Forum Discussion
TabooGal
8 years agoMember
Here Goes
Hello. My name is Jenny and I live on the NSW/Vic Border. I have gone to post in here a couple of times but backed out. Denial maybe?
On Wednesday I was officially given the diagnosis of BC. I have had a large lump for around a year but I have 26JJ sized breasts and the lump is down along where the bra wire sits. I put it down to thickening because of the bra wire. I recently started Lite N Easy and after loosing around 10kg I noticed that the lump was much larger than I thought. It has its own postcode ;p Its 5cm x 3cm x 2cm.
So I did the mammo and ultrasound and knew when I called for results, that the urgency by my GP to get me in to see her, that something was very wrong. That day I had bloods, CT scan and was booked in for biopsy. All along I was doing as much research as possible. Armed with knowledge I have always found it easier to deal with things. Must be part of the anxiety I have day in and out.
I met my surgeon on Wednesday who gave me the diagnosis. I was alone at the appointment and was in shock, none the less. I guess I was hoping it was just a mass that they just wanted to remove for safety sake. I do remember asking him what type of Cancer and I vaguely remember him saying Metastatic and that its very common. I am booked in for a lumpectomy and node removal on the 22nd. (Tuesday Week). I am then too do 5 weeks radiation.
I've got all of that in my head and ready to deal with. But now I am reading all of the paraphernalia and Metastatic means I have it in other places in my body? Do they know where? Does this mean I will probably have to do chemo after radiation?
I know I am overthinking all of this and should take it one day at a time. I work 3 days a week and also on partial DSP. Being at work keeps my mind off things. I am planning on taking vacation leave for the rest of the week after my lumpectomy. I am so grateful that my oldest of 2 (daughter) is able to travel up from Melbourne to bring me home from the surgery and stay with me for a couple of days.
Another questions. I had been using implannon rod to control my periods, over the years. The last one was put in around 2011 and is still in my arm somewhere. As I have very thick arms I cant feel it and haven't bothered about it. I believe that it has run out of the hormones anyway after all of this time. Is this something I should tell my surgeon about?
I have so many questions. When will I start radiation? Will someone contact me or do I contact them?
I met my Breast Care Nurse but she was heading on vacation to France the next day. I have the number of another one and I will phone her and make contact with her this week.
It's like my whole life is about the Cancer now. I am being strong in front of everyone else but these times at home alone I am terrified.
Sorry if this is all over the shop but that is how my head works. I have been treated and continue to be treated for Depression an Anxiety for close to 20 years and have only recently found a good balance. The Lite N Easy journey was me actually caring about myself. Some days I shake so much it looks like I am having a min seizure.
Usually I am upbeat and cheeky and able to find the lighter sign of things. But tonight I am low.
Any insights would be wonderful.
365 Replies
- EastmumMemberThat’s mighty impressive @kezmusc and good on you for changing doctors! Feel free to rant away! You proved them wrong - so glad it worked for you :) xx
- TabooGalMember@kezmusc Got some to spare for me? :p
- kezmuscMember@TabooGal and @Eastmum
That's a shame they tell you things like cold caps work. Fair enough, some places don't have them and that's a pity everyone doesn't have the option to try it.. Sure, there are varying results. Taxotere seems to struggle a bit as does FEC. It's just the same as every other thing in this shit fight. Some people suffer terribly with chemo, some do not. Same with radiation. Same as Neulasta and hormone therapy.
When my first oncologist told me they don't work, give you migraines, add so much time to your treatment and (in a very condescending way) made me feel like my hair should be the last thing on my mind. I got another oncologist!
Sorry for the rant but it really shits me. The photo below is my hair after the usual 4 x 3 weekly AC and 12 weeks paclitaxel. Nah, didn't work at all. - EastmumMemberhahahaha thanks @TabooGal - everytime someone texts me to ask me how I'm going with the treatment, I send them that photo - it's hilarious waiting for them to respond - you can almost 'hear' some people wondering what to reply :smiley:
- Kiwi_AngelMember@Eastmum I can’t stomach biotene either since from the second cycle. The other stuff isn’t too bad but I was probably getting abit put off that too.
- TabooGalMember@Eastmum Yes! Go back and get it! So much fun. When can we find an excuse to be a lil crazy but now! It looks bloody awesome on you!
- EastmumMember@TabooGal no they haven’t given me a mouthwash but I can’t
stomach biotene, coconut oil or anything like that - to be honest I’d rather put up with the dry mouth!
That gel looks interesting though @"Kiwi Angel" I might check that out.
Re: neulasta - it’s so amazing how different people’s experiences are. I’ve now had 2 neulasta injections and have not felt anything at all. Not a twinge or a creak. I wonder why some people like you @kezmusc have such a strong reaction and for others, like me, it’s as if I never had any injection at all. They did give me the option of taking it home and injecting myself but there’s just no way I can do that. I’d rather drive the half hour and pay the $6 in parking - just can’t do it!
I wouldn’t worry about other people being confronted by your scarved head at reception @TabooGal It sounds like you’re going to be wearing a beautiful smile and that you’ll be adorned in colour! What better way to greet people! I’m sure the only effect will be that you’ll make people smile and feel happy when they see you.
Is this the kind of cosplay wig you were thinking of? Hahahahaha - tried it on last week - might just go back and get it! - TabooGalMember@Zoffiel I'll chase that up. Anything to help with side effects. As for injecting myself, depends on where I have to do it. If its intramuscular I don't know if I can do it. Thankfully there seems to be plenty of carparks at the centre!
@kezmusc I did ask about cold caps. They aren't available at this centre. Onc also says they don't work with the red devil anyways. I was up all night ordering headgear off ebay. I have been thinking about getting microblading done for my eyebrows before chemo starts and sussing out eyelashes. I have no idea how to draw on my own eyebrows.
@SoldierCrab I can see it becoming mine too! - SoldierCrabMemberTaboogirl it is my permanent toothpaste these days....
- kezmuscMemberThey told me just by Claratyne. Maybe that's why the rashes still kept coming. Weird it was only on my left side. Neulasta stinks! Only ever did it once and that was enough....grrr. Didn't need it anyway as it turns out.
Just a question @Taboogal have you inquired to see if there are cold caps available where you are? I too am at reception and it made a massive difference getting through my treatment being able to keep my hair.