Forum Discussion
Hendrix
6 years agoMember
WTF 2020
Good evening everyone...I really thought 2020 was going to be my year! Anyone else? First the fires...floods...then I thought I was having a heart attack which turned out to be Takotsubo cardiomyopath...
Lisa1407
6 years agoMember
@Hendrix - they found them when I had my 3 monthly PET (they did think I may have active mets though because I have my ctDNA measured every month as part of a research project, and the ctDNA had began to rise). I still have one minute spot on my pubic bone. They didn't zap this spot because they were not sure it was real and if they did zap it, it would mean my radiation dose would have been higher than they would like. So will have another PET in 3.5 months to make sure the ones they zapped are gone and to see what is happening with the remaining spot. It the remaining spot is real it will be time for a change in meds (and I am fast running out of oral options)!