Forum Discussion
TabooGal
8 years agoMember
Here Goes
Hello. My name is Jenny and I live on the NSW/Vic Border. I have gone to post in here a couple of times but backed out. Denial maybe?
On Wednesday I was officially given the diagnosis of BC. I have had a large lump for around a year but I have 26JJ sized breasts and the lump is down along where the bra wire sits. I put it down to thickening because of the bra wire. I recently started Lite N Easy and after loosing around 10kg I noticed that the lump was much larger than I thought. It has its own postcode ;p Its 5cm x 3cm x 2cm.
So I did the mammo and ultrasound and knew when I called for results, that the urgency by my GP to get me in to see her, that something was very wrong. That day I had bloods, CT scan and was booked in for biopsy. All along I was doing as much research as possible. Armed with knowledge I have always found it easier to deal with things. Must be part of the anxiety I have day in and out.
I met my surgeon on Wednesday who gave me the diagnosis. I was alone at the appointment and was in shock, none the less. I guess I was hoping it was just a mass that they just wanted to remove for safety sake. I do remember asking him what type of Cancer and I vaguely remember him saying Metastatic and that its very common. I am booked in for a lumpectomy and node removal on the 22nd. (Tuesday Week). I am then too do 5 weeks radiation.
I've got all of that in my head and ready to deal with. But now I am reading all of the paraphernalia and Metastatic means I have it in other places in my body? Do they know where? Does this mean I will probably have to do chemo after radiation?
I know I am overthinking all of this and should take it one day at a time. I work 3 days a week and also on partial DSP. Being at work keeps my mind off things. I am planning on taking vacation leave for the rest of the week after my lumpectomy. I am so grateful that my oldest of 2 (daughter) is able to travel up from Melbourne to bring me home from the surgery and stay with me for a couple of days.
Another questions. I had been using implannon rod to control my periods, over the years. The last one was put in around 2011 and is still in my arm somewhere. As I have very thick arms I cant feel it and haven't bothered about it. I believe that it has run out of the hormones anyway after all of this time. Is this something I should tell my surgeon about?
I have so many questions. When will I start radiation? Will someone contact me or do I contact them?
I met my Breast Care Nurse but she was heading on vacation to France the next day. I have the number of another one and I will phone her and make contact with her this week.
It's like my whole life is about the Cancer now. I am being strong in front of everyone else but these times at home alone I am terrified.
Sorry if this is all over the shop but that is how my head works. I have been treated and continue to be treated for Depression an Anxiety for close to 20 years and have only recently found a good balance. The Lite N Easy journey was me actually caring about myself. Some days I shake so much it looks like I am having a min seizure.
Usually I am upbeat and cheeky and able to find the lighter sign of things. But tonight I am low.
Any insights would be wonderful.
365 Replies
- kmakmMemberDriving tomorrow for the first time in over four weeks. My Zonta cushion (small floral pattern) will be with me. Probably over my abdomen.
- Kiwi_AngelMemberMy breastcare nurse said to me u are ready to drive when u think I can handle it if u had to stop suddenly and the seatbelt dug into u @TabooGal.
- TabooGalMember@"Kiwi Angel" I'll definately take it with me for the car. I haven't driven yet but with my daughter going home I will have to brave it. *big hugs*
- Kiwi_AngelMember@TabooGal that’s the same as mine except mine was pink - it was a godsend for me too after surgery. Slept with it over my shoulder/under my armpit and when I started driving again wore it the same way but out it in between the seatbelt and my mastectomy area. The armpit pain is definately the worst. Xoxox
- TabooGalMember@arpie talking about the pillow, my Breast Care Nurse popped in whilst I was waiting for surgery on Tuesday with a goodies bag put together by local BC support group with funding from Rotary. Lo and behold this pillow was with it. It has been my saving grace when sleeping. I hook it over my shoulder so it moves with me ( which isn't much with the endone) its soft and satin and had to have been designed by a pink warrior as it's perfect. 3 days since surgery. Boob is black above dressing and wound under armpit hurts more than boob. Hope you are doing well. Xxx
- Kiwi_AngelMember@TabooGal - definately get as much rest as you need too. I have learnt to listen to my body through all this and give it what it wants. xoxo
- arpieMember@TabooGal
So glad you are feeling a bit better now - tho that ache/pain under the arm can take a while to go away - and my underarm is still numb now, over 4 months later!
That is wonderful that your kids have been such a great support for you.
Keep the pain meds up for a couple more days at least, even more - take them religiously every 4-6hrs ..... don't wait to let the pain 'kick in' or it takes much longer to control again! It is better to keep the meds 'level' rather than having 'highs & lows'. Maybe take the endone just at night for a while - as it will give you a deeper pain control & also help you sleep. It shouldn't clog you up if just taking the one a day.
The anaesthetic will take a few days to get out of your system - so snooze as much as you want - it is good for you too.
I had the odd really sharp pain in behind my armpit - a real stabbing pain - short & sharp - which is also quite normal. It didn't happen often, but took my breath away when it happened!
Don't forget the small pillow to support your arm - particularly once you are able to sleep on your side again .... it keeps your arm level with your body - and is much more comfy & less painful.
All the best - thinking of you xxx
@annsan
WOW! I can see a lot of people contacting you now re beating the form filling system!! LOL I still haven't lodged my IPTASS forms from Jan-Few yet! I must do it soon! - TabooGalMember@"Kiwi Angel" I'll give nurofen a go too. I never know when to use what. Might head out later and grab a couple of boxes. My daughter heads back to Melb today. But I have a work friend dropping in to visit this arvo. Might get her to grab a couple of boxes on the way over. Hope you have a good day. Going to take advantage of the dog next door not barking to get some more zzzz's
- Kiwi_AngelMember@TabooGal you definately do not want Thelma and Louise bouncing around at all. Can u take nurofen. Just remember with the endone it can block u up abit but definitely don’t suffer if I don’t have to. Big hugs xoxo
- TabooGalMember@"Kiwi Angel" it does sound sore. I just took some panadol to take the edge off. Trying not to rely on endone too much. I don't know why. As my daughter keeps saying. "Mum, you don't have to be in pain". Having 26jj boobs I don't think I will be doing an Irish jig anytime soon but these new bras have Thelma and Louise snug as a bug.