Xeloda
Morning Girls :) Any of you willing to share your experience with Xeloda?? Cate
Forum Discussion
hi cate64,
you dont mention if you are on xeloda or if your oncologist is mentioning that it may be an option for you, i have mets to my liver and my spine and bones, i have been on xeloda for a year, it is an excellent drug in that it does the job, my tumour markers have been as low as 12!! and at the moment are at 17, im due for scans in 3 weeks to see whats happening on the inside, BUT i dont have to have a whole of body bone scan for the first time in three years!
a good site to go to for a lot of information is Chemocare.com xeloda.
There are side effects which of course not everyone gets however it does pay to ask a lot of questions,if your oncologist does decide that this is for you, the one thing i would mention is because of the possibility of hand and foot syndrome - you can look this up - its a very good idea to purchase a skin cream with at least 10% urea and use this cream on your hands and feet for at least a week prior to starting xeloda,also avoid exposing your hands and feet to heat and avoid putting pressure on your hands and feet for up to a week after starting the tablets, I know you love running and this may be a problem for you, but as we are all different it may not happen to you, the next side effect is diarrorea, gastrostop is what i use, there are different methods of duration its usually 14 days on then 7 days off, but for me I take the drug for 12 days and have a nine day break, there is a lot of information about xeloda and i wont go into it all, do you have a mcgrath nurse? if so she will be the go to person for info, read up as much as you can, im happy to answer any questions you may have -you can private message me if you like, also just quickly xeloda is a drug that is very sun sensitive, you will have to cover up and use a lot of sunscreen, i wear cotton gloves and a long sleeve shirt outside plus a hat, also socks are a must - its not all doom and gloom - im still plugging away, in fact i have just had a three week break off the drug, and one of the good things about it is its a tablet,
you dont mention if you are on xeloda or if your oncologist is mentioning that it may be an option for you, i have mets to my liver and my spine and bones, i have been on xeloda for a year, it is an excellent drug in that it does the job, my tumour markers have been as low as 12!! and at the moment are at 17, im due for scans in 3 weeks to see whats happening on the inside, BUT i dont have to have a whole of body bone scan for the first time in three years!
a good site to go to for a lot of information is Chemocare.com xeloda.
There are side effects which of course not everyone gets however it does pay to ask a lot of questions,if your oncologist does decide that this is for you, the one thing i would mention is because of the possibility of hand and foot syndrome - you can look this up - its a very good idea to purchase a skin cream with at least 10% urea and use this cream on your hands and feet for at least a week prior to starting xeloda,also avoid exposing your hands and feet to heat and avoid putting pressure on your hands and feet for up to a week after starting the tablets, I know you love running and this may be a problem for you, but as we are all different it may not happen to you, the next side effect is diarrorea, gastrostop is what i use, there are different methods of duration its usually 14 days on then 7 days off, but for me I take the drug for 12 days and have a nine day break, there is a lot of information about xeloda and i wont go into it all, do you have a mcgrath nurse? if so she will be the go to person for info, read up as much as you can, im happy to answer any questions you may have -you can private message me if you like, also just quickly xeloda is a drug that is very sun sensitive, you will have to cover up and use a lot of sunscreen, i wear cotton gloves and a long sleeve shirt outside plus a hat, also socks are a must - its not all doom and gloom - im still plugging away, in fact i have just had a three week break off the drug, and one of the good things about it is its a tablet,