Forum Discussion
TabooGal
8 years agoMember
Here Goes
Hello. My name is Jenny and I live on the NSW/Vic Border. I have gone to post in here a couple of times but backed out. Denial maybe?
On Wednesday I was officially given the diagnosis of BC. I have had a large lump for around a year but I have 26JJ sized breasts and the lump is down along where the bra wire sits. I put it down to thickening because of the bra wire. I recently started Lite N Easy and after loosing around 10kg I noticed that the lump was much larger than I thought. It has its own postcode ;p Its 5cm x 3cm x 2cm.
So I did the mammo and ultrasound and knew when I called for results, that the urgency by my GP to get me in to see her, that something was very wrong. That day I had bloods, CT scan and was booked in for biopsy. All along I was doing as much research as possible. Armed with knowledge I have always found it easier to deal with things. Must be part of the anxiety I have day in and out.
I met my surgeon on Wednesday who gave me the diagnosis. I was alone at the appointment and was in shock, none the less. I guess I was hoping it was just a mass that they just wanted to remove for safety sake. I do remember asking him what type of Cancer and I vaguely remember him saying Metastatic and that its very common. I am booked in for a lumpectomy and node removal on the 22nd. (Tuesday Week). I am then too do 5 weeks radiation.
I've got all of that in my head and ready to deal with. But now I am reading all of the paraphernalia and Metastatic means I have it in other places in my body? Do they know where? Does this mean I will probably have to do chemo after radiation?
I know I am overthinking all of this and should take it one day at a time. I work 3 days a week and also on partial DSP. Being at work keeps my mind off things. I am planning on taking vacation leave for the rest of the week after my lumpectomy. I am so grateful that my oldest of 2 (daughter) is able to travel up from Melbourne to bring me home from the surgery and stay with me for a couple of days.
Another questions. I had been using implannon rod to control my periods, over the years. The last one was put in around 2011 and is still in my arm somewhere. As I have very thick arms I cant feel it and haven't bothered about it. I believe that it has run out of the hormones anyway after all of this time. Is this something I should tell my surgeon about?
I have so many questions. When will I start radiation? Will someone contact me or do I contact them?
I met my Breast Care Nurse but she was heading on vacation to France the next day. I have the number of another one and I will phone her and make contact with her this week.
It's like my whole life is about the Cancer now. I am being strong in front of everyone else but these times at home alone I am terrified.
Sorry if this is all over the shop but that is how my head works. I have been treated and continue to be treated for Depression an Anxiety for close to 20 years and have only recently found a good balance. The Lite N Easy journey was me actually caring about myself. Some days I shake so much it looks like I am having a min seizure.
Usually I am upbeat and cheeky and able to find the lighter sign of things. But tonight I am low.
Any insights would be wonderful.
365 Replies
- TabooGalMember@kmakm make sure it's in huge marker pen!
- kmakmMemberHints are useless in my family. As @tigerbeth says, a list on the fridge might be the best move!
- TabooGalMember@kmakm Start putting hints out now!
- kmakmMemberI do love a long series of thick books. It's my birthday in a few weeks, if someone asks me what I'd like I'll say Book One I think!
- TabooGalMember@Eastmum I think snow and ashes is the 6th book. I agree all books past the latest in the series aren't as easy to read. For me I think it's trying to add the new characters in and imagining Jamie as older. I too follow Diana on facey. Love it when she shares parts of her current book.
Good luck tomorrow *big hugs* - EastmumMemberI just started that book Jenny! I've had a bit of a Netflix binge period but I'm starting Chemo tomorrow and intend to get lost in Outlander while I'm sitting there. I am loving them all but I find that book 4 was a bit slower than the others so I hope more happens in book 5. Do you know Diana wrote the first book about 20 years ago! I also follow her on Facebook - she's very generous with her fans.
- TabooGalMember@Eastmum How freaky is this. I'm up to the same book! They are my escape! Lizzie has just had her unusual handfast. Trying not to give too much away unless you're not there yet! I love the TV series and hope they go to the end. Diana Galbadon is working on #9! Jamie can park his boots under my bed any day :open_mouth:
@kmakm I highly recommended the books. 8 super thick books so far - EastmumMemberThe books are amazing! And Jaime is MUCH sexier in the books :smile:
- kmakmMemberLove Outlander, but only the tv show so far. Must read the books!
- EastmumMember@TabooGal - or should I say mo caraid - I also bury myself in Outlander - which book are you up to? I'm on book 5 - a breath of snow and ashes. I became obsessed with the TV series then after I finished watching season 2 I started reading the books - now I'm ahead of the TV series but still can't wait for season 4!
Absolutely love Thelma, Louise and Brad - so important to keep a semblance of a sense of humour through all of this shit - you'll find there's a lot of laughs on this forum, in among the tears and fears.
Absolutely no question that you need to get those reports from your Dr, as others have already said. Going to and fro to different types of specialists I've found that sometimes they haven't received everything from each other and it's a great idea to carry them all around in a binder like @sister suggested.
If you have to let the Lite 'n Easy go - could you maybe treat yourself to just getting their dinners? When I was on L&E I found that I could duplicate many of the breakfasts and lunches myself - like the toast and jam, cereal portion or the lunch sandwiches - for much cheaper, but having those dinners in the freezer was the most handy part. I have a funny story about L&E - the first time they delivered to my house they buzzed the intercom and when I asked who it was, the guy said 'It's Lite and Easy' - when I opened the door I was very cheeky and said 'oh, there's only one of you - so which one are you, Lite or Easy?' - we had a good laugh :smiley: