Forum Discussion
TabooGal
8 years agoMember
Here Goes
Hello. My name is Jenny and I live on the NSW/Vic Border. I have gone to post in here a couple of times but backed out. Denial maybe?
On Wednesday I was officially given the diagnosis of BC. I have had a large lump for around a year but I have 26JJ sized breasts and the lump is down along where the bra wire sits. I put it down to thickening because of the bra wire. I recently started Lite N Easy and after loosing around 10kg I noticed that the lump was much larger than I thought. It has its own postcode ;p Its 5cm x 3cm x 2cm.
So I did the mammo and ultrasound and knew when I called for results, that the urgency by my GP to get me in to see her, that something was very wrong. That day I had bloods, CT scan and was booked in for biopsy. All along I was doing as much research as possible. Armed with knowledge I have always found it easier to deal with things. Must be part of the anxiety I have day in and out.
I met my surgeon on Wednesday who gave me the diagnosis. I was alone at the appointment and was in shock, none the less. I guess I was hoping it was just a mass that they just wanted to remove for safety sake. I do remember asking him what type of Cancer and I vaguely remember him saying Metastatic and that its very common. I am booked in for a lumpectomy and node removal on the 22nd. (Tuesday Week). I am then too do 5 weeks radiation.
I've got all of that in my head and ready to deal with. But now I am reading all of the paraphernalia and Metastatic means I have it in other places in my body? Do they know where? Does this mean I will probably have to do chemo after radiation?
I know I am overthinking all of this and should take it one day at a time. I work 3 days a week and also on partial DSP. Being at work keeps my mind off things. I am planning on taking vacation leave for the rest of the week after my lumpectomy. I am so grateful that my oldest of 2 (daughter) is able to travel up from Melbourne to bring me home from the surgery and stay with me for a couple of days.
Another questions. I had been using implannon rod to control my periods, over the years. The last one was put in around 2011 and is still in my arm somewhere. As I have very thick arms I cant feel it and haven't bothered about it. I believe that it has run out of the hormones anyway after all of this time. Is this something I should tell my surgeon about?
I have so many questions. When will I start radiation? Will someone contact me or do I contact them?
I met my Breast Care Nurse but she was heading on vacation to France the next day. I have the number of another one and I will phone her and make contact with her this week.
It's like my whole life is about the Cancer now. I am being strong in front of everyone else but these times at home alone I am terrified.
Sorry if this is all over the shop but that is how my head works. I have been treated and continue to be treated for Depression an Anxiety for close to 20 years and have only recently found a good balance. The Lite N Easy journey was me actually caring about myself. Some days I shake so much it looks like I am having a min seizure.
Usually I am upbeat and cheeky and able to find the lighter sign of things. But tonight I am low.
Any insights would be wonderful.
365 Replies
- Kiwi_AngelMember@TabooGal @arpie
https://breast-cancer.canceraustralia.gov.au/diagnosis/stages-breast-cancer
Mine was stage IIA - arpieMember@TabooGal - Damn!! Hopefully it is with the good news re your other Her2 Dish test! GOOD LUCK!
I had my bone scan last week - didn't get the report but got the 'pics' ...... I think I am 'ok' ... the Letrozole tabs I am on can impact bone density, so well worth getting done.
Yep - terrific result at this stage ...... I wonder if the Grade 3 relates to the size of your lumps ..... your results are very similar to mine apart from the size (mine were smaller) and my 'KI67' averaged 25% & had a hot spot of 50% .... and no mention of chemo for me .... so fingers crossed .... at 30% - they may recommend chemo.
.....Ki-67 – Ki-67 is a protein in cells that increases when cells are dividing.The report shows the percentage of cancer cells that contain Ki-67.The more positive cells there are, the more quickly the cancer is dividing and growing.....
I've just checked my path results - and it has something similar to your 'Stage' bits .... I have no idea what they mean either! I am sure my surgeon would have explained them if they were 'odd'?
Having positive Progesterone & Oestrogen is totally normal ..... I think many/most of us have that. xx
I think you are approaching this terrifically - once I got over the shock of the diagnosis & stuff, I think I approached it a bit the same .... head on! ..... and all going well - everything goes REALLY well for you! xx - TabooGalMember@kmakm I think I need classes in wrapping the scarves! Might have to find some that slip on. The brighter the better! Taking advantage of having bright colours on my noggin without the cost of a hairdresser
- kmakmMemberMost of us are shit scared of chemo but for almost everyone it's not quite as bad as we anticipate. It kind of has a reputation from the bad old days. Now there's medication for most side effects, and once you get into the swing of it, you adjust and work out how to plod your way through. Don't be backwards in coming forwards if you're in pain or nauseous, tell the medicos and they'll find the right meds.
No one will tell you it's fun because it's not! But human beings are adaptable and you do kind of get used to it. I still sobbed at regular intervals, but that was more due to the cancer in general and other stresses in my life! The hair falling out thing seems to be a big one for lots of women, though not all. It wasn't for me. I have a feeling you'll handle that one with humour! Hang in there and enjoy your good news for now! :) Kate xox - TabooGalMember@arpie I missed a phone call from oncologist whilst I was having nap this arvo. I'll call in the morning. I have none scan next Wednesday and heart scan next Thursday. Chemo scares me but you're right it's like a pest treatment. Just so relieved that they got clear margins and no known node activity. Xxxx
- TabooGalMember@Zoffiel I must make myself familiar with the centre. The wellness centre looks good too
- TabooGalMember@"Kiwi Angel" oops forgot that one or and pr both positive.
- arpieMemberWoohoo @TabooGal
..... not looking' too bad just now .... All out, Clear Margins, not in the lymph nodes ..... fingers crossed the Her2 Dish is negative .... good that the other one is! ;)
Chemo isn't 'too bad' for everyone, 'if' you need to go down that road - everyone has different reactions. My hubby had it after his stomach cancer surgery - we just called it the 'good poison' that was mopping up any random escapees .... he had 50 lymph nodes checked & it was in 1 - so we couldn't take the chance of NOT having chemo. He just felt very tired after about day 3 & put himself to bed for 2 days ..... his hair thinned badly but didn't lose it completely ..... he had to stay out of the sun totally, as his skin was just too sensitive - and he continued to exercise throughout all his chemo treatments. He DID wear a beanie tho - as he went thru it in winter!
Yours may be a totally different mix of 'chemo' - maybe not as strong as some others? Only time will tell - and that is only IF you need to have it!!
Take it easy at work if you can afford to - your body is madly running around itself, healing itself from the surgery - and things are still hurting .... and you are not Superwoman! ;) Be kind to yourself xxxx If anyone offers to do things for you - let them! It is a Win Win situation! :)
Take care & all the best for your next meeting!! xx - ZoffielMember
The cancer centre has an excellent wig library @taboogal
- Kiwi_AngelMember@TabooGal - that’s great news about clear margins. Did the report say anything about estrogogen/progesterone positivity. Happy for u even if chemo is in your future - I’m sure u will kick it out of the park xoxox