Forum Discussion
Here Goes
Hello. My name is Jenny and I live on the NSW/Vic Border. I have gone to post in here a couple of times but backed out. Denial maybe? On Wednesday I was officially given the diagnosis of BC. I hav...
11KViews
Sign in to react to this post
@TabooGal I bought a 2 ring zip up binder from Officeworks (well, I started with a binder, then upgraded to a lever arch folder) and some clear sleeves. I put EVERYTHING bc in that, and have it divided into things like "treatment", "work", "well-being". You collect a lot of bits of paper on this rollercoaster and it's good to keep them in one spot. It also means that I can take the whole thing with me when I go to an appointment and know if I have to refer to something, I have it there.
The other thing that has been good is in the beginning I "appointed" two really good friends as gatekeepers to tell everyone else and with the instruction that I didn't want to be inundated with people visiting, ringing, etc to see how I was. Then my husband set up a blog for me (I'm sure I could have done it eventually but he wanted to do something practical) and I post updates and general life musings on that. I passed that address out to anyone (including work colleagues) who I thought would be interested.
The other thing that has been good is in the beginning I "appointed" two really good friends as gatekeepers to tell everyone else and with the instruction that I didn't want to be inundated with people visiting, ringing, etc to see how I was. Then my husband set up a blog for me (I'm sure I could have done it eventually but he wanted to do something practical) and I post updates and general life musings on that. I passed that address out to anyone (including work colleagues) who I thought would be interested.