Forum Discussion
TabooGal
8 years agoMember
Here Goes
Hello. My name is Jenny and I live on the NSW/Vic Border. I have gone to post in here a couple of times but backed out. Denial maybe?
On Wednesday I was officially given the diagnosis of BC. I have had a large lump for around a year but I have 26JJ sized breasts and the lump is down along where the bra wire sits. I put it down to thickening because of the bra wire. I recently started Lite N Easy and after loosing around 10kg I noticed that the lump was much larger than I thought. It has its own postcode ;p Its 5cm x 3cm x 2cm.
So I did the mammo and ultrasound and knew when I called for results, that the urgency by my GP to get me in to see her, that something was very wrong. That day I had bloods, CT scan and was booked in for biopsy. All along I was doing as much research as possible. Armed with knowledge I have always found it easier to deal with things. Must be part of the anxiety I have day in and out.
I met my surgeon on Wednesday who gave me the diagnosis. I was alone at the appointment and was in shock, none the less. I guess I was hoping it was just a mass that they just wanted to remove for safety sake. I do remember asking him what type of Cancer and I vaguely remember him saying Metastatic and that its very common. I am booked in for a lumpectomy and node removal on the 22nd. (Tuesday Week). I am then too do 5 weeks radiation.
I've got all of that in my head and ready to deal with. But now I am reading all of the paraphernalia and Metastatic means I have it in other places in my body? Do they know where? Does this mean I will probably have to do chemo after radiation?
I know I am overthinking all of this and should take it one day at a time. I work 3 days a week and also on partial DSP. Being at work keeps my mind off things. I am planning on taking vacation leave for the rest of the week after my lumpectomy. I am so grateful that my oldest of 2 (daughter) is able to travel up from Melbourne to bring me home from the surgery and stay with me for a couple of days.
Another questions. I had been using implannon rod to control my periods, over the years. The last one was put in around 2011 and is still in my arm somewhere. As I have very thick arms I cant feel it and haven't bothered about it. I believe that it has run out of the hormones anyway after all of this time. Is this something I should tell my surgeon about?
I have so many questions. When will I start radiation? Will someone contact me or do I contact them?
I met my Breast Care Nurse but she was heading on vacation to France the next day. I have the number of another one and I will phone her and make contact with her this week.
It's like my whole life is about the Cancer now. I am being strong in front of everyone else but these times at home alone I am terrified.
Sorry if this is all over the shop but that is how my head works. I have been treated and continue to be treated for Depression an Anxiety for close to 20 years and have only recently found a good balance. The Lite N Easy journey was me actually caring about myself. Some days I shake so much it looks like I am having a min seizure.
Usually I am upbeat and cheeky and able to find the lighter sign of things. But tonight I am low.
Any insights would be wonderful.
365 Replies
- TabooGalMember
- TabooGalMemberHaving a wonderful time in Melbs visiting my beautiful children and my Grandson. Nice to escape the big C for a day or two. Only problem is my body is hurting after the pre chemo flu shot I had on Thursday. I should have packed the WD40. :p
- TabooGalMember@"Kiwi Angel" gotta enjoy some things in life with this journey xx
- Kiwi_AngelMember@TabooGal. I’m the same - I have used champix a few times and stop and then something happens and I start again. I generally only smoke now if I’m drinking and I must say I enjoy a cold beer and a ciggie. One of the worst things in the world to try and give up :(
- TabooGalMember@arpie @"Kiwi Angel" Bloody smokes. I will give them up for years then something stressful will happen in my life and I light up. I honestly cant afford them and I hate that I am addicted but I always find Zyban great to help give up. Takes away all of the cravings and withdrawal symptoms. Although if someone offered me a doobie right now I wouldn't say no! :p
- Kiwi_AngelMember@TabooGal smoking and I have had a love/hate relationship for a number of years. I now have a casual drinking relationship with the bloody things.
- arpieMemberOMG @TabooGal - that seems an exhausting regime of days ...... I really feel for you.
I hope your next round of appointments goes 'well' ...... they seem to be either feast or famine! 20 over 10 days or NONE! grrrrr
All the best to you xx Good on you for giving up the smokes too ...... I did it 'cold turkey' 30 years ago ..... - kmakmMemberUtterly exhausting! Just reading it made me feel tired...
Happy to say Melbourne's weather isn't going to be too bad this weekend.
Good on you for giving up smoking! Are you just starting now or is it an ongoing effort? K xox - Kiwi_AngelMember@TabooGal u have been busy - no wonder u r over it. I hate hospital parking - it’s either slim pickings or ridiculously priced. Good luck for the rest of the week.
- TabooGalMember
So over appointments already yet the game hasn't even started yet.
10:30am. Radiology to have some nuclear stuff put in my veins for bone scan later
12:00pm. Surgeon. Removed 325mls of fluid from where he removed the tumour.
1:45pm. Back to Radiology for bone scan.
Then tomorrow.
8:40am. GP for Flu shot and Zyban (to give up smoking)
10:30am. Radiology for a couple of hours for heart scan.
Ran into my BCN twice today. Onc wanted to know if I was wanting a port put in. YES Please. I have dodgy veins soo the port will make it easier for everyone.
Message left on phone by Radiology to organise a time to have a SlimPort fitted. Will catch up with them when I am there tomorrow.
Friday I hope to fit in a full day of work! Long weekend. So off to Melbourne to visit the kids.
I know this is all going to become second nature but by damn why don't they have plenty of carparks at these hospitals?? Hospital is 15 minutes away but I have to leave an hour before just so I can have time to find a carpark.
sorry Rant over!
Hope everyone is going well. xxx