’s great to take your mind off things.
- SisterMemberIt's great to feel supported at work, isn't it? Good luck for Monday!
- AnonymousNot applicableHi @TabooGal all the best with your treatment. It sounds like you are doing really well. It’s good to decide how much you want to involve work in your treatment. I kept work informed at a certain level. I’d avoid involving the CEO too much unless she’s a good friend.
It can get very tiring explaining things to people at work all the time and when you are trying to get back to normal after treatment, it can be tricky if you’ve disclosed too much. Just decide how much you want to share. I’ve faced discrimination down the track. Also be careful about getting sickness certificates for too long as your work place can make you take the time off. It’s wonderful that your workplace is supportive and they may continue to be. x - TabooGalMember@kmakm I hope you have a great weekend too. Having a Netflixx binge I think.
- kmakmMemberAs shitty as lows are on the BC rollercoaster, the highs when they come are all the sweeter by contrast. I'm glad you've had a good strong day. Ride that high into the weekend!
The ripple effect of a diagnosis is fascinating. Several of my friends have gone to get mammograms because of me, most for the first time. If your work is fully supportive and on board, it will do wonderful things for awareness, maybe some fund raising, and your experience could prompt others to get checked, and so possibly save their lives. Bewdy bonza @TabooGal! - TabooGalMemberManaged a whole day at work today. First one in weeks. Felt so good being "normal" and keeping busy! I saw my CEO for the first time since my diagnosis. She gave me a huge hug and told me they were all going on this journey with me. She even offered to come to appointments with me. Everyone at work have been fabulous and I have opened up a dialogue with both women and men on breast cancer. I feel strong today (that could change tomorrow) and ready to fight this bastard called cancer. Everyone on BCNA have fortified that strength by sharing your knowledge and experiences with honesty and a pureness of heart. Bless you all xxxx
- TabooGalMember@arpie have onc appointment Monday arvo. It's all happening real fast now
- arpieMemberhahaha @Zoffiel - it sounds like you have experience of your cat shitting in your shoes! ;) SO funny!
Any word from your Onc, @TabooGal ? - Kiwi_AngelMember@TabooGal Definitely get an older, housetrained, gentle cat. It’s great to give an older cat a home too as everyone wants kittens. Best company.
- TabooGalMember@"Kiwi Angel" @Zoffiel I've gotta buy a few things first but will definately get a rescue cat. I remember the company Squishy was for me. Another heartbeat in my lil flat.